I still would like to do more. If anyone has ideas, please share. I've even thought of writing our Surgeon General to see if I can get an answer out of him (or her).
Caryn R
>-------------- Original message --------------
From: "IAS Admin (Tracy)" <tracy.joslin@adhesions.org>
> From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On Behalf Of
> Marlene Wheeler
> Sent: Friday, August 15, 2008 9:42 PM
> To: tracy.joslin@adhesions.org
> Subject: RE: Will this never end?
>
> Sounds like a good Idea. Keep in touch.
>
> ________________________________________
> Date: Sun, 27 Jul 2008 17:54:02 -0500
> ________________________________________
> From: jmoore4877@aol.com
> To: adhesions@mail.obgyn.net
> Subject: Re: Will this never end?
>
> I am in. Let me know what to do!!!
>
> -----Original Message-----
> From: carynlruzich@comcast.net
> To: Multiple recipients of list ADHESIONS
> Sent: Sat, 26 Jul 2008 10:24 pm
> Subject: Re: Will this never end?
> I think that's a great idea! I'll write Oprah because it's going to take a
> high profile celeb or show to do this disorder justice. How about 20/20 or
> one those national news shows.
>
> Until I found this site a few months ago, I really thought I was pretty much
> alone. My mother had a lot of problems with adhesions from several bowel
> surgeries, but I thought that may just have been hereditary.
>
> Now I know it's a much bigger issue and the number of people suffering is
> unacceptable. Not only does our quality of life suck, but it hurts our
> loved ones, make life so much harder for us to function in the world and
> medicine has little to no help for us. And I think it's time something be
> done about it.
>
> So, I'll do my part and write Oprah and maybe look into ABC or NBC network
> news shows and write them as well. I'll reference this support group and
> hopefully more of you will follow through and do the same.
>
> When I was younger (I'm 47 now and have been suffering since my teens) the
> only reason I even knew anything about adhesions was because my mother
> suffered from them and had many surgeries just for adhesions. But if you've
> never known anyone who has suffered from these horrible buggers you would
> think you're dying at times. I knew all about them and I still get feeling
> that way when they get really bad.
>
> So let's do! Let's start a campaign to get this disorder recognized and who
> knows maybe even make change in the medical community. I, too, have had
> ignorant doctors tell me adhesions don't cause pain and it was all I could
> do to restrain myself. Obviously these doctors shouldn't be practicing this
> kind of medicine.
>
> I am also disturbed by the medical communities laze farre attitude about
> adhesions. I know for a fact that treatment for adhesions is extremely
> costly and not as rare as one would think. So why doesn't medicine
> recognize the problem and put some research dollars into finding a way to
> halt their growth? If we really want to control our medical costs, coming
> up with an effective adhesion treatment would save 100's of millions of
> dollars a year.
>
> I'll work on a letter in the next week and if anyone is interested, I'll
> send them my letter. I'm sure there's a whole lot more we can do and like
> Kathi said, we need to do it together to be heard.
>
> Let me know what you think.
>
> Caryn
>
>> -------------- Original message --------------
> From: krdfld@aol.com
> I've
> tried writing to Oprah and Tyra to get our messaged for help out there.
> Maybe if we all wrote to them they'd take us seriously.
> Kathi
>