Re: Digestive Problems, Headaches & Leg Pain

From: Caryn (cdir@optonline.net)
Fri May 16 11:11:20 2003


Hi Tammy, -- I just wrote you an email. Thanks again for your warm welcome. I'm so happy I found this forum! Caryn

At Fri, 16 May 2003, Tammy wrote: >
>Hi Caryn, Just want you to know that you have found a wonderful support
>system in the Adhesions site. I have been coming here for almost 2
>years and have made a lot of friends that help support me when I am in
>pain, down, frustrated and even when I have been teetering on the edge.
>So I am so glad that you made your way here. I am not sure what a mayo
>is or a c/s, maybe you can elaborate a little on those?
>I had an operation when I was 15, I am now 33. During the operation in
>'85' 1/3 of my uterus was removed in order to save my life. They told
>me I might not be able to have children. But I did, I had 3 kids all by
>C-Section. With each one the scar tissue inside got worse and worse, by
>2000 I had to have a mandatory hysterectomy. It was bad inside, real
>bad. After the operation I got a mass of scar tissue back right away
>and it is continually getting worse. I am in a lot of pain have bad
>episodes, and have been put on disability by my work place and by the
>state of Washington. The scar tissue is adhered to my abdominal walls,
>my bladder and every thing it can get a hold of. So far nothing has
>been life threatening and I can't find a surgeon to help me, they all
>think by doing another operation they will only make a bad thing worse.
>Hope has it that the FDA is soon to approve a product that is being used
>in Germany. The product is called SprayGel, with it the Dr.s can open
>up the patient, remove the scar tissue, spray the gel to coat the
>incision marks and then the scar tissue doesn't come back, the gel
>dissolves in about 2 weeks after the site has had a good chance to heal.
>There are so many of us that are waiting for this product to be
>approved.
>What are you adhesions like and how long have you had them, do you even
>feel like the pain is in your head? Well I am here to confirm that it is
>real, I use to think I was crazy, that this couldn't really be happening
>to me. It took a couple of Dr.s that really understood (thank God for
>them) to explain it to me, then I found this site and found out that
>there were others out there suffering just like me, their symptoms all
>rang home with me, then I began to understand and I was then devastated,
>became very depressed. The Adhesions site helped me to cope, I started
>seeing a pain counselor who also helped me to cope and deal with
>reality. I still get overwhelmed sometimes and whine that I don't want
>to be like this anymore. I feel like to be like this just one more day
>is to feel like this forever. That is about where I am right now, tired
>of the pain and frustrated that this is me for the rest of my life. I
>try to remind myself that I don't have to be like this forever, but it
>is hard sometimes.
>Well I have to go for now, but I hope that we can be friends write back
>and let me know how you feeling. I am here for you if you want me to
>be.
>God Bless,
>Tammy Lynn
>At Fri, 16 May 2003, Caryn wrote:
>>
>>I'm glad I found this forum. I have had 2 myos and 1 c/s in the past 7
>>years. During my last myo, my ob/gyn mentioned that I had lots of
>>adhesions. He said that he would have to do surgery in about 4-5 years
>>to remove it. Anyhow, he did have me sign a consent for a hysterectomy
>>but didn't do it so I was happy.
>>
>>I do feel the adhesions and you mentioned leg cramps. I've been feeling
>>that lately. In fact, I had a charlie horse the other morning, and I
>>haven't had one since before my pelvic tumor was removed last August. I
>>feel the adhesions in my belly and surrounding areas and also in the
>>bladder in the morning. It hurts somewhat when I urinate first time in
>>the mroning. My belly looks as though I am about 2 mos pregnant but I
>>am very thin to begin with that is why I noticed this.
>>
>>I look forward to participating on this forum. Caryn
>>
>>At Thu, 15 May 2003, Tammy wrote:
>>>
>>>Hi again, I was wonder what, if any digestive problems anyone is having
>>>that are associated with or related to abdominal adhesions. I seem to
>>>have one thing after another happening to me.
>>>Also, I have recently gone through a really bad bout with a horrendious
>>>headaches that caused vomiting. It lasted about 3 weeks, felt like a
>>>spinal headache except no relief could be found and caused me to be
>>>hospitalized. I did have my head thoughouly examined and there was
>>>nothing. They put me in a head traction to open and relax the
>>>indentations in the back of my head where it joins my neck. well those
>>>are subsiding now, but I am just wondering what's next?
>>>OK, one more.....LEGS....does anyone feel pain in their legs from the
>>>adhesions affecting the nerves and blood vessels in the pelvic where the
>>>legs join in? I have pain that sits in my pelvic and runs down into the
>>>crook of my legs, it then spreads down my inner thigh towards my knee.
>>>It use to do this mostly in my right leg now it has begun to do the same
>>>thing in the left one. I am scared that even if they can clean up the
>>>scar tissue, will they be able to repair the damage in my legs?
>>>Well those are my thoughts for now, I am going to go look at and respond
>>>to some of the other messages on the board.
>>>Hoping the Best for All,
>>>God Bless,
>>>Tammy Lynn


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