Re: At the end of my rope
From: jennifer (jl487@nycap.rr.com)
Sun Jan 30 15:05:04 2005
Hi Chrissy,
I haven't posted on this board in quite a
while but wanted to repsond to you because
I can relate to what you are going through.
Although my mom's problems don't seem as
severe or painful as your, your situations
are similar. My mom was 46 yrs old and
relatively healthy when she started having
abdominal pain back in 2001. After several
tests, she was diagnosed with an ovarian cyst
(she had already had a hysterectomy 10 yrs
before but one ovary was left). She had surgery
to remove the cyst. To this day, we still don't
know exactly what happened in the OR but the
ob/gyn said that she was filled with adhesions.
He removed the cyst and she was discharged from
the hospital a couple of days later only to be
readmitted a couple of days later. A week and
a half after her first surgery, she developed a
small bowel obstruction & required a second surgery.
She was very sick for months afterward and the
doctors kept shuffling us around and telling us
that they weren't sure why she was still sick.
She lost 60 lbs and was vomiting popsicles.
After seeing several doctors and having tests
done, she was told that 17 ft of her small
intestine was removed during the surgery and she
has short bowel syndrome. Ever since then she
has gradually improved but is on many meds and
deals with daily diarrhea. She had surgery in
June 2003 to remove more abdominal adhesions.
She was feeling much better for about 6 months
and then she started having constipation/bloating.
At times, her stomach bloats up so bad that she
looks like she is 9 mos pregnant. There is so
much pressure and cramping that she can hardly
breath. So, again we went through the routine
of seeing doctors and having tests done. Now
her new colorectal surgeon is trying to tell us
that she does not have sbs. I can't believe it!
Who do you trust? They are still running more
tests to see what is causing the bloating although
he feels it is not adhesions. It was suggested that
she might need surgery to remove her colon. We are
both so terrified. This illness is so hard to deal
with. Not sure what the result is going to be. I
am so fed up with doctors and this health care system.
I am not sure what to tell you except to keep praying
things will get better. I am so sorry that you are
in so much pain--it must be unbearable. I know that
just watching my mom suffer has made me want to give
up. There have been many times that she says that
her quality of life is gone. We keep hoping that
just one doctor will be able to give us some answers
and offer a solution. I'm here if you want to talk.
Please email me or post, I would love to correspond
with you or anyone who shares a similar situation.
Hang in there!! Keep in touch, Jenn
At Thu, 27 Jan 2005, Christina Brown wrote:
>
>I have had as many others here multiple operations.
>27 to be exact.
>
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