Hi Alta, I had the same problem. I had one ovary removed then a total hysterectomy including the other ovary, then about 4 months later, was in pain and thought I must be crazy. Went to my Dr's who sent me to the hospital, and they did a CT which showed an Ovary with a cyst on it. I thought the Doc's had the wrong person!! It is called ovarian remnant syndrome - I had had stage 4 endomitriosis and some how the dr's had left part of my ovary behind and it redeveloped with a cyst. I cannot ever have an estrogen replacement medication because the fear is that it will stimulate the Endo and cause more problems. So, if you are on an estrogen replacement med, I would talk to your Dr. about stopping that . I am so sorry you have to go through it again, will they be doing surgery?? Good luck!! Jenny Kummer ps. feel free to email me if you would like!! kummer_jennifer1@hotmail.com
> Date: Mon, 1 Sep 2008 19:13:57 -0500
Subject: Is there any help for me?
>
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf
Of
> Alta Costew
> Sent: Monday, September 01, 2008 4:54 PM
> Subject: Re: Is there any help for me?
>
> Hi all,
>
> What the heck is the plan for me??? I spent 6 hours at the ER yesterday
> because I could not control the pain on my left side. I figured it was
just
> the adhesions acting up because I have been really active. So I have a CT
> scan only to find out that my left ovary has grown back AGAIN. The ER doc
> told me I had a 9.7 cm cyst on my ovary. I said that is impossible
becuase
> I had a total hysterectomy. He said because of my age they probably left
> the ovaries. I replied that my left ovary has been taken, twice because
it
> grew back already. I was reasurred that the last doctor got the whole
> thing. He said it didn't look like it because it's back.
>
> Thanks for listening to my rant. Hope everyone had a great holiday.
> Alta
>
>> ----- Original Message ----
> From: IAS Admin (Tracy) <tracy.joslin@adhesions.org>
> To: Multiple recipients of list ADHESIONS <adhesions@mail.obgyn.net>
> Sent: Saturday, August 30, 2008 10:18:38 PM
> Subject: Is there any help for me?
>
> Sender: racostew@yahoo.com (Alta)
> Subject: Re: Is there any help for me?
>
> Hi,
>
> I had the same thing happen and it had cyst growing on it. Because of
> all the adhesions parts of the ovary can be caught or hidden in the
> adhesions. Even if the doctor thinks he has all the ovary he may not.
> The ovary can grow back making it viable again. (We checked out doing
> IVF again but did not.) I had doctors think I was crazy because I kept
> saying it felt the same way it did when I had cysts. You are lucky that
> the doctor found it. I know what you mean about ER and doctors. We are
> all just seeking relief and answers.
>
> Good luck
> Alta