Re: Adhesions and depression

From: Jenny (jenklow@hotmail.com)
Thu Mar 27 22:52:46 2003


Dear Robin,

I know there are some good doctors out there somewhere. Where they are is a mystery though, cause I surely can't seem to find them. My family and I are working on some ways to raise money so I can go to Germany. Bev gave me some good ideas. (Thanks Bev!) So we are working on them already. If I can get my surgery in Germany done, I am going to do whatever it takes to help others do the same, even if it is typing letters. If there is a will, there is a way. And I am determined! A woman on a mission! Look out! Here I come! I will not give up! Thanks so much for your encouragement.

Love and hugs, Jenny

At Thu, 27 Mar 2003, Robin M wrote: >
>Dear Jenny,
>I have seen so many DRs over the years. I have been told it is all in
>my head, I had IBS, I am a woman and women have pain. One of the 3 DRs
>I saw at my clinic actually told me I was addicted to the pain meds and
>needed to go to detox! I always heard, oh good, your on anti
>depressants, that should help with your pain. I was also sent to a
>psychiatrist and councelor. The psychiatrist had been a surgeon before
>and knew about adhesions. It did help me alot to be able to talk to
>someone. I have undergone every test there is, just proving to the DRs
>that I was in pain. My "new" DR (been seeing her for about 4 years) the
>first time she saw me after being told I needed to go to detox because I
>was addicted to the pain meds, increased my pain meds! She has been
>wonderful! Keeping me as pain free as possible. I am trying to raise
>money to return to DR Korell in Duisburg, Germany. He uses the Spray
>Gel. I went to him in Nov 2000 when he was using Intergel. at my 2nd
>look lap, I had 50% reformation and came home knowing I would have
>15-30% reform. I believe he is my only hope of becoming adhesion pain
>free, being able to live again. I keep working with different DRs &
>surgeons to help talk my insurance co. into covering a surgery with DR
>Korell. Since the Spray Gel is not FDA approved, they don't want to
>cover it, but we are trying to get them to approve it on a humanaterian
>reason. I am disabled, with out being able to collect SSI/SSD.
>I wish you luck, don't give up!
>robin M
>
>At Wed, 26 Mar 2003, Jenny wrote:
>>
>>Hi everyone,
>>
>>It's been a few weeks since I posted last due to pain level. I went and
>>saw a surgeon today who I saw about a month ago. He wanted to review my
>>records and decide what he thought needed to be done. After seeing him
>>today, I am totally frustrated! I have seen several doctors over the
>>last year and a half trying to get all this mess with my body handled.
>>Every time I see a new doctor, I tell them what I already know, that I
>>have adhesions, bladder problems, and an ovary that has grown back which
>>is producing cysts, along with a few other things. And every one of
>>them runs a few new tests, examines me, and reviews my records. Then
>>they tell me what they found which is exactly what I came in there
>>telling them. Has anyone else had this problem? My gosh! I think I know
>>what is going on in my own body! All I get back from them is what I
>>already know and have already told them that I had wrong with me! I want
>>to scream! Then today, the surgeon told me that he thought that I needed
>>to talk to a psychologist about the stress in my life. He said that I
>>am spending all my efforts on what is wrong with me. Now, to me, if
>>there is something wrong with your body you need to educate yourself and
>>work on getting that problem fixed. He said that stress can make you
>>either have chest pains or abdominal pains. Has anyone ever heard this
>>before? I realize that people can have digestive problems due to stress,
>>but just a general "abdominal pains"? I told him that my only problem is
>>that I can't find a doctor who will treat me humanely and, of course I
>>am under stress because I can't take care of my family the way I want to
>>or find a doctor who will take care of the problem. He said that he has
>>operated on many people and they all have adhesions, but adhesions do
>>not particularly cause pain and it is probably something other than
>>adhesions causing me pain. Then he again told me he felt like I should
>>go talk to this psychologist who could help me manage the stress and
>>that should help my pain. I told him that I have been on several
>>different anti-depressants through my pain management doctor and all
>>they did was make me gain weight. He said he wasn't talking about
>>anti-depressants. Anyway, he also kept asking me if I had tried taking
>>other non-narcotic medications to manage the pain. I was so glad that
>>my husband was with me. We went through everything that we have tried
>>for pain management: Ultram, Toradol, tens units, deep pelvic massage,
>>accupressure, hot-tub, and nothing worked except the narcotics. I guess
>>he thinks I am in this for the drugs. I don't know! Anyway, I was
>>talking to my husband on the way home. I told him I wondered how many
>>other women and men who have adhesions have been told they need to talk
>>to a psychologist. Has anyone else had this happen to them? I do admit
>>that I get depressed from time to time, but I am not depressed all the
>>time. I know when I am and I tell my husband. It is usually when I am
>>hurting really bad and feel helpless as to when and where I can get help
>>or when will this ever end. I think most of you can relate to these
>>feelings. After today, I realized that I will do whatever it takes to
>>get to Germany. I do not want to see another doctor here with exception
>>of my pain management doctor until I can have surgery in Germany and be
>>pain free. I know this is long. I am sorry for that. I just needed to
>>vent to my friends here who know what I am talking about and can relate
>>to how I feel. I am so sick of being treated like an ignorant person
>>who has symptoms due to stress, just wants pain medicine, or pain that
>>is all in their head. Has anyone else experienced these things?
>>
>>Before Tonya left to go to Germany, I talked to her on the phone. She
>>was talking about raising money for each of us to go to Germany to have
>>surgery. I would love to be able to do that! maybe we can all get
>>together and find a way we can do this! That would be great!
>>
>>Anyway, I need to get off here. I hope you are all pain free.
>>
>>Love and hugs,
>>Jenny


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