Re: What do you guys think I should do?
From: Dawn (dawn@naisp.net)
Thu Feb 27 05:30:36 2003
I hate to say it and please remember I am no doctor but you have
described my life to a tee. Then it got worse! I was diagnosed with
many things like IBS but in the long run all my problems were adhesion
related.I have just come back from Germany, where I made the concious
choice to have the best chance of an ELECTIVE adhesiolysis procedure as
opposed to my proposed very short term future...surgery under emergency
conditions by a genral surgeon. I am sure Dr. K. saved my life and
gave me the best chance for regaining my life. He is one of a handful
of surgeons , if that many, who do this procedure all the time and have
developed techniques that will certainly improve the quality of your
life as you do indeed have adhesions. DR.K. is well equipepeted to
handled any other pelvic problem that may occur IE. remove
endometriosis, bowel resection. In retrospect when I think of all the
testing I went thru and the thousands of dollars it cost ( have you had
the joy of a defogram yet?)for the price of a cheap car you can enjoy
your life again and put these problems to rest and find out if there has
been underlying damage from the adhesions. He saved my overy that had a
cyst the size of a mans fist inside of it that any other surgeon would
have just taken but now I am spared the added trouble of surgically
induced menopause ( this ovary is the only thing left after my hyst). I
cannot say enough about what I believe to be an adhesion sufferers best
chance to have themseves litterally brought back to the land of the
living and if you wish to explore this option I am here as are others
who have gone before me to help you. You are in the right place. I
spent at least a year here on the boards educating myself about options
and treatments and what it is to suffer from ARD. I feel I made a well
thought out educated decision for this chance that surely saved my life.
Please visit this website for more information http://www.endogyn.com there is
much here in the archives as well just punch up Germany.
Much love and the end of another "commercial" for Germany.
Take you meds if they are not strong enough ask for a different kind and
avoid any type of surgery till you give yourself a proper education on
what being a person with ARD means.
Love,
Dawn
At Wed, 26 Feb 2003, Deanna Simmons wrote:
>
>In 2000 I had a laparoscopy to determine what was causing my pelvic
>pain. The gyno said she found adhesions. This is how they were
>described: "adhesions between the sigmoid and fallopian tube", "a
>tenting of the sigmoid colon against the pelvic sidewall" and "scarring
>between the round ligaments and the fallopian tube". All were released
>and/or cut. I might have had a month or two free of pain (can't really
>remember) but it's been pretty non-stop for a couple of years.
>Back in 2000, I believe the pain was throughout my pelvic area and to
>the right. Well, the adhesions were found on my left side...the gyno
>said something about the right sided pain being referred. The pain I
>have now is mainly right sided along with some bladder issues because I
>was told last summer that I have Interstitial Cystitis.
>I describe the pain as burning, tearing, gnawing and always say "it's as
>if a sharp knife is stabbing me"...in fact, there have been times that I
>have wanted to stab a knife in that area!!! It is constant. My pain
>medication only takes the edge off and there's times it feels like I
>didn't even take any. I'm still grateful to be given them but wish I
>could end the pain cycle more.
>I've been wondering if I have IBS or other bowel troubles...anything
>except adhesions. I do get constipated a lot but I don't know if it's
>the adhesions or the pain medication. Sometimes my stools come out
>(when I can get them out!) looking like a really weird shape...like the
>shape of a twisting & turning intestine. I also have painful
>intercourse at times and bad period cramps. What I'd like to know is,
>should I go through all other tests before I assume it's the adhesions
>or does this sound pretty much like adhesions and then should I request
>another lap? Why would I have the severe pain on my right side if the
>adhesions were found on my left? I was told that the adhesions were from
>my tubal ligation I had done after my 2nd c-section.
>Does anybody have any ideas on what steps I should be taking? I would SO
>much appreciate your time!!! Good health to all and thanks a bunch!
>Deanna
--
I'm no doctor, just a fellow sufferer like you but I hope you consider me a new friend.