It may be too late, but the person who would do better for getting out information out is Montel Williams. After dealing with his MS I think he would understand better about what we are going thru. Good luck. I will be a part of any thing that will help. In a message dated 08/30/08 22:14:38 Eastern Daylight Time, tracy.joslin@adhesions.org writes: Sender: leenoga@cfl.rr.com (Ms Lee) Subject: Re: Will this never end?
I have gone on Oprah's website for years trying to get them to put a face with the ARD name. I gave them other websites incl this one to read about the pain and isolation of our disease. I approached "O" Mag as well for a possible article.
Nothing, Nada...I gave up.
>Start composing a letter to Oprah with a brief history about yourself and
the lack of medical help and education. I will try to get an address or
e-mail we can send them to and let everyone know what it is.