Re: Flare up again!
From: Ann Marie Endres (blueis88@optonline.net)
Fri Apr 14 21:58:22 2006
Karan,
I feel for you. I had surgery (with a vertical cut) 1 year ago on April 22
to be exact. The surgery was to remove the massive adhesions. After the
surgery I had a major infection which left me with an open wound (2 and 1/2
inches deep, 3 inches long) and nurses coming 2x a day to my house for 2
months. The only pain I had at that time was from the open wound. When
that pain finally went away I had about 2 months where I felt good. Then a
day here and a day there with pain. Tonight, I am on Levorphanol 16mg every
6 hours and Actiq 400mcg when needed. I have been on Methadone and Dilaudid
and none of it helps. I shouldn't say that. They take an edge off but pain
does not go away. I am back to where I was one year ago. I actually felt
an adhesion rip off my abdominal wall on Sunday when I put my sneakers on.
If you touch my stomach you can feel them.
Every surgery will bring more until they find a cure. I am hopeful that the
trials that are being done here un the US will hopefully go well and soon we
can all get back to life. I pray it doesn't come back at all for you and
this is a passing thing.. Take care
Ann Marie
>----- Original Message -----
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
To: "Multiple recipients of list ADHESIONS" <adhesions@dns.obgyn.net>
Sent: Wednesday, April 12, 2006 11:18 PM
Subject: Flare up again!
> Sender: kherard@sulphur.org (Karan)
> Subject: Flare up again!
>
> Does anyone go a week or so with no pain and then all of a sudden "It's
> Back!"?
>
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