At Thu, 22 May 2003, Kelly Marlow wrote:
>
>He Kim,
>
>I am Kelly and unfortunately I can relate to your pain. I do have a
>question though. Is there a reason you would not want a hysterectomy? I
>don't know if you are planning for more children? Believe me I know
>that a hysterectomy is not the answer. I had mine in 2001 at 31 y/o. I
>did not get to have any children; but that is ok with me. I just wonder
>if it would not at least help with all the Cramping and Pain due to your
>cycle. I know adhesions will just come back...they did with me. I just
>wonder if a hysterectomy could alleviate some of your pain.
>
>Kim I also had severe problems with my bladder. I asked to be
>catheterized many times just to drain my bladder; then asked if they
>could leave it in for a while just to give me a break from the pain. I
>know that is not a long term answer but it kept me sane till I could
>figure out what to do next. I ended up with a urologist that dilated my
>urinary tract. This was one of the most painful procedures I had ever
>had. That was about a year ago and I have not had any problems. Every
>now and then I feel that burning spasmy feeling and I just use Estridiol
>cream to make it go away. (For some reason being low in my estrogen
>really aggravates my urinary tract.)
>
>Have you thought of a second opinion? It is not a personality
>thing...or any thing against you OB/GYN. Sometimes fresh eyes and ears
>are just what you need to get answers.
>
>Take care,
>Kelly Marlow
>
>-----Original Message-----
>From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
>Of Kim
>Sent: Thursday, May 22, 2003 2:02 PM
>To: Multiple recipients of list ADHESIONS
>Subject: Adhesions: surgery or not to have surgery
>
>In 1996 I had a c-section. In 2000 during my 2nd c-section, my ob/gyn
>came upon the problem of my bladder and uterus being completely
>attached. During pregnancy it is common that the bladder is sensitive
>as the uterus presses upon it and makes urination (or the need to)
>uncomfortable. Since the 2nd c-section, I began having abdominal pain
>and the pain in my bladder has worsened. It hurts to even have our
>children sit on my lap. During 2002, my monthly cycles began to be
>extremely heavy, painful and would last 7-14 days. I figured this is
>what happens once you get closer to age 40. In late December 2002 I had
>abdominal pain that was worse than normal and went to my gyn. She did
>an exterior and interior ultrasould and could not locate my ovaries. We
>opted to do a diagnostic lapraoscopy. She was able to take pictures of
>adhesions attaching my uterus and bladder together and attaching to the
>interior body cavity wall. Now, I understand that adhesions are just
>something you have to accept as a reaction to abdominal surgery, but
>these adhesions are causing horrible pain. My periods are unbelieveably
>heavy and painful. I have horrible cramps two weeks before my period
>and just starting with my last cycle the cramps have continued even
>after. I have chronic menstral cramps and back cramps, my bladder is so
>sensitive that I can have just the tiniest amount of urine in my bladder
>and it will feel to me like my bladder is 100% full. I am also having
>pain after eating. Not in my stomach, but intestines. From everything
>I have read and researched, there is nothing to do about adhesions.
>They
>can be un-attached or removed, but they come right back - sometimes
>worse than before. My gyn, during the laprascopy, found an unknown lump
>in the outer lining of my uterus. We have discussed a hystorectomy, but
>now I'm not so sure if having a hystorectomy will solve the adhesion
>problem. How can I get unlimited information on my options? I need some
>past and current experience stories from those of you that post here.
>I'm nausiated all the time, cramping all the time, my lower back hurts
>all the time. CAN anything be done? Is there a "magical" pill?