At Sun, 27 Apr 2003, Nina wrote:
>
>Please, please do not give up hope! Somewhere out there is the answer. I
>have been working and researching a personal theory of mine. Again, new
>kid so very optimistic. Seems to me like none of us have adhesions as
>our only problems. I have come up with a way to try and be proactive
>with my problems. In researching I have realized that every single one
>of my health problems since childhood (celiac sprue, asthma, oral
>allergy syndrome, surgical removal of kidney stones due to urethral
>collapse, abdominal adhesions) ALL have some sort of inflammatory
>response involved. It's as if my body just goes into inflammatory
>overdrive. Waiting to surgically remove the next batch is too late, I
>want to prevent it from growing in the first place. Taking painkillers
>only masks the problems (yes, I hate to inform you but most opiates do
>not contain anti-inflammatory agents). What I am going to try and do is
>attack my system on multiple fronts, in a way forcing it to "chill out".
>I have discussed this with several MD's (actual MD's, not homeopaths)
>that all agree that it certainly can't hurt anything, as the method I am
>using is diet based and w/ natural supplements. Their only concern
>being slightly lowered immunity or decreased healing ability if it
>works. I have created data charts to track symptoms, and will be 12
>weeks on the intervention, 12 weeks off, then 12 weeks on again to
>establish a pattern.
>
>I am not a doctor, but I am a Registered Dietitian. We are the experts
>in the field of nutrition. Now wouldn't it be a bizarre twist if this
>theory actually works?
>
>If you are interested in anymore info you can email me at
>jeanninemonfre@yahoo.com
>
>Otherwise I will assume I am driving you all buggy with my happy little
>dreams.
>
>--
>Nina
>
>At Sun, 27 Apr 2003, Koolinsask@aol.com wrote:
>>
>>Hi all, it's Cherryl here, listen, I am hoping someone can help me out
>>somewhat. I have a doctor's app't tomorrow morning. I have so much going on
>>with me, and have found that my doctor almost seems to have given up on me. I
>>am living with constant pain, not only endo pain, adhesion pain, bowel
>>trouble, but, fibromyalgia as well, beginning stages of arthritis, and osteo
>>arthritis. All he seems to say is excercise more, and anti depressants. Now,
>>I need to go in there tomorrow, and try to get it across to him, that I need
>>to have some quality of life here, i am 34 with one very active 8yr old
>>child. He doesn't want me taking anymore pain killers, and frankly, i am not
>>doing well at all without them, i can't do what i can do when i take them,
>>all i have been doing is pushing, so hard, then dying at night with pain,
>>headaches and such terrible stiffness. At least when i take the meds, i am
>>capable of so much more, without feeling the full effects of pain. It never
>>takes it away totally, but it does help. He at one point offered me a
>>stronger pain med, and it knocked me out, i have been fine taking the tylenol
>>3's, but he does't want me taking those, or any other's any longer! I have
>>had 9 surgeries all of which were laps, for endo, and ruptured ovarian cysts
>>etc......my bowel since my last surgery in Aug is a literal mess now, and
>>right at present moment I have such terrible abd, pain, that i feel at times,
>>i may pass out! Someone please try to help explain to me, how to talk to him
>>in a manner that will get across to him......he always tells me how strong i
>>am, and how i can handle this, well the truth is, i can't anymore, and i am
>>so tired.....and so weak, and have lost too much weight,a nd all i hear is
>>how terrible i look, how thin i am, i am worried as well, but i feel so lost,
>>and so very alone. I am tired of feeling like a walking disease, and people
>>thinking i am a nut case..........
>>
>>Thank you all so much
>>Cherryl
>