Good News/Bad News

From: IAS Admin (tracy.joslin@adhesions.org)
Thu Jan 17 02:16:20 2008


-----Original Message----- From: rickandsharon1@charter.net [mailto:rickandsharon1@charter.net] Sent: Friday, January 11, 2008 1:16 PM To: adhesions@adhesions.org Subject: Re: Good News/Bad News

I have been reading emails about the pain medication you are taking and I for years have been going about my days and going to work everyday trying very hard to deal with the pain I have everyday. Not one doctor wll give me anything for pain, they say it will only make the bowels already not working, worse. and I am about to go crazy with pain. My surgeon in Florida has now retired and no other Doctor will do surgery, I feel like one big liability...

S > Sender: dgold74@optonline.net (Deborah Goldberger) > Subject: Re: Good News/Bad News
>
> I can definitely relate! I also have endometriosis (in addition to
> adhesions) and have had multiple surgeries. I don't know how helpful
> this will be but, in regard to your questions about disability, I would
> first suggest getting a lawyer who specializes in disability, as others
> have mentioned. I did that and it saved me a lot of headaches! The only
> down side is that about $5,300 of my retroactive payment went to him but
> I thought it was well worth it! It's very helpful that you have all of
> the documentation you mentioned. As another member of the board said,
> it's not so much your illness but how that illness interferes with your
> ability to work that matters. For example, for my application, we
> stated that my medications (mainly the oxycodone) impaired my cognitive
> functioning, making it impossible for me to continue doing my job. It's
> important to try to give every example of why this horrible disease
> prevents you from doing your job. Someone also once told me that it
> helps to include something saying you need bed rest (or couch rest I
> guess!) throughout the day because of the pain - only if that's true
> obviously! And I think it is helpful to try to give an idea of what the
> day is like for you - that you're in constant pain, cannot do basic
> household tasks, etc. A good disability lawyer should know what's
> important to include. If you do decide to go with an attorney, don't be
> afraid to ask questions about his/her success rate, how long the entire
> process usually takes, how often a hearing is required. You have every
> right to ask those things. I hope this is at least a little helpful!
> Having just gone through the process, I know it can be frustrating and
> upsetting at times but, hopefully, in the end it will be worth it! Good
> luck!
> Debbie (NY)
>
> At Mon, 24 Dec 2007, IAS Admin wrote:
> >
> >From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of > >Booboolrb@aol.com
> >Sent: Monday, December 24, 2007 3:25 AM
> >Subject: Re: Good News/Bad News
> >
> >I too have been suffering for years and getting worse.  I was just
released > >from U of M in Ann Arbor.  The CT scans do not come back normal but the
> >barium study does show my bowels are functioning, even though I have to
> >drink Miralax 3 times a day and still have to use a suppository to get
> >anything moving and then it is pure liquid!!  I have been told that I may
> >end up on disability.  I am now on Oxycodon to help ease some of the
> >pain. 
>


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