At Wed, 26 Mar 2003, Jenny wrote:
>
>Hi everyone,
>
>It's been a few weeks since I posted last due to pain level. I went and
>saw a surgeon today who I saw about a month ago. He wanted to review my
>records and decide what he thought needed to be done. After seeing him
>today, I am totally frustrated! I have seen several doctors over the
>last year and a half trying to get all this mess with my body handled.
>Every time I see a new doctor, I tell them what I already know, that I
>have adhesions, bladder problems, and an ovary that has grown back which
>is producing cysts, along with a few other things. And every one of
>them runs a few new tests, examines me, and reviews my records. Then
>they tell me what they found which is exactly what I came in there
>telling them. Has anyone else had this problem? My gosh! I think I know
>what is going on in my own body! All I get back from them is what I
>already know and have already told them that I had wrong with me! I want
>to scream! Then today, the surgeon told me that he thought that I needed
>to talk to a psychologist about the stress in my life. He said that I
>am spending all my efforts on what is wrong with me. Now, to me, if
>there is something wrong with your body you need to educate yourself and
>work on getting that problem fixed. He said that stress can make you
>either have chest pains or abdominal pains. Has anyone ever heard this
>before? I realize that people can have digestive problems due to stress,
>but just a general "abdominal pains"? I told him that my only problem is
>that I can't find a doctor who will treat me humanely and, of course I
>am under stress because I can't take care of my family the way I want to
>or find a doctor who will take care of the problem. He said that he has
>operated on many people and they all have adhesions, but adhesions do
>not particularly cause pain and it is probably something other than
>adhesions causing me pain. Then he again told me he felt like I should
>go talk to this psychologist who could help me manage the stress and
>that should help my pain. I told him that I have been on several
>different anti-depressants through my pain management doctor and all
>they did was make me gain weight. He said he wasn't talking about
>anti-depressants. Anyway, he also kept asking me if I had tried taking
>other non-narcotic medications to manage the pain. I was so glad that
>my husband was with me. We went through everything that we have tried
>for pain management: Ultram, Toradol, tens units, deep pelvic massage,
>accupressure, hot-tub, and nothing worked except the narcotics. I guess
>he thinks I am in this for the drugs. I don't know! Anyway, I was
>talking to my husband on the way home. I told him I wondered how many
>other women and men who have adhesions have been told they need to talk
>to a psychologist. Has anyone else had this happen to them? I do admit
>that I get depressed from time to time, but I am not depressed all the
>time. I know when I am and I tell my husband. It is usually when I am
>hurting really bad and feel helpless as to when and where I can get help
>or when will this ever end. I think most of you can relate to these
>feelings. After today, I realized that I will do whatever it takes to
>get to Germany. I do not want to see another doctor here with exception
>of my pain management doctor until I can have surgery in Germany and be
>pain free. I know this is long. I am sorry for that. I just needed to
>vent to my friends here who know what I am talking about and can relate
>to how I feel. I am so sick of being treated like an ignorant person
>who has symptoms due to stress, just wants pain medicine, or pain that
>is all in their head. Has anyone else experienced these things?
>
>Before Tonya left to go to Germany, I talked to her on the phone. She
>was talking about raising money for each of us to go to Germany to have
>surgery. I would love to be able to do that! maybe we can all get
>together and find a way we can do this! That would be great!
>
>Anyway, I need to get off here. I hope you are all pain free.
>
>Love and hugs,
>Jenny