Re: my awareness of adhesions

From: Elizabeth (lizfirst1@comcast.net)
Thu Mar 24 08:29:57 2005


Like you, I've had several surgeries due to Endometriosis which were all removed in 1989, 1 year after a partial hysterectomy. Howevever, my problems with adhesions did not start until 2002 to early 2003. I, too, went from doc to doc, was told it wouldn't be worth THEIR time (Dr. Parks, DeKalb med Cntr) to go in and find out what was causing the pain since the all GI tests, as well as MRIs and CT scans showed nothing unusual.

When I had an angiogram of the aortas, it showed that there was a large accumulation of vessels in the left upper quadrant of my abdomon (which is where the pain was located). I, too, ended up dibilitated by the pain but was not receiving any pain medication...

only Lexapro and Nortriptolene (for the "headache" in the abdomen, not the head, as Dr. Cai at Emory Hospital told me. I finally was admitted to Emory Hospital this past September and when the docs came in to tell me there was nothing they were "willing" to day, I told them I refused to leave until SOMEONE had the intestinal fortitude to help me or I'd have to find a media outlet to help me with this. FINALLY, one of the interns (Dr. Atta) took it upon himself to read my chart and saw I had had endo. a longtime ago, so he suggested a GYN be called in. Dr. CARLA Roberts, OB/GYN Specialist and Professor at Emory saw me and exclaimed "why didn't anyone else go in and find out what was causing this??!!" (uh, you think?) so she scheduled me for surgery and found I had adhesions hanging from my upper abdominal wall and which one had attached itself to my small intesting and was blocking it off, another was attached to my LIVER AND WAS DRAGGING IT FROM MY MID ABDOMEN TO THE LEFT SIDE AND AROUND MY WAIST!!!!!

Much relieved that I was not nuts!

once the surgery was over and after a much needed mental and emotional break, I felt 100%. HOWEVER, after about 3 months, the pain was back and I was back in for surgery (both of these were laproscopically performed). This time, the adhesions were in different areas. The worst was covered with a thick waxy "plaque" and was (and still is) my Aorta, which is attached to the left side of my abdomen. I am now going to be seen by a cardiological vascular specialist.

Important to know - these adhesions were not caused by the endometrios, nor were they in areas of prior surgeries. Also, if I come across another doctor who wants to treat me with metal health pills I vow to sue! Thanks for letting me vent.


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