At Wed, 02 Jul 2003, Spincon58 . wrote:
>
>EVERYONE!!!!!!!!
>
>CALM DOWN!!!! These are all stories from suffers ....take what you want and
>leave the rest.... share your stories or keep quite.educate or close your
>eyes .DO WHAT EVER YOU LIKE < but don't ever judge anyone on this board..we
>are all here to help!!!!!help each other....so if you don't like something
>said relax it might not be in the best intreset to you, but it can benifif
>someone else...thank god Karen and others told her story.....I choice to go
>to Germany......I feel for everyones pain from ARD but lets not have pain
>from a support group!!!!!!!
>
>Connie
>
>>From: Adhesions Society <adhesions@adhesions.org>
>>Reply-To: adhesions@adhesions.org
>>To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
>>Subject: ADHESIONS digest 2822
>>Date: Wed, 2 Jul 2003 13:14:38 -0500
>>
>> ADHESIONS Digest 2822
>>
>>Topics covered in this issue include:
>>
>> 2) Re: Your thoughts and prayers for Ann Marie
>> by sweetlilqt913@aol.com (AnnMarie)
>> 3) I also have a VERY important question can ANYONE PLEASE help???????
>> by sweetlilqt913@aol.com (AnnMarie)
>> 4) An interview with a specialist in the prevention of adhesions
>> by "Helen Dynda" <olddad66@runestone.net>
>> 5) Re: Found a New Doctor!
>> by jeanninemonfre@yahoo.com (Nina)
>> 6) Re: I also have a VERY important question can ANYONE PLEASE
>>help???????
>> by jeanninemonfre@yahoo.com (Nina)
>> 7) My appointment yesterday
>> by noemail@email.com (Elaine)
>> 8) What is the complete medical term for c-diff?.......for AnnMarie
>> by "Helen Dynda" <olddad66@runestone.net>
>>
>>----------------------------------------------------------------------
>>
>>----------------------------------------------------------------------
>>----------------------------------------------------------------------
>>----------------------------------------------------------------------
>>Date: Tue, 1 Jul 2003 23:02:08 -0500 (CDT)
>>------------------------------
>>From: sweetlilqt913@aol.com (AnnMarie)
>>------------------------------
>>To: ADHESIONS@OBGYN.NET
>>------------------------------
>>Subject: Re: Your thoughts and prayers for Ann Marie
>>Message-ID: <200307020402.h62428s20337@dns.obgyn.net>
>>
>>I want to thank Dawn, and karen, and anyone else who put me in there
>>thoughts and prayers, while i was in the hospital. I am now home, with
>>the help of my moms persistance.I am still sick, and was in the hospital
>>for another medical problem I have called hydrocephalus ( fluid on the
>>brain) not adhesion related.
>>I went to the er in boston wed. afternoon,with a severe headache,
>>nausea, and a fever of 103.8, and blood in my stool and spent many
>>loooong hours in the er while they did a million tests, and tuck needles
>>in my head ( with no novacaine and wide awake might I add)to test fluid
>>from my brain, and was admitted to pediatrics thursday morning at 2:00
>>am. They found I had c-diff,and mywhite blood count was high, but they
>>didnt find anything wrong ith my shunt( the tube that i perminitly have
>>to drain the fluid from my head into my abdomen) however with all 4
>>shunt taps they did ( which is when they stick a needle in the top of my
>>head where my shunt begins, and takes a sample of fluid, thy are the
>>most PAINFUL things I ever have to have, they keep you awake to do it,
>>and do NOT use any novicaine! when they did all 4 shunt taps ( which
>>should be called shunt stabs because they are the MOST painful things in
>>the world, and trust me even tho I'm only 19 have been thry some pretty
>>painful things in my life.) wellwhen they did it ALL 4 times NO fluid
>>came out at all th firs 3 times and the last time the Dr , nurse, and my
>>mom said only 1 in ahalf to 2 drops of fluid cam out, which usually
>>doesnt happen and the dr said isnt suppose to happen, which would make
>>me think is why I'm so sick, but they had no explaination of why I'm
>>sick or why i had no fluid. My mom is pretty upset and so am I cause I
>>spent 6 days in the hospital, and went thru heck,and am not n e better
>>then whe I went in except my fever is gone. We are thinking about
>>looking for a new neurosurgen. To me and my mom this isnt something you
>>can just say well were not sure if somethings wrong and if there is wht
>>it is, this is my brain were talking about! Well thats pretty much
>>everything in a long story short. I also want to let EVERYONE here know
>>what a wonderful person Dawn is, she came to visit me at the hospital,
>>and me and my mom fell inlove with her! she is SOOOOOOO sweet, and is a
>>1in a million friend, andan exceptional person, and I am vry happy to
>>have met her in person, she is just as beautiful on the outside as she
>>is on the inside, and I am SOOOOOOOOOOO gratful to have met her! Agian
>>thanks everyone who had me in there thoughts expcially dawn nd karen it
>>really means alot! I hope everyone is feeling well.
>>
>>At Fri, 27 Jun 2003, Dawn wrote:
>> >
>> >Please all, Ann Marie has ended up in hospital and has access to a
>> >computer there. I am sure she could use a dose of hope, love and
>> >courage from us. Please let her know how much we care and post a short
>> >note if you can.
>> >Love,
>> >Dawn
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Tue, 1 Jul 2003 23:32:12 -0500 (CDT)
>>------------------------------
>>From: sweetlilqt913@aol.com (AnnMarie)
>>------------------------------
>>To: ADHESIONS@OBGYN.NET
>>------------------------------
>>Subject: I also have a VERY important question can ANYONE PLEASE
>>help???????
>>Message-ID: <200307020432.h624WCC06288@dns.obgyn.net>
>>
>>as I had mentioned in my last message, I have or at least had I'm pretty
>>sure I still do have c-diff, from being on 3 antibiotics(levoquin twice
>>and zythromax once)for 2 months(may-june)for a oral surgery for an oral
>>infection plus vacomycin last year for 4 months IV in the hosital and at
>>home fora ver bad shunt infection. now I have c-diff! its so horrible I
>>think as I understand from the Dr's while I was in the hospital, that
>>c-diff is some kind of infection in the bowel and intestine? I was
>>wondering if anyone has ever had tis before, and what they did for the
>>horrible cramping in the stomache, and awful diareiahh ( since I'm not
>>allowed to tak any type of anti-diahreah meds)because they infection in
>>mybowel and intestines have to get out in order for me to get better. I
>>was just wondering if n e one has ever had c-diff, and whatthey did and
>>how they coped? It's just SOOOOOOOOO hard, dealing with the affects of
>>c-diff, massive adhessions that I have, and the problems I think are
>>being caused my my vp shunt. I spent my first summer out of high scholl
>>( I graduated june 6, 2002) in the hospital very sick with a shunt
>>infection, and would like to at least enjoy this summer somewhat I know
>>with the adhesions that is gonna be hard as I cant even enjoy days from
>>adhesion pain, nevermind a summer, but this c-diff on top of everything
>>else I'm going thru is really hard to deal with, I feel so ill I only
>>get off the couch to come on this site, and go to the bathroom.I'm not
>>trying to itty myself, as I know many others hve just as many if not
>>more problems then me, but I'm only 19 and theres only so much I can
>>handle. Any info would help greatly. Thanks in advanced,
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Wed, 2 Jul 2003 00:56:42 -0500
>>------------------------------
>>From: "Helen Dynda" <olddad66@runestone.net>
>>------------------------------
>>To: <adhesions@adhesions.org>
>>------------------------------
>>Subject: An interview with a specialist in the prevention of adhesions
>>Message-ID: <001701c3405e$b75c7860$cfc7a83f@olddad66>
>>MIME-Version: 1.0
>>Content-Type: multipart/alternative;
>> boundary="----=_NextPart_000_0014_01C34034.CD924C60"
>>
>>------=_NextPart_000_0014_01C34034.CD924C60
>>Content-Type: text/plain;
>> charset="Windows-1252"
>>Content-Transfer-Encoding: quoted-printable
>>
>>X> Prevention of Postoperative Adhesions ... OBGYN.net Global Medical >Director, Hans van der Slikke, MD, PhD interviews Mark Martens, MD ..... >This interview took place at the OBGYN.net Conference at Orlando, >Florida, October 22-24, 2001
>>
>>http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts/asrm200 >-martens
>>
>>NOTE: If the above is not completely highlighted...
>>
>>1.) Enter: http://www.google.com/
>>
>>2.) Enter: Mark Martens, MD (in the search box)
>>
>>3.) Click: Google Search
>>
>>4.) Scroll down to and click: "Prevention of Postoperative Adhesions"
>>
>>------=_NextPart_000_0014_01C34034.CD924C60
>>Content-Type: text/html;
>> charset="Windows-1252"
>>Content-Transfer-Encoding: quoted-printable
>>
>><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
>><HTML><HEAD>
>><META content="text/html; charset=windows-1252" >http-equiv=Content-Type>
>><META content="MSHTML 5.00.3314.2100" name=GENERATOR>
>><STYLE></STYLE>
>></HEAD>
>><BODY bgColor=#ffffff>
>><DIV><FONT size=2>X> Prevention of Postoperative Adhesions<FONT
>>color=#cc0000> ... OBGYN.net</FONT> Global Medical Director, <A
>>href="http://www.obgyn.net/meet.asp?page=/bibliography/slikke">Hans >van der
>>Slikke, MD, PhD</A> interviews Mark Martens, MD ..... <FONT >size=2><FONT
>>size=2>This interview took place at the OBGYN.net Conference at >Orlando,
>>Florida, October 22-24, 2001</FONT></FONT></FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2><A
>>href="http://www.obgyn.net/displaytranscript.asp?page=/avtranscripts >asrm2001-martens">http://www.obgyn.net/displaytranscript.asp?page=/avt >anscripts/asrm2001-martens</A></FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>NOTE: If the above is not completely
>>highlighted...</FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>1.) Enter: <A
>>href="http://www.google.com/">http://www.google.com/</A></FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>2.) Enter: Mark Martens, MD (in the search
>>box)</FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>3.) Click: Google Search</FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>4.) Scroll down to and click: "Prevention of
>>Postoperative Adhesions"</FONT></DIV>
>><DIV> </DIV>
>><DIV> </DIV></BODY></HTML>
>>
>>------=_NextPart_000_0014_01C34034.CD924C60--
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Wed, 2 Jul 2003 09:10:35 -0500 (CDT)
>>To: ADHESIONS@OBGYN.NET
>>Subject: Re: Found a New Doctor!
>>Message-ID: <200307021410.h62EAZZ23753@dns.obgyn.net>
>>
>>At Tue, 1 Jul 2003, Craig Richardson wrote:
>> >
>>Thank you for the vote of confidence!
>>
>> >DEAR NINA,
>> >CONGRATULATIONS ON FINDING A DOCTOR WHO WILL LISTEN TO YOU AND ACTUALLY
>>TELL
>> >YOU WHAT IS GOING ON! AND YOU ARE TWICE AS LUCKY BECAUSE SHE IS A WOMAN
>>AND
>> >I THINK THEY MAY UNDERSTAND WOMENS PROBLEMS EVEN BETTER. WE ALL CAN'T
>>AFFORD
>> >TO GO TO GERMANY FOR SURGERY SO FINDING SOMEWHERE HERE TO HELP IS SOOOOO
>> >GREAT!
>> >CONGRATULATIONS AND GOOD LUCK WITH TRYING TO GET PREGNANT!
>> >SHERRY G
>> >-----Original Message-----
>> >From: "Nina" <jeanninemonfre@yahoo.com>
>> >To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>> >Date: Tuesday, July 01, 2003 3:46 PM
>> >Subject: Found a New Doctor!
>> >
>> >>Hello all, it's been a bit. First I would like to thank the members of
>> >>this site for being so responsive when I was first writing you.
>> >>Sometimes it just helps to "hear" that you are not alone. Second I
>> >>would like to thank everyone for sharing so much information. It is
>> >>what gave me the courage to go and get a second opinion. I went and saw
>> >>a beautiful and wonderful Endo/ fertiltiy specialist yesterday. First
>> >>she confirmed (due to an episode of significant bleeding 1 1/2 weeks ago
>> >>after exersize) that my adhesions are most likely already reforming.
>>But
>> >>what I adore about her is that she and her NP believe 100% in the pain
>> >>that adhesions can cause! She also discussed the fact that surgery is
>> >>not desired until absolutely necessary (as it can promote new growth).
>> >>My old MD never mentioned this. Instead of Lupron or some of the
>> >>heavier "menopause" inducing drugs she is suggesting I alternate periods
>> >>until we try and get pregnant by "skipping" my greens(will try in 6-12
>> >>months). She discussed with me that if I do need a Lap prior to
>> >>pregnancy, that she will lay down barriers to reduce the chances of new
>> >>growth. I do not know if it is the same as used in Germany, but
>> >>anything is better than nothing. She also explained that since my 2nd
>> >>Lap revealed adhesions in completely different areas than the first that
>> >>the barrier may not be effective, but that her goal is for me to have a
>> >>baby, and to have quality of life. She will work with my fiance and I
>> >>(we both have significant health problems) to help us try to get
>> >>pregnant within the means we are comfortable with. Most of all, not
>> >>only did she listen to me, but she HEARD me. She was impressed with the
>> >>questions I asked, and how I was able to describe in detail absolutely
>> >>everything. She was impressed that 12 months before wanting to get
>> >>pregnant I was in her office wanting to know what I can do proactively
>> >>to achieve my goals of living with minimal pain, and having a child.
>> >>
>> >>It's back, and I know it's back. 2 1/2 months after my last procedure
>> >>that is a definite. But I know I have someone in my corner that is
>> >>going to fight this as much as me. In my book it's the fight that makes
>> >>you a success, no matter the outcome.
>> >>
>> >>So thank you to this site, for igniting the fighter within me. May we
>> >>all find someone to hear us.
>> >>
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Wed, 2 Jul 2003 09:18:17 -0500 (CDT)
>>To: ADHESIONS@OBGYN.NET
>>Subject: Re: I also have a VERY important question can ANYONE PLEASE
>>help???????
>>Message-ID: <200307021418.h62EIHK29726@dns.obgyn.net>
>>
>>At Tue, 1 Jul 2003, AnnMarie wrote:
>> >Cdif may or may not be caused from antibiotics. Generally the treatment
>>is further antibiotics (Cdif in itself is a bacteria). Also antibiotics
>>can destroy the flora that naturally occurs in the gut. Without this flora
>>you can also get diarrhea. Try eating yogurt that contains live and active
>>cultures, this can help restore the natural flora. Also it takes a simple
>>stool sample to establish whether the cause is Cdif or not. There are
>>multiple causes for diarrhea, and though it is a pain, it is important to
>>treat it based on the cause, not just to try and contol the symptoms. Some
>>people also acquire short term lactose intolerance from being on
>>antibiotics. Hate to tell you this, but you may have to take a quick trip
>>to the doctor.
>>
>>Hope this helps,
>>
>>Nina
>>
>> >as I had mentioned in my last message, I have or at least had I'm pretty
>> >sure I still do have c-diff, from being on 3 antibiotics(levoquin twice
>> >and zythromax once)for 2 months(may-june)for a oral surgery for an oral
>> >infection plus vacomycin last year for 4 months IV in the hosital and at
>> >home fora ver bad shunt infection. now I have c-diff! its so horrible I
>> >think as I understand from the Dr's while I was in the hospital, that
>> >c-diff is some kind of infection in the bowel and intestine? I was
>> >wondering if anyone has ever had tis before, and what they did for the
>> >horrible cramping in the stomache, and awful diareiahh ( since I'm not
>> >allowed to tak any type of anti-diahreah meds)because they infection in
>> >mybowel and intestines have to get out in order for me to get better. I
>> >was just wondering if n e one has ever had c-diff, and whatthey did and
>> >how they coped? It's just SOOOOOOOOO hard, dealing with the affects of
>> >c-diff, massive adhessions that I have, and the problems I think are
>> >being caused my my vp shunt. I spent my first summer out of high scholl
>> >( I graduated june 6, 2002) in the hospital very sick with a shunt
>> >infection, and would like to at least enjoy this summer somewhat I know
>> >with the adhesions that is gonna be hard as I cant even enjoy days from
>> >adhesion pain, nevermind a summer, but this c-diff on top of everything
>> >else I'm going thru is really hard to deal with, I feel so ill I only
>> >get off the couch to come on this site, and go to the bathroom.I'm not
>> >trying to itty myself, as I know many others hve just as many if not
>> >more problems then me, but I'm only 19 and theres only so much I can
>> >handle. Any info would help greatly. Thanks in advanced,
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Wed, 2 Jul 2003 10:27:35 -0500 (CDT)
>>------------------------------
>>From: noemail@email.com (Elaine)
>>------------------------------
>>To: ADHESIONS@OBGYN.NET
>>------------------------------
>>Subject: My appointment yesterday
>>Message-ID: <200307021527.h62FRZt19337@dns.obgyn.net>
>>
>>Sally, thank you for your response from yesterday!
>>
>>I went to the doctor yesterday. He was nice. Said that my problems
>>don't sound like a back problem, but an adhesion problem. He said that
>>no gynecologist would operate because of adhesions and maybe a general
>>surgeon would. He said what I already knew - more surgery, probably
>>more adhesions and more pain. Something I'm not wanting to do anyway.
>>I'm in more pain now after the second surgery than I was before. I wish
>>I had just kept the cyst ;).
>>
>>He did put in a referral for a second opinion gynecologist. I should
>>have that in two weeks or so and then it will probably take another
>>month to be seen. Waiting is something I've learned a great deal about
>>lately ha!
>>
>>Anyhow, the consensus was, it's probably adhesions and there's nothing
>>anyone will do until I get a bowel obstruction. I asked about
>>anti-depressants for pain and he didn't really say one way or the other.
>>I left knowing about as much as I knew going in. This is pretty much my
>>life now and I'm just going to have to help myself learn how to deal
>>with the physical pain and the emotional strains that it causes.
>>
>>I go back to my GI doctor next Monday. He had ordered all kinds of
>>tests on my stool that I'm pretty sure will come back fine. I've added
>>a lot of fruit and bran to my diet (and prune juice) that is helping to
>>at least keep things moving ;).
>>
>>So, no news really. No advice on getting rid of the pain. I'm up for
>>suggestions on things that will help the pain though. I'm thinking
>>meditation might be beneficial? I don't think it could make things worse
>>ha!
>>
>>Thanks for listening!
>>
>>------------------------------
>>
>>------------------------------
>>------------------------------
>>------------------------------
>>Date: Wed, 2 Jul 2003 11:19:08 -0500
>>------------------------------
>>From: "Helen Dynda" <olddad66@runestone.net>
>>------------------------------
>>To: <adhesions@adhesions.org>
>>------------------------------
>>Subject: What is the complete medical term for c-diff?.......for AnnMarie
>>Message-ID: <006301c340b5$ab6e59e0$f11593ce@olddad66>
>>MIME-Version: 1.0
>>Content-Type: multipart/alternative;
>> boundary="----=_NextPart_000_0060_01C3408B.C18422C0"
>>
>>------=_NextPart_000_0060_01C3408B.C18422C0
>>Content-Type: text/plain;
>> charset="Windows-1252"
>>Content-Transfer-Encoding: quoted-printable
>>
>>Dear Ann Marie,
>>
>>You said: "I'm pretty sure I still do have c-diff, from being on 3 >antibiotics (levoquin twice and zythromax once) for 2 months."
>>
>>I'm not a medical professional; so I have no idea what c-diff is.
>>
>>Please provide the complete medical term for c-diff. That's the only >way I can search for information about this medical problem.
>>
>>Love, Helen
>>
>>------=_NextPart_000_0060_01C3408B.C18422C0
>>Content-Type: text/html;
>> charset="Windows-1252"
>>Content-Transfer-Encoding: quoted-printable
>>
>><!DOCTYPE HTML PUBLIC "-//W3C//DTD HTML 4.0 Transitional//EN">
>><HTML><HEAD>
>><META content="text/html; charset=windows-1252" >http-equiv=Content-Type>
>><META content="MSHTML 5.00.3314.2100" name=GENERATOR>
>><STYLE></STYLE>
>></HEAD>
>><BODY bgColor=#ffffff>
>><DIV><FONT size=2>Dear Ann Marie,</FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>You said: "I'm pretty sure I still do have >c-diff, from
>>being on 3 antibiotics (levoquin twice and zythromax once) for 2 >months."
>></FONT></DIV>
>><DIV><FONT size=2></FONT> </DIV>
>><DIV><FONT size=2>I'm not a medical professional; so I have no >idea what
>>c-diff is.</FONT></DIV>
>><DIV><FONT size=2></FONT> </DIV>
>><DIV><FONT size=2>Please provide the complete medical term for >c-diff.
>>That's the only way I can search for</FONT><FONT size=2><FONT >size=2>
>>information about this medical problem.</FONT></FONT></DIV>
>><DIV> </DIV>
>><DIV><FONT size=2>Love, Helen</FONT></DIV>
>><DIV> </DIV>
>><DIV> </DIV></BODY></HTML>
>>
>>------=_NextPart_000_0060_01C3408B.C18422C0--
>>
>>------------------------------
>>End of ADHESIONS Digest 2822
>>------------------------------
>>------------------------------
>>------------------------------