Re: SprayGel Hope

From: Kelly (klmurray_61@msn.com)
Fri Jun 20 20:46:00 2008


Donna, I do think that we need to have Spray Gel here but everyone needs to know that it isn't the cure-all for everyone. I had it and have adhesions again.

Maybe they would have came back worse without the spray gel I don't know. I do know that I spent a lot of money and had my hopes up so high and now I am

fighting them again. I wish you luck in Germany.

-------------------------------------------------- From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org> -------------------------------------------------- Sent: Monday, June 02, 2008 7:03 PM

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To: "Multiple recipients of list ADHESIONS" <adhesions@mail.obgyn.net>
Subject: SprayGel Hope

> Sender: "Donna Johansen" <donnajohansen@telus.net> > Subject: RE: SprayGel Hope > > Hi Debbie, > The more I hear from people who suffer from this the more I think all > doctors need to be tied by their noses and drug to Germany to see what is > going on there. What the hell is wrong here? I have a theory. This is > for > the most part a woman's issue. It isn't so very long ago that breast > cancer > wasn't taken seriously. A woman's issue. > I am scheduled for knee replacement in the summer but it has taken me a > long > time and in the end I had to insist. In addition to the adhesion > nightmare > I am dealing with end stage arthritis throughout my spine and knees. A > study in my area (Vancouver, BC) found that men were taken more seriously > and given their needed replacement before women were. Women were and are > made to suffer more. > > Debbie, I have started writing to the local papers (no success getting > them > published yet) as this needs to be heard about. We need to stand up for > others so they can get the help too. I am leaving here for Germany on the > 6th of June to the great thanks of my family. It wasn't a piece of cake > for > them as they had to mortgage a house. The fact they would do that for me > just makes me stand in awe of them all. But, what about those who can't > do > this with family funding? I know that should I be left on my own much > longer I would go downhill. I have gone one year with very little solid > food. The nutritional drink is my buddy but most of the time I cannot > even > take that. I am vomiting violently at any hour of the day and night. > Sometimes nothing comes out but the heaves go on anyway. I made rhubarb > crisp this weekend as I thought my family would enjoy it. I couldn't > resist > and had a few spoonfuls. Just craving food is such a rare thing for me. > I > was sick so sick that I spent the night regretting every mouthful. > > All the tests have turned up negative but I wonder why I cannot have a > regular bowel movement? My doctor says "you sure have a slow bowel"!!! I > have lost over 65 lbs in one year and the barium they forced me to have is > still sitting in my bowel. That was over 6 weeks ago! > > They know I have an adhesion problem as they went in to see, in March. My > adhesions have melded with my bowel, urethra, liver, and abdominal > sidewall. > It was so bad that the OB_GYN wouldn't attempt it. But ever since then > they > tell me I have to live with it and everything I tell them they don't > attribute it to adhesions - it's something else! The thing that really > bugs > me to hell is that they won't find someone else who can do it so the work > can be paid for. >ms/


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