You are not alone as when I awake is my highest pain levels form not
having taken my meds throught he night.Atleast I sleep through the
night. But I awakle with pain levels as high as 8 . I am sorry to hear
of your pain.Do you see pain management? THey are the only releiable
source fo rme at this time in my life. AS I know having more surgery
will only make my pain levels worse as there are no adhesion barriers in
the US that have worked for me. ANd I have had all of them. Patiently
I await the dawning of FDA to approve Spraygel to see if it will work
for me at all.
Best Wishes
Lillian
Marian;
>
>You poor thing, you sound as if you are in such agony. You need to make sure that
when you have your next surgery (and with the way you are describing how painful
urinating is you sound like you need another surgery to remove the adhesions from
your bladder) that you have someone who specializes in adhesions doing your surgery.
Nothing appears to be forever, but a good surgeon should be able to provide at least
relief from your excruciating pain. You also need to watch how much medication you
are taking, because these can alter your mood.
>
>Hang in there, but find the best doctor possible to do this surgery. Do not just
rely on anyone, even if they have stated that they have done adhesions before, that
does not make them an expert at it.
>
>We will all say a prayer for you, and please keep us updated on your condition.
>
>J. Love
>
>>> ----- Original Message -----
> From: marian coughlan
> To: Multiple recipients of list ADHESIONS
> Sent: Wednesday, September 03, 2003 10:50 AM
> Subject: pain
>
> my doctor had told me that i have a cycle with the pain from my adhesons
> and that i will never break it has anyone else been told this ?the pain
> can wake me at anytime of the morning &i find at times it is very hard
> to have a wee as the pain is so bad i can sit there crying with pain i
> am at the stage i am afraid to go to bed as i know i have to wake to
> this i take mobic ,spasmol ,(solpadol 6to 8 everyday ) zydol and then a
> morphine injection ,i end up staying in bed for most of the morning
> praying for the pain to stopi am so tired when i get out of bed all i
> want is to sleep again i do believe its all the meds i am taking i have
> had the opp for adhesions but got no relief and am now waiting to go
> back in to hospital to have then redone does anyone have this problem in
> the morning or is it just me ?my quality of life is not very good as i
> cannot make any plans to go out even to visit friends as most times i
> end up having to cancel.
> thanks
> marian coughlan