Re: Adhesions and diet (celiac)

From: Margaret (jgardner11@gardener.com)
Mon Jun 13 18:57:01 2005


If you had blood tests done after excluding wheat from your diet for over six weeks then the results may be inaccurate since the antibody levels (one thing the blood tests measure) drop without continued exposure to gluten.The results can also be inaccurate if you are eating wheat, as well.

The only truly accurate test to diagnose celiac disease is a small intestine biopsy, and even that can miss it if the damage is spotty and they biopsy the wrong spots.Many biopsy confirmed celiacs test negative on their blood tests, yet show damage on the biopsy.

If you really, really want a firm diagnosis, you may wish to rentroduce wheat under doctor's supervision(a "gluten challenge") then re-run the blood tests, and have the small intestine biopsy after you've suffered long enough (<grin>).

In the meantime, can your doctor refer you to a dietician so you can get ideas on what to do about your diet issues? There are various diets you can try depending on the degree and type of obstruction (low fiber, low fiber low residue, gastrointestinal 2....) the dietician will know what is best to start.

I live on enteral formula now so food is not an issue for me,but it was pretty awful before!The degree of cramping and obstruction is often quite variable, due to a variety of factors.The bowel has good days and bad, just like the rest of us.

--
Margaret

At Tue, 7 Jun 2005, david wrote: > >Why does it vary so much? it seems to some times go away quickly after >drinking 3-4 glasses of water quickly but then other times it seems to >not help. > >Anyway, help!!!


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