Re: Dr. In Pennsylvania - Question

From: april degregory (aprilde402@aol.com)
Wed Jul 9 20:27:58 2003


At Wed, 9 Jul 2003, Lisa wrote: >
>Hi Heather,
>We understand completely! Good luck on your surgery!
>Lisa
>
>At Wed, 9 Jul 2003, heather s wrote:
>>
>>I can neither afford going to Pennsylvania or Germany, I'm a poor
>>college student..LOL
>>
>>Any way, I get partial small bowel obstuctions about every 2-3 weeks and
>>have been in and out of the hospital for about 3 years now. I have had
>>4 surgeries and have severe adhesions. I finally found a wonderful
>>surgeon that beleives that ahdesions are the cause of my problem. He
>>told me why doctors won't help adhesion patients and told me that this
>>wasn't all in my head like most the the doctors have told me. I am
>>scheduled for surgery to cut down adhesions Tuesday the 15th.
>>
>>Before everybody jumps on me, I understand that having more surgery can
>>make more adhesions. I'm not expecting a perfect outcome, just some
>>improvement In the quality of my life. I have done a lot of reasearch
>>on adhesions and have read this website, and I think that I have made
>>the best decision for me at this time.
>>
>>Heather
>>
>>At Wed, 9 Jul 2003, Steenbeke's Office wrote:
>>>
>>>I am thinking about going to Pennsylvania for surgery as I can not afford
>>>the trip to Germany right now. My doctor here said he would help me with my
>>>insurance company, but I read on a recent post that the doctor in PA does
>>>not accept insurance. Is this true? Is he really only private pay? Any
>>>information about this doctor would be greatly appreciated.
>>>
>>>Thanks
>>>Deborah
>>>

>>>>>>>----- Original Message -----
>>>From: MICHAEL MURRAY <mkmurray30@msn.com>
>>>To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
>>>Sent: Wednesday, July 09, 2003 10:38 AM
>>>Subject: Re: One last time-my story
>>>
>>>> I would have to agree with Lisa on everything she has said.
>>>> I myself have been to Pennsylvania for surgery with no good results.
>>>> I went to Germany last December and had surgery. I came home and had some
>>>> problems in which I notified Dr. K. about. He suggested that I have some
>>>> tests ran and low and behold I had Gallstones. I had my gallbladder out
>>>in
>>>> May. I have to thank Dr. K for suggesting the tests as I don't think my
>>>> drs. here would have thought to do that. I wanted to go back to Germany to
>>>> have this surgery but was unable to go.
>>>> Unfortunately I am experiencing pelvic pain and other problems once again
>>>> and have had to go back on pain patches. I CAN'T SAY THAT IT IS ADHESIONS
>>>> BUT IT FEELS AS THOUGH IT IS. (The only way to know for sure is to go in
>>>and
>>>> look!)
>>>> Would I have another surgery for them in the states? NO!
>>>> I do have a friend from my town that followed me to Germany for surgery
>>>and
>>>> she is doing well. She didn't have adhesions in the pelvic area though.
>>>> I went to Minnesota at one time and was told that it is hard to get rid of
>>>> them in the pelvic area.
>>>> So...I think your best chance is Germany but I don't think we can say that
>>>> it is going to be 100% effective.
>>>> I am glad that there are some on here that feel they are adhesion free now
>>>> but there needs to be some insight on the expectations.
>>>> Kelly
>>>>

>>>>>>>> ----- Original Message -----
>>>> From: "Lisa" <lilylover5555@aol.com>
>>>> To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
>>>> Sent: Monday, July 07, 2003 11:18 AM
>>>> Subject: One last time-my story
>>>>
>>>> > Hey everyone,
>>>> > I'm still seeing a little bit of confusion over the results of many that
>>>> > have been to Germany. I would like to say my peace and clarify some
>>>> > things that I now understand...
>>>> > Both Sally and I have had some trouble after our surgeries with Dr.
>>>> > Kruschinski. I think you all ready knew that we have been up-front with
>>>> > our problems. Sally has told this board of her 1st surgery and the
>>>> > appendicitis that followed, all the problems it caused her with the
>>>> > resulting massive infection, and explosion of adhesions because of that
>>>> > infection. She told us of her 2nd surgery and her reaction to the
>>>> > spraygel??? If that is indeed what happened, she was the first to
>>>> > experience these kinds of problems, and no one knows exactly what
>>>> > happened. She has been very up-front with it all, as have I. I posted
>>>> > last fall of my continuing problems, and that I was told it was chronic
>>>> > pancreatitis, which turned out not to be the case! We have both tried
>>>> > our best to keep you all informed of what is happening with us, we have
>>>> > been honest! In retrospect I guess we could have posted more about this,
>>>> > but it has been a long struggle for both of us, with no definative
>>>> > answers. We also didn't want to drag down others, or give them any idea
>>>> > that the combination Dr. Kruschinski offers is not working! That is
>>>> > simply not true, he offers the best chance we have, in my opinion...for
>>>> > many patients the use of gas in adhesiolysis can be a factor in adhesion
>>>> > formation, so why not get all the help we can get, IF that is the route
>>>> > you choose to take!
>>>> > I also feel the need to clarify something I said awhile ago... that my
>>>> > 3rd look showed a very small adhesion...I stand corrected, and wanted
>>>> > you all to know that! What I saw as an adhesion,(I'm not a medical
>>>> > person) was in fact an "adhesive cord" which is not an adhesion, is not
>>>> > effective as an adhesion, it was very small,1 milimeter, and most
>>>> > important does not mean that I do in fact have adhesions back! I have
>>>> > gotten a second opinion on this matter, and they agree it may(or may
>>>> > not) be an adhesion!I chose to think NOT!!
>>>> > I have said before that I DON"T KNOW IF MY ADHESIONS ARE BACK... I have
>>>> > chosen another route that makes perfect sense to me and my situation...
>>>> > interstiial scarring. I'm still learning exactly what that means, but I
>>>> > think I can safely say it is more about nerves(on a cellular basis) than
>>>> > anything!!If any one has questions about this I'd be happy to try to
>>>> > explain the best I can, but I am still learning!
>>>> > I hope this clears some things up for you all...
>>>> > Lisa
>>>> >
>>>>

--
Hi Lisa and everyone,
Its me April, I have not posted in sometime.  I spent April and May in the hospital
from first what they thought was colitis due to a CT scan showing a thickening in the
sigmoid colon...biopsy showed it was not colitis.  Anyway alot of you know I had
surgery  in Germany with both Dr. REich and Dr.Kruschinski. I left for Germany with
trouble eating, having bms, and pelvic and upper ab pain. My surgery cannot be
considered gasless since  Dr. Reich did use it. Dr. Kruschinski did finish and we
nt gasless of course. I continue to have upper ab pain thru to the back and groin
pain. But my eating and bms are still better than before my surgery.  My stay inthe
hospital turned into a paralytic ileus from pain meds, pain patch. It was a nightm
are, they had to do a continuos infusion epidural to block the most  horrible pain
ever and get me off the pain meds.  After all this they still had to provide
pain relief  for the groin and upper pain. I am still going to a pain clinic, as\
I cannot do a thing without pain releif.  I am more afraid of pain meds after what
happened to me but I have no choice as many know how that feels.  I still am consi
dering going to Germany for gasless with Dr. K.  I have much respect for them both,
it was a great setup over there.  With so many asking questions about Germany
I felt compelled to write, and also am just feeling well enough to get up and around
a little, I am pretty much housebound and spend way too much time  in bed on
the heating pad, but I am doing the best I can as all of us are. This is just
been a two year battle for me , I know many of you much longer. It is good to share
again. Wish everyone well with whatever way they choose.
Sincerely,
April    ps. I am still trying to figure my way around new board.

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