For all that it is worth I had a hysterectomy at age 27 for adnomyosis and endometriosis and had 3 years pain free before the adhesions returned with a vengeance! A step at a time I guess.
Heather
>----- Original Message -----
From: "Kelly Marlow" <kelly@uagonline.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Thursday, May 22, 2003 4:47 PM
Subject: Re: Adhesions: surgery or not to have surgery
> He Kim,
>
> I am Kelly and unfortunately I can relate to your pain. I do have a
> question though. Is there a reason you would not want a hysterectomy? I
> don't know if you are planning for more children? Believe me I know
> that a hysterectomy is not the answer. I had mine in 2001 at 31 y/o. I
> did not get to have any children; but that is ok with me. I just wonder
> if it would not at least help with all the Cramping and Pain due to your
> cycle. I know adhesions will just come back...they did with me. I just
> wonder if a hysterectomy could alleviate some of your pain.
>
> Kim I also had severe problems with my bladder. I asked to be
> catheterized many times just to drain my bladder; then asked if they
> could leave it in for a while just to give me a break from the pain. I
> know that is not a long term answer but it kept me sane till I could
> figure out what to do next. I ended up with a urologist that dilated my
> urinary tract. This was one of the most painful procedures I had ever
> had. That was about a year ago and I have not had any problems. Every
> now and then I feel that burning spasmy feeling and I just use Estridiol
> cream to make it go away. (For some reason being low in my estrogen
> really aggravates my urinary tract.)
>
> Have you thought of a second opinion? It is not a personality
> thing...or any thing against you OB/GYN. Sometimes fresh eyes and ears
> are just what you need to get answers.
>
> Take care,
> Kelly Marlow
>
> -----Original Message-----
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
> Of Kim
> Sent: Thursday, May 22, 2003 2:02 PM
> To: Multiple recipients of list ADHESIONS
> Subject: Adhesions: surgery or not to have surgery
>
> In 1996 I had a c-section. In 2000 during my 2nd c-section, my ob/gyn
> came upon the problem of my bladder and uterus being completely
> attached. During pregnancy it is common that the bladder is sensitive
> as the uterus presses upon it and makes urination (or the need to)
> uncomfortable. Since the 2nd c-section, I began having abdominal pain
> and the pain in my bladder has worsened. It hurts to even have our
> children sit on my lap. During 2002, my monthly cycles began to be
> extremely heavy, painful and would last 7-14 days. I figured this is
> what happens once you get closer to age 40. In late December 2002 I had
> abdominal pain that was worse than normal and went to my gyn. She did
> an exterior and interior ultrasould and could not locate my ovaries. We
> opted to do a diagnostic lapraoscopy. She was able to take pictures of
> adhesions attaching my uterus and bladder together and attaching to the
> interior body cavity wall. Now, I understand that adhesions are just
> something you have to accept as a reaction to abdominal surgery, but
> these adhesions are causing horrible pain. My periods are unbelieveably
> heavy and painful. I have horrible cramps two weeks before my period
> and just starting with my last cycle the cramps have continued even
> after. I have chronic menstral cramps and back cramps, my bladder is so
> sensitive that I can have just the tiniest amount of urine in my bladder
> and it will feel to me like my bladder is 100% full. I am also having
> pain after eating. Not in my stomach, but intestines. From everything
> I have read and researched, there is nothing to do about adhesions.
> They
> can be un-attached or removed, but they come right back - sometimes
> worse than before. My gyn, during the laprascopy, found an unknown lump
> in the outer lining of my uterus. We have discussed a hystorectomy, but
> now I'm not so sure if having a hystorectomy will solve the adhesion
> problem. How can I get unlimited information on my options? I need some
> past and current experience stories from those of you that post here.
> I'm nausiated all the time, cramping all the time, my lower back hurts
> all the time. CAN anything be done? Is there a "magical" pill?
>