To Robin
From: Nina (jeanninemonfre@yahoo.com)
Mon Apr 28 09:49:24 2003
Thank you so much for your support. Now I am off to be a human guinea
pig ;)
--
Nina
At Mon, 28 Apr 2003, Robin M wrote:
>
>Dear Nina,
>Something like you are trying is not out of the question. I think, most
>things are worth a try, especially if it is not surgery. I have tried
>just about everything there is to try. If I did not have a surgery date
>with DR Korell in Germany, I would cut off my arm if I thought it would
>help.
>If what you try helps you, it might help someone else. If it ends up
>not helping, then that is one less thing that someone else need to try.
>I DO wish you luck with it.
>robin M
>
>At Sun, 27 Apr 2003, Nina wrote:
>>
>>Please, please do not give up hope! Somewhere out there is the answer. I
>>have been working and researching a personal theory of mine. Again, new
>>kid so very optimistic. Seems to me like none of us have adhesions as
>>our only problems. I have come up with a way to try and be proactive
>>with my problems. In researching I have realized that every single one
>>of my health problems since childhood (celiac sprue, asthma, oral
>>allergy syndrome, surgical removal of kidney stones due to urethral
>>collapse, abdominal adhesions) ALL have some sort of inflammatory
>>response involved. It's as if my body just goes into inflammatory
>>overdrive. Waiting to surgically remove the next batch is too late, I
>>want to prevent it from growing in the first place. Taking painkillers
>>only masks the problems (yes, I hate to inform you but most opiates do
>>not contain anti-inflammatory agents). What I am going to try and do is
>>attack my system on multiple fronts, in a way forcing it to "chill out".
>>I have discussed this with several MD's (actual MD's, not homeopaths)
>>that all agree that it certainly can't hurt anything, as the method I am
>>using is diet based and w/ natural supplements. Their only concern
>>being slightly lowered immunity or decreased healing ability if it
>>works. I have created data charts to track symptoms, and will be 12
>>weeks on the intervention, 12 weeks off, then 12 weeks on again to
>>establish a pattern.
>>
>>I am not a doctor, but I am a Registered Dietitian. We are the experts
>>in the field of nutrition. Now wouldn't it be a bizarre twist if this
>>theory actually works?
>>
>>If you are interested in anymore info you can email me at
>>jeanninemonfre@yahoo.com
>>
>>Otherwise I will assume I am driving you all buggy with my happy little
>>dreams.
>>
>>--
>>Nina
>>
>>At Sun, 27 Apr 2003, Koolinsask@aol.com wrote:
>>>
>>>Hi all, it's Cherryl here, listen, I am hoping someone can help me out
>>>somewhat. I have a doctor's app't tomorrow morning. I have so much going on
>>>with me, and have found that my doctor almost seems to have given up on me. I
>>>am living with constant pain, not only endo pain, adhesion pain, bowel
>>>trouble, but, fibromyalgia as well, beginning stages of arthritis, and osteo
>>>arthritis. All he seems to say is excercise more, and anti depressants. Now,
>>>I need to go in there tomorrow, and try to get it across to him, that I need
>>>to have some quality of life here, i am 34 with one very active 8yr old
>>>child. He doesn't want me taking anymore pain killers, and frankly, i am not
>>>doing well at all without them, i can't do what i can do when i take them,
>>>all i have been doing is pushing, so hard, then dying at night with pain,
>>>headaches and such terrible stiffness. At least when i take the meds, i am
>>>capable of so much more, without feeling the full effects of pain. It never
>>>takes it away totally, but it does help. He at one point offered me a
>>>stronger pain med, and it knocked me out, i have been fine taking the tylenol
>>>3's, but he does't want me taking those, or any other's any longer! I have
>>>had 9 surgeries all of which were laps, for endo, and ruptured ovarian cysts
>>>etc......my bowel since my last surgery in Aug is a literal mess now, and
>>>right at present moment I have such terrible abd, pain, that i feel at times,
>>>i may pass out! Someone please try to help explain to me, how to talk to him
>>>in a manner that will get across to him......he always tells me how strong i
>>>am, and how i can handle this, well the truth is, i can't anymore, and i am
>>>so tired.....and so weak, and have lost too much weight,a nd all i hear is
>>>how terrible i look, how thin i am, i am worried as well, but i feel so lost,
>>>and so very alone. I am tired of feeling like a walking disease, and people
>>>thinking i am a nut case..........
>>>
>>>Thank you all so much
>>>Cherryl
>>
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