Re: Thank god I found all of you

From: Carolyn J Meadows (lilly-lady@insightbb.com)
Thu Mar 6 16:03:55 2003


>----- Original Message -----
From: "Carolyn J Meadows" <lilly-lady@insightbb.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Thursday, March 06, 2003 5:38 PM Subject: Re: Thank god I found all of you

>

>> ----- Original Message -----
> From: "Meg Rose" <mrose64@attbi.com>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Thursday, March 06, 2003 3:49 PM
> Subject: Thank god I found all of you
>
> > I thought I was alone..crazy..I could list so many and I stumbled onto
> > this and cannot believe my eyes.I have noone to talk to about my issues
> > because noone really gets it.I can see I am not alone.What a relief.
> > Maybe someone out in this big cyber-world can tell me I am on the right
> > track.
> > I need to share my history so you will know what has happened to me,as
> > well as it may help to just get some of this off of my shoulders (as I
> > am carrying alot)
> > I will try to be brief so I don't tire you out.
> > I NEED to know I will be o.k.
> > In 1993 I came down with a pain under my belly button in March on a
> > blustery Tuesday a.m.I took mylanta with no relief.I was not miserable
> > but as time went on I was not having fun.I waited until Thurs.to go to
> > an urgent care clinic as we had just relocated and did not have a dr.
> > yet.The dr. gave me a mixture to drink and thought it may be an
> > ulcer.If it wasn't better by the a.m. I was to call.It was not better
> > it was worse so I called and was told to go to the e.r.It was 8a.m.and I
> > went to the nearest e.r.My husband drove me in.At this point I could not
> > stand or walk.I threw-up in the parking lotwhich was unusual because I
> > just don't puke often.The e.r.did some tests (blood...white count a
> > liitle highl,urine...fine etc.)Nothing really.The doc gave me some pain
> > meds and cramping meds and said it was probably the flu and sent me
> > home.By noon I was in tears.My husband picked me up and carried me to
> > the car and back we went to the e.r.This time the doc did no more
> > tests..only an x-ray.He saw a big fluffy white patch on my right and
> > called it a "paucity"of air.He gave me more pain meds and anti-puke meds
> > and instructed my husband to stop on the way home and get some milk of
> > magnesium and a enema for me.I got home and took the m.o.m.and went to
> > the toilet and did the enama.I thought someone had shot me.I landed on
> > the floor and rolled around on the ground.My husband works nights and
> > had been awake for 25 hours so he dosed and was not aware of me rolling
> > around.At 8p.m.I went back to the e.r.This time they did an ultra-sound
> > and found a cyst on my "left" ovary.They prepped me for surgery for
> > 1p.m.At 1p.m. they told me I was bumped till 5p.m.They tried to keep me
> > comfortable with morphine.The surgeon did a little hole to go in and
> > found my appendix had ruptured.4 "s of my bowel had perforated.I was
> > full of feces.She removed part of my bowels and gallbladder.the surgeon
> > told my mom and sis that in her 20 years I was the worst she had ever
> > seen.
> > I stayed for 6 days and sent home.2 weeks later I had severe pain again
> > and they found a pocket infection the had to drain trans-vaginally.That
> > hurt like hell.2 cups of infection came out.And then 2 weeks later I was
> > in severe pain again and the tried to go in my belly-button to remove
> > that cyst on my ovary and they couldn't get in very easily.The surgeon
> > told me it is as if someone opened my abdomen and poured honey in
> > it.Everything was stuck together.I was 99% probability of being
> > sterile.I do have 2 boys and was done having kids but still....
> > I have had bowel trouble and mostly period problems but for the most
> > part I came out of it pretty good.The period problems became worse in
> > 2000.Very painful and never-ending.So I had a complete hysterectomy
> > 5/2002.The OB said I was a mess.My ovaries crumbled.Every one of my
> > organs was adhered to other organs.He had to chisel my uterus and tubes
> > away so he could remove them.He put that sepra film in to prevent
> > further adhesions.In June I came down with really bad buttox pain.My OB
> > said it is common to have it after.My family doc treated it as back
> > pain.I won't go into all those details butI have been in and out of the
> > e.r.I have had injections in my back.CT...MRI...ETC.I kept saying it
> > sure was coincedental this started after surgery.I have been on percocet
> > for pain since June.It helps me so I can work and function.They tried so
> > many anti-depressants.muscle relaxants,NSAIDS,etc.with no relief.I was
> > sent to a pain specialist finally to get help as the percocet wasn't
> > working as well.Of all the dr.'s the pain doc is the one who said it was
> > not my back.He heard me.He listened,spent 2 hours talking to me and then
> > talked to all the other drs.He said it is in my pelvic area.Deep in my
> > butt to the right.He sent me to another OB who I saw yesterday who said
> > he was glad he wasn't the one to do my hysterectomy because it was so
> > difficult(he had the path in front of him).He told me it sounded like
> > ADHESIONS!!!!!He said they can attach anywhere and strangle your nerve
> > endings.They can attach to your spine.They wrap around anything.Is this
> > true??He told me surgery in my case is not an option as it can create
> > more.He said it is going to be tough to try and find the exact area.He
> > said they may not.WHAT...DID I HEAR YOU RIGHT???
> > Can this go on forever???Can they really not find the source of this
> > unbearable pain???This is ruining my life.It is putting my job in
> > jeopardy.My familt is suffering along with me.I am now on 75 mg.
> > duagesic patch which helps but I still need my percocet every 4 hours.I
> > am depressed yet awake all night from the pain.I have meds that help for
> > 3-4 nights and then stop (Trazadone)helping me sleep.How many more days
> > do I have to take all this med?Please tell me this will get better.I am
> > not a very good patient.I am so tired of drs.,meds and being a guinea
> > pig.I am scared that my meds will stop helping completely.How do you
> > live with chronic pain??How do you take a vacation from yourself??How do
> > you want to keep living??HELP PLEASE.
> > Thankyou in advance
> >
>


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