Re: Chronic Pain - what should I do?
From: Debbie (tigger6040@aol.com)
Mon Dec 19 16:57:45 2005
<<(the laproscopy had shown some endometriosis, but not a lot and as my
pain is constant, not related to periods, it is not likely to be this
anyway). >>
What makes you say "it's not likely to be this anyway"? Your symptoms
sound very much like endometriosis so I wouldn't discount it just yet.
It's a common misconception for doctors to believe that endo causes pain
ONLY with our periods and that a small amount of disease is equal to a
small amount of pain. This is not true for everyone with endo. We all
experience endo pain differently. Some of us have very small amounts of
endo with crippling pain. Others have severe Stage IV endo with no
pain. The amount of disease has no correlation to the severity of the
pain it causes.
Another item of note is that endo pain isn't necessarily always
cyclical. I have been living with endometriosis for nearly 20 years.
Before I had surgery with an endo specialist my pain had progressed to
24/7, 365 day a year pain with an increase in severity during menses.
Endometriosis is known to be responsible for pain, scarring and adhesion
formation. Unfortunately the medical professional is sorely lacking in
their skill and knowledge when it comes to endo. I can't tell you how
many women I've met over the years who were told the doc saw minimal
disease or none at all, who then followed up with another surgery with
an endo specialist only to be told they had severe disease that their
hometown docs had missed.
You may want to give consideration to a consultation with one of the
well known endo specialists. I wouldn't be the least surprised to have
them tell you they think endo is indeed a factor in your pain and
adhesions.
HTH
--
Debbie
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