Re: Adhesions,Hirschbrungs Disease
From: jess (X_GRRL_83@hotmail.com)
Fri Jan 31 04:39:03 2003
hi
i feel bad sending you a message because i don't suffer from your
condition but my baby brother does.
at the moment he's in a chicldrens hospital and has been there for the
last three months(yeah all over christmas and everything) the problem is
it just doesn't seem to be getting any better and i was wondering if you
could enlighten me a bit. i really don't understand everything about
his condition and especially not the problems that have happened prior
to surgerys!
to give you a summary on it all basically: dylan was born 17th sept
1999. he's just gone three and so far he's had at least a dozen major
surgerys and at least two dozen minor.
when he was born they couldn't diagnose what was wrong for 11 months and
we only found out then because he got dehydrated while on holidays in
magaluf and a specialist spotted it then. he was given a colostomy bag
and had a large part of his intestines removed as well as part of his
bowel. he was great with the colostomy for a year and then they tried
to reverse it but that failed so we were back to the colostomy again. He
was so healthy with the colostomy so the left it for another year to
give him a chance to gain weight and strength etc etc. so that brings
us up to last november, he was brought back in for a reversal and was
only supposed to be in for 3 or 4 days. but two days after the surgery
they did a scan on his stomach and discovered the part of the intestine
they had reattatched to his bowel was affected by the disease as well so
it hadn't joined properly therefore allowing all the waste in his system
to leak into his stomach giving his septicimia. we nearly lost his that
time but hte doctors tried so hard to give him every chance at a normal
life but it wasn't to be unfortunatly. they had to give him the
colostomy back but it's just been up and down since then. the
septicimia damaged his stomach so badly he can't absorb anything he
eats. i'm watching my little brother fade away to nothing day after day
and it's killing my whole family and what makes it so much harder is
that i don't understand why?
apparantly all the problems now are caused by obstructions in his bowel
and intestine from adhesions or scar tissue.
please help me because it feels like we may lose him and i just can't
seem to find anything positive at all on the net. nearly every outcome
is either a colostomy for life or the patient suffers from vomiting
severe constipation among other things.
Is there any solution to this disease or will it just keep eating away
at him untill theres nothing left?
--
jess (Dublin, ireland)
|
