Deborah
>----- Original Message -----
From: heather s <cranberry974@yahoo.com>
To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
Sent: Wednesday, July 09, 2003 12:56 PM
Subject: Re: Dr. In Pennsylvania - Question
> I can neither afford going to Pennsylvania or Germany, I'm a poor
> college student..LOL
>
> Any way, I get partial small bowel obstuctions about every 2-3 weeks and
> have been in and out of the hospital for about 3 years now. I have had
> 4 surgeries and have severe adhesions. I finally found a wonderful
> surgeon that beleives that ahdesions are the cause of my problem. He
> told me why doctors won't help adhesion patients and told me that this
> wasn't all in my head like most the the doctors have told me. I am
> scheduled for surgery to cut down adhesions Tuesday the 15th.
>
> Before everybody jumps on me, I understand that having more surgery can
> make more adhesions. I'm not expecting a perfect outcome, just some
> improvement In the quality of my life. I have done a lot of reasearch
> on adhesions and have read this website, and I think that I have made
> the best decision for me at this time.
>
> Heather
>
> At Wed, 9 Jul 2003, Steenbeke's Office wrote:
> >
> >I am thinking about going to Pennsylvania for surgery as I can not afford
> >the trip to Germany right now. My doctor here said he would help me with
my
> >insurance company, but I read on a recent post that the doctor in PA does
> >not accept insurance. Is this true? Is he really only private pay? Any
> >information about this doctor would be greatly appreciated.
> >
> >Thanks
> >Deborah
> >
>> >>----- Original Message -----
> >From: MICHAEL MURRAY <mkmurray30@msn.com>
> >To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
> >Sent: Wednesday, July 09, 2003 10:38 AM
> >Subject: Re: One last time-my story
> >
> >> I would have to agree with Lisa on everything she has said.
> >> I myself have been to Pennsylvania for surgery with no good results.
> >> I went to Germany last December and had surgery. I came home and had
some
> >> problems in which I notified Dr. K. about. He suggested that I have
some
> >> tests ran and low and behold I had Gallstones. I had my gallbladder
out
> >in
> >> May. I have to thank Dr. K for suggesting the tests as I don't think
my
> >> drs. here would have thought to do that. I wanted to go back to Germany
to
> >> have this surgery but was unable to go.
> >> Unfortunately I am experiencing pelvic pain and other problems once
again
> >> and have had to go back on pain patches. I CAN'T SAY THAT IT IS
ADHESIONS
> >> BUT IT FEELS AS THOUGH IT IS. (The only way to know for sure is to go
in
> >and
> >> look!)
> >> Would I have another surgery for them in the states? NO!
> >> I do have a friend from my town that followed me to Germany for surgery
> >and
> >> she is doing well. She didn't have adhesions in the pelvic area though.
> >> I went to Minnesota at one time and was told that it is hard to get rid
of
> >> them in the pelvic area.
> >> So...I think your best chance is Germany but I don't think we can say
that
> >> it is going to be 100% effective.
> >> I am glad that there are some on here that feel they are adhesion free
now
> >> but there needs to be some insight on the expectations.
> >> Kelly
> >>
>> >>> ----- Original Message -----
> >> From: "Lisa" <lilylover5555@aol.com>
> >> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
> >> Sent: Monday, July 07, 2003 11:18 AM
> >> Subject: One last time-my story
> >>
> >> > Hey everyone,
> >> > I'm still seeing a little bit of confusion over the results of many
that
> >> > have been to Germany. I would like to say my peace and clarify some
> >> > things that I now understand...
> >> > Both Sally and I have had some trouble after our surgeries with Dr.
> >> > Kruschinski. I think you all ready knew that we have been up-front
with
> >> > our problems. Sally has told this board of her 1st surgery and the
> >> > appendicitis that followed, all the problems it caused her with the
> >> > resulting massive infection, and explosion of adhesions because of
that
> >> > infection. She told us of her 2nd surgery and her reaction to the
> >> > spraygel??? If that is indeed what happened, she was the first to
> >> > experience these kinds of problems, and no one knows exactly what
> >> > happened. She has been very up-front with it all, as have I. I
posted
> >> > last fall of my continuing problems, and that I was told it was
chronic
> >> > pancreatitis, which turned out not to be the case! We have both tried
> >> > our best to keep you all informed of what is happening with us, we
have
> >> > been honest! In retrospect I guess we could have posted more about
this,
> >> > but it has been a long struggle for both of us, with no definative
> >> > answers. We also didn't want to drag down others, or give them any
idea
> >> > that the combination Dr. Kruschinski offers is not working! That is
> >> > simply not true, he offers the best chance we have, in my
opinion...for
> >> > many patients the use of gas in adhesiolysis can be a factor in
adhesion
> >> > formation, so why not get all the help we can get, IF that is the
route
> >> > you choose to take!
> >> > I also feel the need to clarify something I said awhile ago... that
my
> >> > 3rd look showed a very small adhesion...I stand corrected, and wanted
> >> > you all to know that! What I saw as an adhesion,(I'm not a medical
> >> > person) was in fact an "adhesive cord" which is not an adhesion, is
not
> >> > effective as an adhesion, it was very small,1 milimeter, and most
> >> > important does not mean that I do in fact have adhesions back! I have
> >> > gotten a second opinion on this matter, and they agree it may(or may
> >> > not) be an adhesion!I chose to think NOT!!
> >> > I have said before that I DON"T KNOW IF MY ADHESIONS ARE BACK... I
have
> >> > chosen another route that makes perfect sense to me and my
situation...
> >> > interstiial scarring. I'm still learning exactly what that means,
but I
> >> > think I can safely say it is more about nerves(on a cellular basis)
than
> >> > anything!!If any one has questions about this I'd be happy to try to
> >> > explain the best I can, but I am still learning!
> >> > I hope this clears some things up for you all...
> >> > Lisa
> >> >
> >>
>