SSI Disability
From: IAS Admin (tracy.joslin@adhesions.org)
Tue Jun 26 23:01:41 2007
From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
Jeanette Chamberlain
Sent: Tuesday, June 26, 2007 11:55 AM
Subject: Re: SSI Disability
Hi Alex and all my fellow sufferers,
Alex, may I ask how much you receive for SSI Disability?
I lost my job this last February because of my AARD/CAPPS though they would
never admit that this was the reason I was laid off. I was devastated! I
have been struggling with major depression issues as well as the
adhesions/pain/meds/nausea/major constipation due to possible partial
blockages in my intestines. My poor husband doesn't understand why I don't
just jump right back into the job market. Why...here is a normal day for me:
Every morning I wake up with varying degrees of nausea. I take enough pills
to constitute a meal. Neurontin and Morphine Sulfate for pain, Cymbalta and
Wellbutrin for depression, Stool softener, vegetable laxative and metamucil
for constipation, and Reglan for nausea. I get up and start moving around
and the two sites where I am sure I have new adhesions start hurting. If I
do anything...make the bed, do laundry, anything - I start sweating so much
that my clothing becomes soaked through. Plus if I do anything strenuous my
lower back starts hurting too and the adhesion sites start spiking with
pain. Lately I have had to resort to taking several doses of Miralax to get
things soft enough in there just to have a bowel movement. I can tell when
solid matter is trying to pass through the two suspected partial blockage
sites because it really hurts there. I have even had to resort to taking
Citrate of Magnesia a couple of times after going 10 to 15 days without
having a bowel movement. When I finally do "go" it is usually painful. I
usually can't eat anything until after 12 noon or so when my nausea finally
subsides to manageable levels. I had an IQ of 150 but who knows what damage
the long term use of the pain meds have reduced me to. They dull my brain so
much that I can't stand myself anymore but if I try to cut back on them I
get really sick to my stomach and dizzy. If I don't take my 2:00 pm
neurontin my nausea gets worse. There is a small time period during the
early afternoon where I can actually function enough to work on my doll
store, work on my resume and portfolio, look for a job, do household tasks,
etc. If I push myself too hard then I have to go lay down and recover from
the pain spiking, nausea and dizziness. I often go to bed without dinner
after taking another battery of pills.
I try to get things done but I can't help but feel "Whats the use". I have
good days where I am only a little sick and in pain and bad days where I am
a useless lump of flesh and bones. When I was going to work I would have
some good days where I got things done despite the pain and the meds and
then there were a lot of really bad days where I felt so awful that I
couldn't drive home so I just sat at my desk and suffered. I would rather
suffer at home but our finances have been hit hard by my being laid off so I
have to find a job soon. I wish my doll store was more lucrative but I just
can't seem to get things done in a timely enough manner so that it would
bring in enough money to keep us going. That's why I want to know how much
SSDI would be. Maybe if I could suppliment my doll store income with the
SSDI it would be enough.
I do have some bright spots in my life. Even though he doesn't really
understand what I am going through, my husband is very loving and
supportive. I know he gets really frustrated too and it hurts him to see me
sick and in pain all the time. My illness has changed him though, just as it
has changed me. We don't laugh very much anymore. We are always in a high
degree of stress and tend to see the negative much more often than the
positive. It doesn't make for a very happy household. I often can't help to
think that he would be so much better off without me.
My son lives with us right now. He has a good heart and is also loving and
supportive to me. He does add a degree of stress to the situation however,
because he needs to find a job and go back to school, which was the original
plan when he moved in. He had a job but was laid off due to some
major dissagreements with his manager. We are all struggling with clinical
depression. Since he doesn't have a job or unemployment coming in, he does
most of the chores around the house to pay for his room and board. That does
lift some of the burden for keeping the house from becoming totally filthy.
I used to keep a clean and tidy house before this illness hit.
We have two Corgi's doggies who just brighten up our lives so much. They are
little fuzzbundles of unconditional love! I am so thankful that we brought
them into our lives.
My dolls give me a lot of happiness when I actually have the strength to
work with them. I get so frustrated when I want to do so much with them but
then I feel too awful to do anything at all.
I am so tired of it all. I sleep too much because when I am asleep I escape
the pain and nausea and hopelessness of my situation. I am sorry that this
is such a long missive but I haven't posted for a long time and I guess that
I have a lot of issues I needed to vent. Mea Culpa! Thank you for
"listening". It helps me hang on by the thin thread still attaching me to
life.
Jeanette
> Date: Mon, 25 Jun 2007 20:16:43 -0500
> From: tracy.joslin@adhesions.org
> To: adhesions@dns.obgyn.net
> Subject: SSI Disability
>
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of
> Alex Bromberg
> Sent: Monday, June 18, 2007 2:03 PM
> Subject: SSI Disability
>
> Hi Denise, I am on SSI Disability.I live in Georgia and believe that it is
> done the same in all states.I went to SSI appointed psychologist too.I had
a
> lawyer which,in my opinion made a major difference.I was turned down twice
> when I sent the information on my own.I then had my case reviewed with a
> social security judge in the Federal Courthouse.I was awarded SSI and was
> paid for all the time back to when I first applied for it.It took over 2
1/2
> years.I can tell you more if you like. Good Luck, Alex
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