At Thu, 22 May 2003, Kim wrote:
>
>Hi, Kelly! We have 2 kids(ages 2 & 6). I had my tubes tied in January
>this year. So, it is definite that we do not want to have any more
>kids. A Hysterectomy would get rid of the lump on my uterus and it
>would take away some of the pain...I guess...It would take care of the
>horrible monthly cramps and bleeding. My gyn would also remove the
>current adhesions. But my biggest fear is knowing that the adhesions
>will return and do so quickly and possibly be worse than before. Would
>I be better off not doing anything and just letting the adhesions do
>what ever it is that they are going to do? In 1997 I knew of a person
>that was waiting for a kidney translant. They received a call saying a
>donar match was found in another state and would be air lifted to be
>transplanted. Well, when the donar was opened up to have organs
>removed, the doctors found that adhesions had taken over the bladder,
>kidneys, liver, intestines, etc. and all these organs were connected -
>that this "donar" had been living in horrible pain for quite some time
>and didn't know they had adhesions. The only abdominal surgery the
>donar had done was having the appendix removed 20+ years earlier. Did
>you have a medical problem with your uterus, or was your hysterectomy
>done thinking that would take care of the problem? Is your pain worse
>now than before? I'm just beginning to think that I may be better off
>leaving everything as is. I saw posted some where on this site that
>some kind of an oil massage helps - you know anything about this? Kim
>
>At Thu, 22 May 2003, Kelly Marlow wrote:
>>
>>He Kim,
>>
>>I am Kelly and unfortunately I can relate to your pain. I do have a
>>question though. Is there a reason you would not want a hysterectomy? I
>>don't know if you are planning for more children? Believe me I know
>>that a hysterectomy is not the answer. I had mine in 2001 at 31 y/o. I
>>did not get to have any children; but that is ok with me. I just wonder
>>if it would not at least help with all the Cramping and Pain due to your
>>cycle. I know adhesions will just come back...they did with me. I just
>>wonder if a hysterectomy could alleviate some of your pain.
>>
>>Kim I also had severe problems with my bladder. I asked to be
>>catheterized many times just to drain my bladder; then asked if they
>>could leave it in for a while just to give me a break from the pain. I
>>know that is not a long term answer but it kept me sane till I could
>>figure out what to do next. I ended up with a urologist that dilated my
>>urinary tract. This was one of the most painful procedures I had ever
>>had. That was about a year ago and I have not had any problems. Every
>>now and then I feel that burning spasmy feeling and I just use Estridiol
>>cream to make it go away. (For some reason being low in my estrogen
>>really aggravates my urinary tract.)
>>
>>Have you thought of a second opinion? It is not a personality
>>thing...or any thing against you OB/GYN. Sometimes fresh eyes and ears
>>are just what you need to get answers.
>>
>>Take care,
>>Kelly Marlow
>>
>>-----Original Message-----
>>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
>>Of Kim
>>Sent: Thursday, May 22, 2003 2:02 PM
>>To: Multiple recipients of list ADHESIONS
>>Subject: Adhesions: surgery or not to have surgery
>>
>>In 1996 I had a c-section. In 2000 during my 2nd c-section, my ob/gyn
>>came upon the problem of my bladder and uterus being completely
>>attached. During pregnancy it is common that the bladder is sensitive
>>as the uterus presses upon it and makes urination (or the need to)
>>uncomfortable. Since the 2nd c-section, I began having abdominal pain
>>and the pain in my bladder has worsened. It hurts to even have our
>>children sit on my lap. During 2002, my monthly cycles began to be
>>extremely heavy, painful and would last 7-14 days. I figured this is
>>what happens once you get closer to age 40. In late December 2002 I had
>>abdominal pain that was worse than normal and went to my gyn. She did
>>an exterior and interior ultrasould and could not locate my ovaries. We
>>opted to do a diagnostic lapraoscopy. She was able to take pictures of
>>adhesions attaching my uterus and bladder together and attaching to the
>>interior body cavity wall. Now, I understand that adhesions are just
>>something you have to accept as a reaction to abdominal surgery, but
>>these adhesions are causing horrible pain. My periods are unbelieveably
>>heavy and painful. I have horrible cramps two weeks before my period
>>and just starting with my last cycle the cramps have continued even
>>after. I have chronic menstral cramps and back cramps, my bladder is so
>>sensitive that I can have just the tiniest amount of urine in my bladder
>>and it will feel to me like my bladder is 100% full. I am also having
>>pain after eating. Not in my stomach, but intestines. From everything
>>I have read and researched, there is nothing to do about adhesions.
>>They
>>can be un-attached or removed, but they come right back - sometimes
>>worse than before. My gyn, during the laprascopy, found an unknown lump
>>in the outer lining of my uterus. We have discussed a hystorectomy, but
>>now I'm not so sure if having a hystorectomy will solve the adhesion
>>problem. How can I get unlimited information on my options? I need some
>>past and current experience stories from those of you that post here.
>>I'm nausiated all the time, cramping all the time, my lower back hurts
>>all the time. CAN anything be done? Is there a "magical" pill?