Re: ADHESIONS digest 2595
From: Eva Thomas (email@example.com)
Fri Feb 21 23:06:06 2003
Hello to all and an enthusiastic Dawn Rose!
I have just now started to investigate about 1. IBS
and then 2. Adhesions. So, I am somewhat of a
greenhorn, although I had surgery for "lysis of
adhesions" in 1991.
And, yes Dawn, Seligenstadt is a quaint little town on
the Main river, not too far from where I was born and
raised. THAT'S why I asked. You can imagine my eyes
almost popping out of my head when I read your posts
about surgery in Germany!
I am german and was born in Frankfurt. I live in the
US (WA) now with my retiered-Army husband and teenage
daughter. We've been back here (we were here before
and all over the US) for 2 yrs now. I have family and
friends in Frankfurt.(If there's something you miss,
Dawn, we can have it sent here, ok?)
As you already gathered, I believe I am having a
problem. I am copy/pasting my story for you next. I
had originaly wrote to the Society in the UK, thinking
they were the only ones "out there".
Kathy Finlay let me know about this group and I
finally made it on. Here we go:
Sorry it took a little longer for my intro.
I am joyning this group from Washington State, USA.
1991 I had a total radical hysterectomy, which led to
an adhesion-Ileus 4 weeks later. I had renewed surgery
w/ Miller-Abott-tube. (hate to think about it).
6 weeks after that I had abdominal/vaginal radiation.
This ordeal left me with criss/cross scars, hardening
My digestive tract was challenged from then on and got
progressivly worse through the years.
I've had numerous CT's, small-bowel-follow-throughs,
upper/lower GI's and Endoscopy's. (Colonoscopy's are
not possible - tried twice).
There is no clear obstruction visible, but there is
all the indication, on film, for a "partial bowel
I am tortured by sometimes overwhelming pain w/
cramping, which gets more and more localized. I can
only eat small portions of certain foods. Have to wait
until it's digested. Otherwise I get "backed-up",
bloated, lots of gas (which I cant get rid of), acid,
gastric reflux, vomiting. I have diarrhea w/ urgent
bathroom visits (and accidents) almost always.
The cramps can be so bad, that I can see my abdomen
move when they come on every few minutes. Scary.
I only eat about 5 out of 7 days a week and am
constantly full. 2 out of 4 weeks I feel sick and
Take soluble fiber supplements, Hyoscyamine (like
candy), Simethicone gas pills, Hydrocodone (for the
really bad ones) and Doxepin (Tricyclic
Have also studied about IBS, because my docs thought
that's what I had at first. These studies have helped
Well, now I havent got a clue how to live with a
"partial bowel obstruction". I also know, that I might
be inviting more trouble w/ an additional sugery.
Especially on an iradiated abdomen.
That's why I was looking for people who might have
This problem has become even worse within the last 5-6
I will read your daily digests for more insight on
this whole adhesion problem.
Talk to you soon and thank you for listening.
I am going to see my military-doc in mid March to hear
I've read about enemas and diapers. All I can say is:
OH, MY GOD!!!!!!
I will look at the sites Helen Dynda posted and do
some more studying in the meantime.
I've also just written to a nice lady on another
firstname.lastname@example.org. That site doesnt
seem to be as active.
Do you have a chat room? I've never "chatted" online
and would need help. My e-mail: email@example.com
Thank you all and have a great weekend.
Do what you can, for whom you can, with what you have, from where you are.
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