Where to go from here?
From: billiesuu@hotmail.com
Thu Jan 27 16:24:14 2005
Hello- this is my first visit here, but I am a well
documented case. Of which, no one will even look at
my records. It is just too easy to write me off;
and I no longer accept this as a form of treatment.
My doctors refuse further surgery for adhesiolysis.
(5) My doctors refuse to diagnose ARD. I fought for
almost 30 years for the Endo diagnosis, but endo was
only one of many signs I have leading me to believe I
have ARD, the least of which being all my operative
reports, with adhesions found surgery 1, to even the
last surgery. (I quote:
"you were dead on accurate as to where your
adhesions are located!") My doctors refuse to
even take the time to review the educational
materials I provided from this site. Everyone
is too busy, or just too busy in disbelief.
My life is again on the line, my adhesions are
all over my abdomen-5 locations I can feel via
bowel material, and I have no where to turn. No
one to talk to, and God knows I've been as honest
as the day is long. I average 3-5 days between
bowel passings on a good week, and on a bad one,
I'll easily go 7 days without going and I balloon
to 9 mos pregnant regularly. I am not fat, however,
due to the uncontrollable bloating, wear clothing
for someone who is 50 lbs heavier. How in the
world do I get a doc to diagnose me with ARD?
My gyn stated flatly that I shouldn't be so
worried about being believed: my op reports
are "more" than adequate.
Here's some irony to add to the picture: At one
time, I had gotten onto Penn & Teller's BS site
on Showtime...I was accused/deleted for the
posting of sexually explicit material for describing
our disease. A site dedicated to Non-Censorship...
censored me for trying to explain ARD-when asked,
no less. I should add, that at No time, did I ever
use any word that was sexual in nature! (but because
I referred to bm's, apparently)
I feel for anyone who suffers as I do, period.
No one should have to live this way. God bless
those of you who try to help those of us who suffer.
|
