Re: Adhesions-I CAN'T DO THIS ANYMORE!
From: Ann (dolphins@hemc.net)
Wed Nov 8 19:55:35 2006
At Fri, 6 Oct 2006, Kelly wrote:
>
>My name is Kelly I have had severe pelvic adhesions for 10 years and I
>just can't do this anymore. I have done EVERYTHING some of these crazy
>doctors have asked. I have been thin, I have been fat even more
>depressing. I have not worked in 1 year my pain is unbearable and
>doctors just think I am addicted to pain meds or I just need to learn to
>"suck up the pain and go on" yes this was a quote from a DOCTOR! I have
>had gastroenterologist do their work up-no findings as in no IBS,
>colitis etc. I have done all the diets changing what I eat when I eat
>the whole nine yards. I have had countless surgeries with about 3
>months relief then back to the same. With these surgeries I have come
>home with a catheter several time due to the doctor cutting through my
>bladder-dont get me wrong I don't blame my doctor for that-NOTHING IS IN
>THE RIGHT PLACE WHEN HE GOES IN!
>
>I do not know how to do this anymore! Not only am I suffering my whole
>family is as well> Bless my husbands soul I do not know how or why he is
>even still married to me-I would not want to be married to me! My
>children (now in college) ask everytime I talk to them which is everyday
>"how do you feel Mom?" it is always the same answer. Now I just say "I
>am fine" it is just easier on me,my kids, my family and the few friends
>I have left.
>
>I do not know what made me write this today..I guess I was online
>researching another doctor that my doctor wants me to see and I found
>this site, read Dr. Wiseman's info and this is may be the only doctor
>WHO GETS IT! But I think it is too late for me I just can't do this
>anymore.
>
>My prayers and thoughts are with everyone who is also struggling with
>the Adhesion Monster as I call it I hope you find success where I have
>failed.
>
>--
>Kelly
>
Kelly,
My thoughts are with you and I do understand believe me. Once upon a
time I was a full time nurse & my favorite hobby was travel and I can't
do either anymore between pain (other symptoms) and the lack of money!
Adhesions have taken away so many things from my life. I too am married
and often wonder why my husband bothers....Neither him nor I had any
idea what we were in for. My last hospitalization was 15 days for GI
obstruction and he was next to me the entire time, I say this to
emphasize what we need to be happy for. MANY times I just want to pull
the covers over my head and say the hell with it but you can't. This is
often difficult but we have to find a doctor that is willing to listen,
take our health care into our hands and fight for the respect we
deserve. Believe me many of us have been told the pain is in our heads
many times. I am not saying therapy may not be a good option for you,
we all need help at times but a person knows when they are in pain!! I
found a site today , the Institute for Traditional Medicine in Portland
Oregon and they have an extensive article about adhesions AND the use of
Chinese medicine - herbs postoperatively etc. It was very interesting
reading, you may want to check the site out. (I found it by accident
really, I went into google and listed abdominal adhesions and it was the
second listing.) I do not know where you live but search out a doctor
specializing in Internal Medicine (if you haven't) and if you have keep
searching and bring back up material with you if necessary. Remember it
is your body!! Some women say they have better luck with female doctors
understanding but I have had better luck with male MD's, my main MD and
GYN are both male and gotten me through many difficult years due to the
adhesions so don't count out the men just because of their gender. Good
luck and feel free vent anytime, it's not a bad thing.
Ann (Georgia)