Re: Chronic Pain - what should I do?
From: DT (dt2005@comcast.net)
Fri Dec 16 17:38:36 2005
Hi Wendi,
I'm so sorry to hear your story - I have had similar experiences (and I'm
sure many of our fellow adhesion sufferer's wll say the same) with the
re-occurance of pain after surgery. It has always been due to the adhesions
returning. Antibiotics won't help (in fact, they may do you more harm than
good in the long term). Pain medicine can help you cope with the pain, but
only if you find the right combination. There are other medicines besides
opiates which can help - but there are opiates that can help that are OK to
take for a moderate period of time (up to a couple of years if it takes that
long for you to find a doctor/surgeon to help). You need a pain management
Dr. who is willing to work with you trying different medications until you
find the right drug (or the right dosage of a drug) that works.
The most important thing for you is DON'T GIVE UP! You have to keep
advocating for yourself. The Dr. who advised you to have children right
away sounds like a crackpot to me. That is NOT the answer. Work with Pain
Management and take advantage of any counseling service they have available
to help you deal with the emotional stress of your illness. You need to
take care of yourself body and mind in order to cope with what you're going
through. Keep trying to find a Dr. who has skills in applying the adhesion
medicine (like Interceed) properly and then have another surgery to remove
the adhesions. Then give yourself about 6 months to heal and see if you
feel different.
Just don't give up. Best wishes...
--
DT
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