Hi Deb,
My name is Julie and I am in a similar situation. My best advise
summed up in a short sentence is to see a gynecologist who specializes in
oncology. Do it, I think you will find your answers. I am having surgery in
6 days for same scenario. Please let me know how it goes. I went to many
regular Ob gyn's and could get no help . I finally went out on my own to a
Ob gyn/oncologists. He is wonderful and he had much more insight to this .
Trust me on this . I have seen many doctors in the last year and had
unbelievable testing. Many hospital visits and ran into dead ends . You
will be surprised. Feel free to get back with me anytime.