to give you a summary on it all basically: dylan was born 17th sept 1999. he's just gone three and so far he's had at least a dozen major surgerys and at least two dozen minor. when he was born they couldn't diagnose what was wrong for 11 months and we only found out then because he got dehydrated while on holidays in magaluf and a specialist spotted it then. he was given a colostomy bag and had a large part of his intestines removed as well as part of his bowel. he was great with the colostomy for a year and then they tried to reverse it but that failed so we were back to the colostomy again. He was so healthy with the colostomy so the left it for another year to give him a chance to gain weight and strength etc etc. so that brings us up to last november, he was brought back in for a reversal and was only supposed to be in for 3 or 4 days. but two days after the surgery they did a scan on his stomach and discovered the part of the intestine they had reattatched to his bowel was affected by the disease as well so it hadn't joined properly therefore allowing all the waste in his system to leak into his stomach giving his septicimia. we nearly lost his that time but hte doctors tried so hard to give him every chance at a normal life but it wasn't to be unfortunatly. they had to give him the colostomy back but it's just been up and down since then. the septicimia damaged his stomach so badly he can't absorb anything he eats. i'm watching my little brother fade away to nothing day after day and it's killing my whole family and what makes it so much harder is that i don't understand why? apparantly all the problems now are caused by obstructions in his bowel and intestine from adhesions or scar tissue. please help me because it feels like we may lose him and i just can't seem to find anything positive at all on the net. nearly every outcome is either a colostomy for life or the patient suffers from vomiting severe constipation among other things. Is there any solution to this disease or will it just keep eating away at him untill theres nothing left?
-- jess (Dublin, ireland)