ATTENTION KIM, HI, MY NAME IS ANGELA DIAL..I WAS ON THE ADHESION QUILT FOR MANY YEARS THEN TOOK MY STORY DOWN BUT ABOUT TO PUT IT BACK UP. I AM 42 YEARS OLD AND HAVE BEEN THROUGH ENDOMETREOSIS AND ADHESIONS SINCE THE AGE OF 17 YEARS OLD. THE REASON FIXING TO PUT MY STORY BACK UP IS BECAUSE I JUST GOT OUT OF THE HOSPITAL ONE MORE TIME OF A STAY OF 3 WEEKS,.HAD A PARTIAL BOWEL OBSTRUCTION, AGAIN ONCE MORE.HAVE ALREADY HAD 2 ONE SURGERY LASTED 7 HOURS, AND THIS SURGEON WAS LIKE OK ILL DO IT BUT I KNOW ITS ALL IN YOUR HEAD CAUSE ALL TESTS OF COURSE COME OUT NEGATIVE DUE TO ADHESIONS DO NOT SHOW UP ON FILM, WELL NEEDLESS TO SAY AFTER 7 HOURS OF SURGERY THIS SURGEON OPOLOGIZED TO ME AND SAID HE DIDNT EVEN KNOW HOW I WAS ABLE TO DO ANYTHING.HE HAD TO TAKE 4 FEET OF MY BOWEL AND A SECTION OF MY COLON, THOSE 3-4 FEET OF BOWEL WERE JUST LAYING INSIDE ME STRANGULATED DEAD FROM ADHESIONS AND NOT EVEN WORKING AT ALL SERVING NO PURPOSE, AND COULD HAVE LEFT ME DEAD, FROM POISONING LATER IF I WOULDNT HAD BEEN SO PERSISTANT, I WAS IN THE HOSPITAL FOR 1 MONTH AND DIDNT HAVE TO HAVE A COLOSTOMY, BUT ONE DAY PROBALLY WILL
WELL THE REASON IM ABOUT TO PUT MY STORY BACK UP IS BECAUSE THIS WAS IN THE YEAR OF 2000.WELL BABY GIRL I JUST GOT OUT OF THE HOSPITAL ONCE AGAIN KNOWING WHATS WRONG HAVING DRS THAT AGREE, HAVING A PARTIAL BOWEL OBSTRUCTION, AND HAD A TERRIBLE INFECTION,..NEEDLESS TO SAY ALL THEY DID IS KEEP ME ON PAIN MEDS FOR 2 WEEKS AND CALLED IN MANY SURGEONS ALL OF WHO TO SAY WOULD NOT TOUCH ME, SO SCARED OF GETTING A LAW SUIT.....SAY PEOPLE WITH ADHESIONS ARE THEIR BIGGEST NIGHT MARE, AND THEY DONT WONT THEIR NAME ON A SURGERY GONE BAD, I WAS IN SOOOOOOOOOOO MUCH PAIN NO BM FOR 28 DAYS LOOKED NINE MONTHS PREGNANT AND IM A SIZE 6.WELL I KNOW ALL THIS TO WELL I HAVE HAD TO DATE 14 PLUS SURGERIES 14 MAJOR AND THE REST LAPROSCOPICS...AND NOW AFTER THEY BUTCHERED ME UP FOR YEARS NO ONE WILL TOUCH ME, AND I KNOW HOW YOU FEEL LAST YEAR I FEEL INTO A COMA FOR 4 WEEKS, IF MY HUSBAND WOULDNT OF CAME HOME WHEN HE DID ID BE DEAD, AND SOMETIMES WISH GOD WOULD HAD WENT AHEAD AND TOOK ME BUT HE DIDNT HE LET ME LIVE FOR SOME REASON, I WONDER WHY???? BECAUSE, I AM MISERABLE I LIVE LIFE AROUND MY PAIN AND SICKNESS, YES IT PUTS A MAJOR STRAIN ON YOUR FAMILY LIFE , MARRIAGE, EVERYTHING..MY HUSBAND IS WONDERFUL, BUT STILL HES ONLY HUMAN AND I KNOW HOW IT MUST FEEL TO HAVE SOMEONE YOU THOUGHT YOU WERE GONNA SPEND YOUR LIFE WITH AND BE HAPPY....WELL HE TRIES TO ACT LIKE ITS OK BUT I KNOW ITS NOT ITS VERY ROUGH, AND I HAVE EVEN WANTED TO LEAVE AND FREE HIM OF ME, YA KNOW????????????
ANYWAYS DUE TO ADHESIONS I ALSO HAVE MAJOR PROBLEMS, I DEVELOPED MULTIPLE SCLEROSIS, TO ADD TO IT ALL, I HAVE NERVE DAMAGE TO MY BLADDER DUE TO ADHESIONS, MEANING I HAVE TO SELF CATHERIDIZE, MY BOWELS DONT MOVE AT ALL I HAVE TO DO FECAL IMPATIONS AND ENEMAS ALL THE TIME DUE TO NERVE DAMAGE TO MY BOWELS DUE TO WHAT " ADHESIONS", ANYWAYS ALL THE DRS ARE QUICK TO SAY YOU HAVE THIS DUE TO ADHESIONS,....BUT WHEN IT COMES TIME FOR A SURGEON, NO ONE WILL TOUCH ME ANYMORE AT ALL...LIKE I SAY I JUST GOT OUT OF THE HOSPITAL FOR A 2 WEEK STAY OF DOING TEST AFTER TEST, AND THEM KNOWING I HAD A PARTIAL BLOCKAGE, BUT NO ONE WANTS TO TOUCH ME EVEN IF I SIGN A WAVER SAYING I KNOW THESE THINGS WILL GROW BACK BUT IF IT GIVES ME 1 YEAR SEMI PAIN FREE CAUSE YOULL NEVER BE PAIN FREE WHEN YOU HAVE SEVERE DENSE CONCRETE ADHESIONS, I AM ON PAIN MANAGEMENT FROM A WONDERFUL DR. AND IT SUCKS BUT ILL HAVE TO TAKE THESE STRONG MEDS TILL THE DAY I DIE TO BE ABLE TO COPE AND LIVE A NORMAL AS POSSIBLE LIFE FOR ME AS CAN..............................I AM ON AVINZA WHICH IS A TIME RELEASED MORPHINE PILL I TAKE 3 90 MILLIGRAM TABLETS IN THE MORNING, FOR BREAK THOROUGH PAIN I TAKE 2 10 MILLIGRAM TABLETS OF LORTAB, I ALSO TAKE DILUAD FOR IF THE LORTAB DOESNT DO IT, OTHER MES IM ON FROM MY PAIN DR WELL HERES THE LIST OF WHAT AND WHY, AVINZA 90 MILLIGRAMS 3 CAPSULES IN MORNING- THIS IS THE MAIN PAIN MED THE STRONGEST OPOID THAT WORKS SOMEWHAT FOR ME LORTAB 10 MILLIGRAMS 2 TABLETS FOR BREAK THROUGH PAIN DILUAD LOWER DOSE FOR WHEN THE LORTAB DONT WORK THIS IS A NEW ADDITION I TAKE NEXIUM FOR MY STOMACH PROTONIX FOR MY STOMACH VALIUM 5 MILLIGRAMS FOR BOWEL SPASMS ZANAFLEX THIS IS ONE OF MY MS MEDICATIONS BUT....... MY PAIN DR FOUND OUT THROUGH ME THAT IT WORKS FOR PAIN AS WELL AND KNOW GIVES IT TO ALOT OF HIS PATIENTS NOW IT IS REALLY A MUSCLE RELAXANT / PAIN PILL FOR MS FOR THE RIGID SPASMS MS PATIENTS GET, AND IS A VERY GOOD DRUG FOR PAIN WITH ADDITIONAL MEDS, I TAKE ZANAFLEX 4 MILLIGRAM 1-2 TABLETS AS NEEDED I FIND THAT IF I TAKE THEM BEFORE BED THEY HELP ME SLEEP, PLUS SEEMS TO BE MORE THERAPUTIC, LIKE FOR THE NEXT DAY........CAUSE AT FIRST THEY WILL MAKE YOU SLEEPY, NOW MY BODY IS USE TO THEM BUT THEY DO STILL WORK AND I HAVE BEEN ON EM FOR 6 YEARS.. PHENERGAN 25 MILLIGRAMS....I TAKE PHENERGAN BECAUSE DUE TO THE EXSTENSIVE ADHESIONS I HAVE ON MY BOWELS I HAVE ALOT OF NAUSEA, ALONG WITH BOWEL SPASMS, AND THIS HELPS AS WELL. ALSO AT TIMES VERY THERAPUTIC WHEN TAKEN ALONG WITH YOUR BREAKTHROUGH MEDS,.....THEY JUST GO HAND IN HAND..........
ANYWAYS THESE ARE THE MEDS I AM ON AND FOUND THEY WORK FOR ME,..I HAVE BEEN ON ALMOST EVERY DRUG KNOWN TO MANKIND I WILL MENTION THEM TO YOU AND THESE, AND WHY I DONT TAKE THEM..JUST SO YOULL BE AWARE,.AND IM NOT A DR YET I FEEL AT TIMES IM ALOT SMARTER THAN ALL OF THEM DUE TO LIVING IT SO TO SAY.........LOL, BUT REALLY THEY SENT ME TO A PSHYCIATRIST, PHSYCOLOGIST, THEAPIST, AND ALL OF THEM SAID "YOU DONT NEED US, HECK YOU SHOULD HAVE WENT TO SCHOOL FOR A PHSYCOLOGIST" I LAUGH AND SAY," ITS JUST BY TRIAL AND ERROR AND LIVING IT AND ALL THE RESEARCH ONE DOES, AND I HAVE DONE ALOT TO TRY TO HELP AND BETTER MYSELF AND MY QUALITY OF LIFE,AND BY DOING THAT , YOU JUST LEARN ALOT.....I WENT FROM NOT KNOWING NOTHING ABOUT A COMPUTER TO WHEN IT GOT BAD GOT A COMPUTER, AND TAUGHT MYSELF IT ALL...............................WHEN PAIN GETS THIS BAD,................................YOU WILL DO WHATEVER IT TAKES TO TRY TO FIND A CURE, AND THERE ISNT ONE..................................................I THINK ADHESIONS, SHOULD BE TREATED JUST LIKE CANCER, AIDS, AND ALL DIEASES WITH "NO CURE".............................CAUSE WHEN A PERSON HAS CANCER THEY HAVE DRS THAT WILL HELP, AND SAME WITH THE REST BUT WHEN A PERSON HAS......................."ADHESIONS"...................OH MY GOODNESS THEY ALL RUN LIKE YOU HAVE THE PLAGUE..............................AND LIKE YOUR A NIGHTMARE..........................................THIS IS A VERY SERIOUS DIEASE, AND WE HAVE TRIED TO GET IT NOTICED, I HAVE WRITTEN OPREA, MONTEL WILLIAMS, AND TOLD THEM ABOUT ADHESIONS MY HORRIBLE STORIES TOLD THEM ABOUT THIS SUPPORT GROUP AND IF THEYD JUST GO ON AND READ IT , STILL NO RESPONSE, WHICH I REALLY FELT MONTEL WILLIAMS WOULD RESPOND, THATS BEEN 5 YEARS AGO, IM BOUT TO TRY AGAIN CAUSE THIS HOSPITAL TRIP, HAS ME LEFT WITH A PARTIAL BOWEL OBSTRUCTION THAT CAN KILL YOU BUT NO ONE WILL TOUCH ME, ADHESIONS DONT SHOW UP IN TESTS, ON FILMS, THE ONLY WAY YOU CAN REALLY SEE THEM IS BY LAPROSCOPIC OR LAPROTOMY STYLE SURGERY OR EXPLRATORY, WELL I JUST WANTED TO WRITE YOU BACK BECAUSE ITS BEEN A WHILE SINCE I HAVE TALKED TO ANYONE ON HERE DUE TO MY HEALTH THE PAST YEAR,...BUT I AM BACK WITH A PASSION, AND I FEEL FOR ALL OF YOU, CAUSE I HAVE BEEN BATTLING THIS AWFUL DIEASE FOR 20 SOMETHING YEARS AND HAVE BEEN NEAR DEATH 3 TIMES, AND WONDER WHY GOD CHOSE TO KEEP ME, AND I KNOW HE HAS HIS REASONS, AND MAYBE THIS IS ONE..........TO HELP OTHERS.....ADHESIONS HAVE LEFT ME WITH KIDNEY DAMAGE, BOWEL DAMAGE, MULTIPLE SCLEROSIS,KIDNEY DIEASE, KIDNEY STONES, GALLBLADDER DIEASE, BLADDER DIEASE, DUE TO ADHESIONS ALL OVER THESE ORGANS IMPARRING THEM TO WORK PROPERLY.
SO TO ALL OF MY OLD FRIENDS WHO I USE TO TALK TOO, IM BACK, ITS ANGIE FROM HOUSTON, TEXAS, IF YOU REMEMBER ME PLEASE WRITE ME AND LET ME KNOW IF YOU ARE OK, IM GONNA POST MY STORY AGAIN IF THE QUILT IS STILL UP, I FEEL FOR YOU ALL, BECAUSE INSTEAD OF THE MEDICAL FEILD GETTING BETTER ABOUT THIS.ITS GOTTEN NOTHING BUT "WORSE" AS FAR AS MY EXPERIANCE. I JUST WAS RELEASED FROM THE HOSPITAL LAST NIGHT WITH A PARTIAL BOWEL OBSRTUCTION KNOWN AND PROVED WITH TESTS, WAS IN FOR 2 WEEKS WITH DRS TRYING TO HELP ME SENDING IN SURGEON AFTER SURGEON, WITH ALL THEM SAYING THEY WOULD NOT RUIN THEIR NAME IM A HIGH RISK PATIENT???? IT JUST MAKES YOU WONDER, I MEAN I TOLD THEM ID SIGN A WAVER SAYING I KNOW THEYS GROW BACK AND WOULDNT HOLD THEM LIABLE BUT NOPE THIS WAS ABOUT 7 SURGEONS SAYING NO WILL NOT PUT MY NAME ON YOU....SO THINGS ARE STILL HORRIBLE FOR ADHESION SUFFERS....HOPE ALL ARE DOING WELL IM STILL HERE AND HANGIN ON. BUT VERY IRRITATED AND tIRED,
HOPE ALL OF YOU ARE OKAY WHICH I KNOW WE ARE NEVER OK, WE ARE JUST MAKIN IT. WISH YOU ALL THE BEST. ANGIE, FROM HOUSTON
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