At Sat, 17 May 2003, Caryn wrote:
>
>Hi Nancy,
>
>Thanks for getting back to me. I'm glad that the hysterectomy helped
>you in that sense that you aren't in that much pain anymore. As of now,
>I have pain but not deliberating yet. I just had my last surgery in
>8/02 so we shall see what happens. How will you take that spray when it
>is introduced here? DOn't they have to perform some type of surgery for
>you?
>
>Thanks for getting back to me. Looking forward to hearing from you
>again.
>
>--
>Caryn
>
>At Sat, 17 May 2003, Nancy wrote:
>>
>>Hi Caryn: I had a hysterectomy as a last resort because of the pain
>>caused by the adhesions. Apparently my body likes to make a lot of
>>them. They started because of endometriosis, but by the time I
>>approached the 3rd surgery, it wasn't cyclical anymore. The endo
>>lesions didn't come back, but the adhesions kept coming back. The pain
>>I was describing in my post was debilitating. I spent about a year on
>>vicodin. I had surgeries with a regular GYN and then a endoscopic
>>specialist who was sure he was going to solve my problems. I kept
>>trying because I wanted to avoid the hysterectomy. When the pain, and
>>digestive troubles, returned after only 3 months, I was advised to have
>>a hysterectomy. While the hysterectomy did not cure me of adhesions,
>>they did come back, it did remove the greatest source of my pain.
>>Apparently my uterus was being pulled toward my colon and the resulting
>>upset caused nerves to be pinched. Once my uterus was gone, my pain did
>>get significantly better. I manage my symptoms now with diet and
>>medication (not pain meds). I find if I can keep the food moving
>>quickly through my digestive system, there is no pressure in my abdomen
>>and the pain is very mild. If I eat the wrong thing, or fail to have a
>>bowel movement each morning, the pressure quickly builds and the pain
>>gets worse. I take a medication called zelnorm which helps food to move
>>quickly through my system. I am managing my symptoms until there are
>>significant improvements in the treatment of adhesions here in the U. S.
>>I am corresponding with one of those Pennsylvania doctors and I think
>>I'll try to go there once that Spray Gel hits the U. S. market. I
>>think I can wait the 2 years that I'm told it will take. As long as it
>>doesn't get any worse.
>>
>>At Fri, 16 May 2003, Caryn wrote:
>>>
>>>Hi Nancy, -- Why did you have to have a hysterectomy? I just joined this
>>>group today. I explained my previous surgeries to Tammy below. Well
>>>looking forward to getting to know you. Caryn
>>>
>>>At Fri, 16 May 2003, Nancy wrote:
>>>>
>>>>I, too, had pain running down my leg on the right side. It caused me to
>>>>walk with a limp. I could feel it all the way down to the bottom of my
>>>>feet. That pain went away after I had a hysterectomy. The explanation
>>>>was that the adhesions were pulling my uterus and a nerve was pinched. I
>>>>tend to believe it because the leg pain hasn't come back.
>>>>
>>>>Good luck! I hate to admit it, but the hysterectomy solved that
>>>>particular problem.
>>>>
>>>>--
>>>>Nancy
>>>>
>>>>At Thu, 15 May 2003, Tammy wrote:
>>>>>
>>>>>Hi again, I was wonder what, if any digestive problems anyone is having
>>>>>that are associated with or related to abdominal adhesions. I seem to
>>>>>have one thing after another happening to me.
>>>>>Also, I have recently gone through a really bad bout with a horrendious
>>>>>headaches that caused vomiting. It lasted about 3 weeks, felt like a
>>>>>spinal headache except no relief could be found and caused me to be
>>>>>hospitalized. I did have my head thoughouly examined and there was
>>>>>nothing. They put me in a head traction to open and relax the
>>>>>indentations in the back of my head where it joins my neck. well those
>>>>>are subsiding now, but I am just wondering what's next?
>>>>>OK, one more.....LEGS....does anyone feel pain in their legs from the
>>>>>adhesions affecting the nerves and blood vessels in the pelvic where the
>>>>>legs join in? I have pain that sits in my pelvic and runs down into the
>>>>>crook of my legs, it then spreads down my inner thigh towards my knee.
>>>>>It use to do this mostly in my right leg now it has begun to do the same
>>>>>thing in the left one. I am scared that even if they can clean up the
>>>>>scar tissue, will they be able to repair the damage in my legs?
>>>>>Well those are my thoughts for now, I am going to go look at and respond
>>>>>to some of the other messages on the board.
>>>>>Hoping the Best for All,
>>>>>God Bless,
>>>>>Tammy Lynn
>>>>