Re: adhesions suck and I am fed up!!!

From: Tonya Valpey (rainchild_35@hotmail.com)
Thu Dec 19 09:08:30 2002


Thank you, Sally for the kind words of encouragement. I am so grateful for this site and women like yourself that are supportive. I see that I am not alone and there is hope for our futures.

I am so excited for your recovery and to follow your story on the spray-gel. I hope and pray <have my fingers crossed and on my knees before God> that you never have another bit of pain from adhesions again!!!! This brings hope for the rest of us.

I think that I'm going to just sit tight and wait before I have another surgery and wait for the spray-gel to get to the USA. If it doesn't come, I am going to Germany for treatment. I'd like more details about your doctor. Does he have a web-site? I am so excited that it's working for you that I can't stand it. Last night I suffered in so much pain but I thought, " I can do this for a little longer because there is hope now". Thank you for sharing this with all of us.

Love and Merry Christmas and a pain-free new year! Tonya

>From: LostCst@mcn.org (Sally Grigg)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: adhesions suck and I am fed up!!!
>Date: Wed, 18 Dec 2002 16:10:09 -0600
>
>At Tue, 17 Dec 2002, Tonya Fleming wrote:
> >
> >I am new to this forum. Until yesterday, I thought I was the only one
> >that suffered from adhesions. I live in Idaho and the doctors here are
> >"small time" so they seem to not know anything about them. I have seen
> >many doctors and they all seem to think that the pain is either in my
> >head or I'm "drug-seeking". I'm tired of not being taken serious and
> >not being diagnosed correctly. I've finally moved to the biggest city
> >in Idaho and finally I'm gaining some ground on them believing me and
> >running tests. But now I've been referred to a chronic pain center and
> >told that there is nothing that can be done for me. I'm scared because
> >I need a partial hysterectomy and am scared to death that the surgery
> >will screw me up even more. I've already had 4 surgeries to remove the
> >adhesions to my liver, bowels and ovaries. Now, one more surgery could
> >put me even in more chronic pain. Has anyone out there got any
> >suggestions on this? I am desperate to find help. I appreciate this
> >site so much because until yesterday, I suffered in chronic pain alone.
> >I don't know another sole in this world that has my problems. Thank God
> >for you all.
> >
> >Merry Christmas to all
> >Tonya
> >
> >Dear Tonya, No, my dear, you are defintely not alone. I was so happy when
>I found this site, Still in agony but at least I wasn't alone. And there
>is help. I went to Dr. Daniel Kruchinski in Germany near Frankfurt. Yes, it
>costs money. But I had no adhesions with his operating skill, his no carbon
>dioxide method, plus spray gel which is not allowed in this country, yet.
>
>Unfortunately, my appendix burst- evidently just about when I got off
>the plane and I didn't think that pain was anything so I didn't go to
>the hospital for three days. To make a long story shorter, they opened
>me up, I was filled with UCK and I wound up in hospital for a little
>over a month. But my adhesions (I think and hope) are still gone. I've
>had a surgery a year in the U>S>A> and could always feel them within a
>week. This last time I was near death according to the doctor. Not
>now. I feel weak, but great. So there is hope. Take care and don't be
>afraid to say how you feel. We all do. We also know that all of us
>have suffered, so gentle, gentle. Please read some stories from the
>quilt. It will give you a better understanding and a feel for how many
>women are in pain due to adhesions and how long its been going on. Good
>luck, my new friend. Love, Sally Grigg
> >--
> >Tonya Fleming
> >
>


Enter keywords:
Returns per screen: Require all keywords: