Re: SWEET KATH, CHRONIC FEVER
From: Kathi (kredfield@hotmail.com)
Thu Jan 30 17:15:49 2003
At Fri, 10 Jan 2003, cindy shruhan wrote:
>
>HI SWEETIE, JUST READ YOUR POSTING, AND I PERSONALLY RAN A FEVER FOR
>YEARS ALSO, DUE TO ULCERATIVE COLITIS, MY DOCTORS ALSO TREATED ME WITH
>ANTI, BUT IT ALWAYS CAME BACK, FINALLY DIAGNISED WITH COLITIS, AND THE
>PROPER MEDS, I NO LONGER HAVE ONE..A FEVER IS ALWAYS A WARNING TO THE
>BODY, THAT SOMETHING IS WRONG, WHAT THAT IS, MUST BE DETERMINED BY BLOOD
>WORK, TESTING BEYOND BL WORK, AND DO YOU HAVE ADHESIONS, CAN YOU EMAIL
>ME PERSONALLY WITH YOUR LONGER VERSION OF THIS, AGAIN A FEVER IS A
>WARNING OF INFECTION USUALLY, AND IT TOOK THEM YEARS TO FINALLY FIND THE
>SOURSE OF MINE, SO KNOW I HAVE BEEN THERE, AND IM JUST A SUFFER OF 19
>YEARS OF ADHESIONS, AND COLITIS, SO THIS I DO KNOW, I WOULD ALSO ASK
>YOUR DOCTOR WHY HES NOT RUNNING MORE TEST ON YOU...IM CONCERNED, SO
>PLEASE HANG IN THERE, AND KNOW THAT YOUR NOT ALONE AT ALL, AND I CAN
>SEND SOME WEBSITES ON THIS, I WILL SEARCH THE ARCHIVES ASAP.....AND
>SWEETIE, HAVE YOU HAD A SECOND OPINION ON THIS, HAVE YOU ONLY SEEN A MD,
>OR GI DOC, PAIN DOC, LET ME KNOW, KNOW THAT YOUR WELCOME HERE AT THE IAS
>WEBSITE, WE ALL WISH THAT YOU WILL STAY WITH US, AND PLEASE POST YOUR
>STORY ON OUR QUILT PAGE, AND LET US KNOW WHAT ELSE YOU NEED, HAVE YOU
>HAD BLADDER, KIDNEY PROBLEMS, BOY SWEETIE, THIS COULD BE ANYTHING
>REALLY.....SO LET ME KNOW MORE, AND I CAN SEND INFO SO THAT YOU CAN READ
>FOR YOURSELF, WHAT A CHRONIC FEVER MEANS, ETC..K...I WILL DO THIS SOON,
>I DO HAVE TO CALL OUR SISTER TISH, SHE IS IN THE HOSPITAL..BUT HERE
>COMES SOME WEBSITES FOR YOU TO READ, AND AGAIN, ASK WHY, AND DEMAND THAT
>THEY DO SOMETHING, OR SWITCH DOCTORS...A NEW FRIEND, CINDY SHRUHAN....
>cindyandbobby@webtv.net
>
>--
>I'M VISUALLY IMPAIRED, I NEED THE CAP'S IN ORDER TO TYPE, NOT TO OFFEND ANYONE..THANKS FOR UNDERSTANDING...
>
--
Cindy,
THANK YOU FOR RESPONDING TO MY MESSAGE. I HAVE HAD ADHESIONS FOR 17 YEARS NOW. 22 SURGERIES, MULITPLE BOWEL RESECTIONS A HYSTERECTOMY. IF IT COULD COME OUT THEY HAVE TAKEN IT. I'VE HAD THIS FEVER FOR FOREVER, AT FIRST I WAS TOLD IT WAS A BOWEL FISTUAL, SO I WENT ON TPN FOR 6 WEEKS AND COULDN'T EAT OR DRINK TO HEAL IT, THEN IT WAS PNEUMONIA, AND AN ABCESS IN THE ABDOMIN. I'VE HAD MULTIPLE BLOOD CULTURES, CBC, LFTS YOU NAME IT. I HAD 15 CT SCAN THIS YEAAR ALONE. I WENT TO SEE DR. COOK IN CALIFORNIA LAST FEB. AND HE PERFORMED A SURGERY ON ME WHICH WASN'T HELPFUL, I WOULD LIKE TO GO BACK TO HIM BUT MONEY IS A PROBLEM SEEING I'M UNABLE TO WORK DUE TO PAIN. DR. COOK DOES A SURGERY THEN IN 5-7 DAYS GOES BACK IN AND THEN IN ANOTHER 5-7 DAYS HE GOES IN AGAIN TO RELEASE THE ADHESIONS. I'M CURRENTLY REQUESTING MY PCP TO FIND ME A CAPABLE SURGEON AAND INFECTIOUS DISEASE DOCTOR TO HELP ME WITH MY FEVER AND PAIN. I'VE BEEN DOING RESEARCH ON IBS AND CROHNS AND I'M WONDERING IF THAT IS THE CAUSE OF MY FEVER. THANKS AGAIN FOR RESPONDING. I DON'T CHECK MY E-MAIL OFTEN ENOUGH BUT I WILL GET BACK TO YOU WHEN I CAN. THANKS FOR BEING A FRIEND SOME TIMES YOU FEEL VERY ALONE WITH THIS DISEASE.