Re: bowel adhesions following iliostomy surgery
From: Jeannie Quinn (anniegetyourgun@sympatico.ca)
Fri Feb 28 06:15:41 2003
Hi,
From my personal experience, the more they cut the more adhesians you get.
It is a catch 22, you live with the pain, or take the chance and have
another surgery such as I did to have adhesians cleaned up, and poof a few
months or even less they are back. Surgeons don't recommend surgery for
adhesian removal. I have been opened 22 times, imagine how many adhesians I
have in there, and yes they are painful to the point where I where morphine
patches, and take morphine pills by mouth, it is no laughing matter as I am
sure you have already understood. I feel bad for you just knowing your in
pain because believe me I know what it is, been like this for 10 years.
when will it end..or will it ever
Jeannie
-------Original Message-------
From: adhesions@adhesions.org
Date: Thursday, February 27, 2003 00:38:54
To: Multiple recipients of list ADHESIONS
Subject: Re: bowel adhesions following iliostomy surgery
Take a deep breath... The effects of adhesions tend to either stay the
same or to get worse over time. And surgery doesn't correct adhesions;
surgery gives you new adhesions.
--
There are a handful of surgeons on the whole planet who can surgically
remove adhesions with the meticulous surgical technique which won't do
more damage. They have maybe 60-80% success rates with adhesiolysis.
And there is an adhesion barrier called spray-gel which is not approved
for use in the US which allows the world's best surgeons to get success
rates more like 95-99%. Somewhere between 10 and 20 of the members of
this board (I've lost count) have travelled to Germany, or live in the
UK or in Australia, and they have had adhesiolysis surgery with the best
surgeons using spray-gel and they have ended up adhesion free. On the
one hand the members of this board are NOT a properly constructed
scientific sample. So the percent of failures and successes from this
group is not a particularly good prediction for the whole population of
the world as a whole. On the other hand, those 10-20 people have had a
100% success rate in becoming adhesion free. So no matter what the
actual odds turn out to be, I can tell you that this is the first thing
out there that has odds that are truly excellent.
That said, I want to come back to my earlier point... Your question was
phrased as "do they require surgery to correct?" Other people have said
things like, "the adhesion pain is so bad that I need to have surgery."
Or "I can't stand it I'm just going to have to give in and have another
surgery." Folks say things like this because they don't know the
fundamental truth of adhesions... People with adhesions are frequently
mislead. They are lead to believe that they have two choices -- they
can live with the effects of adhesions or they can take the risks of
surgery and get rid of the adhesions. The truth is a far bleaker thing:
adhesions are THE main risk of surgery. Your choice (unless you go to
one of the few specialists out there who knows what he is doing) is
between living with the effects of adhesions or having surgery and
having to live with far worse effects from adhesions. Or dying from the
adhesions.
At Wed, 26 Feb 2003, Phil Bryce wrote:
>
>I had a portion of my colon removed (cancer), and they created an
>iliostomy. Six times in the two months since the surgery, I have had
>what appeared to be a plugged ostomy (no output). The last time it
>happened, they took x-rays and said that there may be adhesions in the
>bowel. Do these bowel adhesions mitigate themselves or improve with
>time? Or do they require surgery to correct?
>
>thanks,
>Phil Bryce
--
cathy :-)
.