At Sat, 21 Jun 2003, Lillian wrote:
>
>Hello,
>Its been sometime since I have posted here. I want all of you to know I
>am here for you if you need to talk. I come here atleast 2 times a week
>and check your conversations and see if there anything I can add. Well
>I just want all of you to know I feel for all of you. I too am in in a
>vicious cylce of pain. The reality of it all is there is no hope in
>sight for those of us who cannot afford to go to Germany. It is so sad.
>Our medical professionals have let us down.We have nothing. Absolutely
>nothing to look forward to. Spraygel is no longer having trials in the
>US. We are doomed. Atleast that is the way I feel. No one cares about
>us. We are a hopeless breed. I have had multiple surgeries without
>avail. I can't beleive this. It is so sad to say our government and
>our doctors have just let us out to pasture to rot in this god forsaken
>illness. I no longer have a life. I get up in the morning and take a
>shower and return to bed.My pain levels are too high to think of doing
>anything else. I am so allergic to so many meds no one can find
>anything to rleive my pain. One doc turns you over to another and they
>all make fun of you. I am worthless. I have 3 children and a wonderful
>husband and I'm only 43 and I am living as a 90 yr old. I'm sorry if I
>sound depressed. I don't mean to be. I was always the one to cheer
>everyone around me up and now I am nothing,absolutely nothing. I w
>Hanging by a thread.
>Lillian