Sherry,
There is nothing wrong with posting your true feelings! But likewise,
so will we..........
I am still wondering WHO your surgeon was and was sure hoping you would
share the info,
as we all agree there are many that cannot go to Germany.
The reason I gave up on doctors in the US was 13 plus years is a LONG
time to try to
find help for my very, very, ill daughter. First off, I had to figure out
what her problem was all
by myself after YEARS of dragging her in and out of doctor's offices.....and
they were all telling me
"It's Crohn's--take prednisone"..........."It's spastic colon--you need to
relax, girl".........."It's
IBS---eats lots of fiber"........"It's YOU--get on an antidepressant".......
...and......"It could be
Lupus--but that is hard to diagnose"..........."It is your MOM---you BOTH
need an antidepressant",
"You are a depressed young woman--have you been abused??".............."You
don't look sick--
only depressed, what is going on at home??--can I talk to your daughter
alone?" (she was 13
at the time)..............and mind you ALL of this HELP came from top doc's
in the good old USA..............honestly, after all we went through, I
shake in fear at the thought of any of my family becoming ill......
When I finally decided what I thought was going on and found a doctor that
treated endometriosis, I thought our nightmare was ending.......he was the
KINDEST man we had come across in all those years and in fact said, "I
apologize to you for what you have been through---I see women like you
everyday---they all diagnose themselves after years of misery"..............
.then he does surgery and she doesn't get better..........in fact, worse....
so he says she must start Lupron shots.........Melissa decided to "listen to
the doctor", much to my angst.........within days her everyday headaches
turned into horrible banging migraines.......he insisted it wasn't the
Lupron and if it was, the headaches would lessen as "she adjusted to the
Lupron"................we went to the next visit and Melissa told him she
didn't want to take the Lupron any longer, as she and I decided it was NOT
the medication for her...........the next day he called Melissa's cell phone
and told her not to bring her mom with her on her next office visit
...............little did he know we had already decided to find another doc
..........then came the "best of the best surgeon".........in addition to
this great surgeon, I paid (up front) for a bowel specialist....and ended up
having to beg to meet him--------up until minutes prior to surgery.......(I
knew her bowel HAD to be involved with adhesions).................well......
....didn't get to meet him, so I waited by the surgery room doors and I was
told twice by the 'wonderful nurses' I needed to "wait in Melissa's room"...
........instead I walked the halls.......watching that door..........finally
out popped the great surgeon, but no other surgeon tagging behind...........
..I asked about the bowel specialist and was answered with "Melissa had lots
of endometriosis"..............I asked again and no answer...........The man
was almost in a run leaving the room, walking very fast, with me following
behind asking and asking.........he never came back to the hospital, but
called her room to "check on her"..............within weeks of being home
Melissa began telling me she felt all the same pain, but also in "new places
now.......and her stomach was growing by the day...........
Okay, so this is why we gave up on US doctors.............when I heard of
Germany, Melissa fought me and said, "You've really lost it now, mom".......
......as she was EXHAUSTED mentally and physically from all the sickness and
doctor's lies, medicines, speculation, accusations, etc.........
she couldn't imagine why in the world would we should go to Germany.........
.......
Sherry, I am SO glad you are well--as that is the main GOAL.........we
speak of Dr. Kruschinski and Germany because that is what our success story
IS..........and anyone who has been miserable for so many years and treated
so stagnant and unimportant is ready to share with others what worked for
them! We are not saying it is the only and best place to go...........we
are saying that we have FINALLY found someone that has enough knowledge,
compassion, determination, skill and concern for the patient to DO WHAT
NEEDS TO BE DONE to get rid of the problem!!!!!! Time will tell if the
adhesions do or do not come back, but in the meantime, my daughter is out of
bed for a FULL DAY, EACH DAY, for the first time in almost fourteen years ..
.......something we certainly hadn't gotten anywhere else.............
..............anyone need only read the actual success results from
adhesiolysis performed in the US on any adhesion web site and the success
statistics are grim and almost non-existent............you are definitely an
exception to the rule..........and I am glad for you...........hope you are
glad for us,
and I hope you understand that we take nothing away from anyone that has had
success here or ANYWHERE else....please tell all about it!!!!!!!
Best wishes,
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Wednesday, June 18, 2003 08:56:23 PM
To: Multiple recipients of list ADHESIONS
Subject: Re: Doctors in Chicago
Oh goodness.. I certainly didn't mean to attack anyone's post. I knew I
shouldn't have posted my true feelings here. I have just been feeling that
there is so much talk about going to Germany for surgery and that is the
only and best place to go that alot of people will feel hopeless because
they don't have the way or means to go. My intestines was also involved in
my adhesions. I was nauseated every day for a year and had all kinds of
bowel problems. Pain was not my only symptom nor my worst symptom. I was
unable to eat or enjoy what I did eat. I know the pain of adhesions on
every day life. My surgery worked for me and I hope others will not give up
on doctors in the US.