new here - adhesion help
From: IAS Admin (tracy.joslin@adhesions.org)
Thu Jul 13 12:30:37 2006
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
melisa carratala
Sent: Sunday, July 09, 2006 8:09 PM
Subject: Re: new here - adhesion help
Hi, i have been suffering as you have for over 6 years, my pain management
doctor has found that a lydocaine infusion can give some relief for a few
days, i have been using it for nearly 6 months and although it does not take
away all the pain i do find a little relief for about 3 days. hope this
helps. God Bless-Melisa
________________________________________
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
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________________________________________
Reply-To: adhesions@adhesions.org
To: Multiple recipients of list ADHESIONS <adhesions@dns.obgyn.net>
Subject: new here - adhesion help
Date: Sun, 9 Jul 2006 19:51:48 -0500
>Sender: jen.ford@telus.net (Jen)
>Subject: new here - adhesion help
>
>Hello. How on earth have I missed this website? Now that I've found it
>where do I go? My story began several years ago when I had a laparotomy
>to remove a large (24cm) mass on one of my ovaries. Pathology showed it
>was a form of ovarian cancer, so several months later I was admitted to
>a cancer center where they performed a second laparotomy to perform a
>cancer staging. And again, several months after that, another
>laparotomy to remove more 'masses' which were benign. This was 2-3
>years ago and now I have considerable excruciating pelvic pain. The
>surgeons have told me it is caused by adhesions and neuropathy.
>
>I understand that there is no treatment for this pain, and that additional
>surgery will give temporary (a couple of months, maybe) relief but then
>more adhesions will form. I have been seen by gynecologists, pain
>specialists, oncology specialists etc. Currently my GP is prescribing
>60 mg of oxycontin daily, along with amitriptylene, and effexor (the
>latter for depression). I have tried neurontin with no success. I am
>unhappy taking oxycontin and concerned about addiction (and also my GP
>is unhappy prescribing the oxycontin for the same reason). But, what to
>do instead? No one ever talked to me about adhesions, and certainly
>didn't tell me about the chance that they could cause so very much pain.
>It destroyed my marriage (I am divorced now, living in a different
>country than my ex-husband), is systematically working towards
>destroying my job, and has left me financially bankrupt. It (the pain)
>has just permeated every aspect of my life, even my dreams at night, in
>my dreams I am experiencing this excruciating pain. There just seems to
>be no relief, even with the oxycontin. If anyone here has any
>suggestions that I might share with my doctor I would appreciate it, I
>am ready to try (almost) anything.
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