>----- Original Message -----
From: Kelly Murray in To: Multiple recipients of list ADHESIONS
Sent: Sun, 18 Jan 2009 16:45:15 -0500 (EST)
Subject: Re: Germany for adhesion surgery with Spray Gel
you have Ulcerative Colitus AND adhesions? How terrible. My
husband had Ulcerative Colitus for years and finally had to get his colon
out.
Last time I had a colonoscopy, it was painful. (They told me that I was
fighting them) Of course the Gasteronologist put in her notes that I was
fighting because I had anxiety. I don't think so.
Good luck
>----- Original Message -----
From: wendy hudson
To: Multiple recipients of list
ADHESIONS
Sent: Sunday, January 18, 2009 1:55
PM
Subject: Re: Germany for adhesion surgery
with Spray Gel
Hi , I went to see the Gasterentologist and I now have
inflammatory bowel disease (Ulcerative colitis ) I ma going
to have a Colonoscopy and having the adhesions does not make things
any easier...oh the pain........no cure either just meds...
Date: Sat, 17 Jan 2009 23:50:55 -0600 From: klmurray_61@msn.com To:
adhesions@mail.obgyn.net Subject: Re: Germany for adhesion surgery with
Spray Gel
My bladder leaks because of the adhesions. I also have adhesions on
bladder, bowel and intestines. Had them on ovaries. sounds like we
pretty much have them in the same place.
>----- Original Message -----
From: wendy
hudson
To: Multiple recipients of list
ADHESIONS
Sent: Tuesday, January 06, 2009 4:30
AM
Subject: Re: Germany for adhesion
surgery with Spray Gel
Because after every meal ( or even a snack)I have sever
bad diahoerra , and sometimes I cannot hold it....the pain grips me like I
am in labour , I get panic attacks... and they are going to find out if its
connected to my adhesions ,I have adhesions on my bladder , bowels ,
intestines and my one and only ovary...I use to go swimming every day to
ease the adhesion pain..........but I started to leak from my bowels into
the water so had to stop...The adhesions tug at my nerve endings causing the
panic attacks... I told my gp if if I have to go on like this for another 20
odd years or more , then I dont want to be here........( hence the
diazepam).....talk about the hidden illness....... yes thankyou kelly ,you
are a darlin'.................much love Wendy xxx
Date: Mon, 5 Jan 2009 22:54:56 -0600 From: klmurray_61@msn.com To:
adhesions@mail.obgyn.net Subject: Re: Germany for adhesion surgery with
Spray Gel
Hang in there. Why are you going to a Gasterentologist if you
don't mind me asking?
I know it is very depressing to have this chronic pain and
sickness. I had so many high hopes of getting cured when I got
surgeries from Drs. that specialize in it.
I have horrible pain at night. I do know that exercise does
help. I have not gone to exercise in two weeks and I had worse pain
then when I go. Some of the exercises I can't do because of pain but I
sure feel better afterwards.
I watch my three year old granddaughter and I don't know what I would
do without her. Some days I feel so horrible that I don't want to
watch her but I know that if I didn't have her, I would be in bed a lot
which causes depression for me.
Please just know that you are not alone.
Kelly
>----- Original Message -----
From: wendy
hudson
To: Multiple recipients of list
ADHESIONS
Sent: Monday, January 05, 2009 3:05
AM
Subject: Re: Germany for adhesion
surgery with Spray Gel
What about us in the uk? we have national health , so our
surgeons go about things very very cheaply , I have suffered 22 years
now.after having PID endometriosis and 26 other gyno , operations.........
ectopic pregnancy etc...........I have just turned 50 ,I cannot hold my
new baby grandson , for fear of the pain and dropping him , when it grips
it grips.......I am going to see a gasterentologist on the 13th of this
month...I am very scared to have more surgery because I know It will form
more adhesions...talk about catch 22......I am now on diazepam because bad
depression has taken over , some days I feel like just ending everything,
untill I see my daughters faces and my grandsons..........
Date: Sun, 4 Jan 2009 13:47:05 -0600 From: klmurray_61@msn.com To:
adhesions@mail.obgyn.net Subject: Re: Germany for adhesion surgery with
Spray Gel
I went to Germany and had surgery with a different Dr. then
Robin. I called my insurance and asked them to cover it. They
said no. I persisted and they did pay for part of it. They
paid me not the Dr.
What you will pay in Germany is much less then what they charge in
the states.
You need to either go to the Drs. website if he has one and it should
give you info. or you need to email him.
>----- Original Message -----
From: Diana
To: Multiple recipients of list
ADHESIONS
Sent: Sunday, January 04, 2009
12:33 PM
Subject: Re: Germany for adhesion
surgery with Spray Gel
I am in a lot of pain ,please let me know what to do to
get the surgery, if there any payment plan. the arrangement needed to
get there. please e-mail back. -Diane
At Sun, 30 Jan
2005, Robin M wrote:
>
>Instead of writing to several
people, I thought
>just one post would be
better.
>
>Germany is using Spray Gel. I had
surgery
>in Duisburg, Germany with a great Dr. It
has
>now been over 19 months since my surgery there
>with
Spray Gel. At my 2nd look surgery, I was
>adhesion
free. I had been in bed 98% of the
>time for the 2 years
prior to my surgery. I
>was on 3 very strong pain
meds. With the skills
>of the surgeon and Spray Gel, I no
longer lie
>in bed praying, wishing, begging God to let
me
>die. I am living life now, enjoying the
smallest
>of things and some big things too.
>
>The
only thing is our insurance will not pay
>for it. Spray Gel
is still concidered
>experimental in the US because it is not
FDA
>approved. It is also expensive, but worth it.
>I
remember how worth it everytime I go some
>where, every time I
pick up and hold my Grand-baby.
>I remember how worth it is when I
can do even
> the smallest things, take a shower with out
more
>pain, getting dressed every day, sitting at
my
>computer for how ever long I want, going to see
>my
daughter at choir concerts, sitting in the
>living room with my
family watching TV. Things
>that 2 years ago I never thought
I would do again.
>
>If any of you would like the contact
information
>for this Dr or talk about my experience, or
just
>talk, email me. I know what you are
going
>through and I know that it helps having someone
>that
you can talk to that truely understands.
>robin
M
>
>At Tue, 25 Jan 2005, Laurie
wrote:
>>
>>Well, here I am again, trying to see just
how long I can wait before I
>>go back to the doctor with the
pressure I am feeling on my right side
>>again. It will
be 1 1/2 years since my last operation which I had to
>>have a
kidney removed due to adhesions. Not to bad I say. But
still
>>quite tiring. I can never get ahead financially
or at work. Right now
>>I am waiting to go permanent at a
company before I go to the doctor.
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