> ----- Original Message -----
From: WendyEbbe3@aol.com
To: Multiple recipients of list ADHESIONS
Sent: Friday, January 23, 2009 9:03 AM
Subject: Re: Just needing some support...
Donna, That is awesome advice on carrying the records with to new Dr's and having your Psych evaluation on top. I have a question for everyone. Has anyone else experienced high enzymes? I'm really not sure how serious it is, but my thoughts are that they are from all of the drugs I've been on. I won't bore you all with my story since it's posted and I've talked about it before like this. It's been 2 and a half years since I have had any kind of a life. I want my life back as I know every single person who battles ARD. If I ever come into money I would do whatever I could to get the medical research to find a cure for every person who suffers from ARD now and to prevent it from happening to anyone else. I always hope that my two girls will NEVER have to go through this. Especially since they are the only reasons I'm still here. I'm not sure how much longer I can hang in there. I also lost my job back in December but I am getting Long Term Disability and waiting to get an appointment to go before a Social Security Judge. It's a major financial problem for me on top of every thing else. I can't believe I have to pay $760 per month for medical insurance for myself and the two girls. So I know I'll be going further into debt. Ok I'm sorry I vented a little more than I intended. You are all fantastic and inspiring people. Wendy
========Original Message======== Subj: Re: Just needing some support... Date: 1/19/2009 12:30:21 P.M. Central Standard Time From: donnacboggs@comcast.net To: adhesions@mail.obgyn.net Sent on:
I, too, had to sit through a psych evaluation, again, before being given the "opportunity" to have narcotics prescribed for daily use. The results were very good, "extraordinarly well balanced emotionally and mentally", and I asked the Doc if I was being checked out to make sure that I was emotionally balanced enough to knowingly and willingly choose narcotic drug addiction as a solution to adhesion pain. We both had a good laugh when she replied, "yes". Seriously - who, in their right mind, would choose drug addiction?
I refused the "treatment" of narcotics.
I carry a copy of my medical records with me when I see a new physician. I have prepared a simple health statement with lists of meds, surgeries, dates and Docs names and contact numbers. I ask that the files be reviewed before I meed with a new Doc. If a Doc comes in to see me without review, I simply give her or him another chance to review and make another appointment. If he/she refuses, I find another Doc.
It is not easy to suffer from a problem that no Doctor wants to address. Most Docs will tell you that pelvic pain patients are their least favorite to treat as they understand that, most times, there is no relief in sight, multiple surgeries are required and their own judgement may be questioned by their mal-practice insurance providers.
Get your records together and keep the mental health assessment results on top of the pile. Only see Docs that are willing to believe you and recognize that most that don't believe are only protecting themselves from having a patient that they are powerless to heal.
I know how difficult it is to keep going when you hurt most of the time. Care for yourself as best you can and just keep going. Breathe deep and stand tall. Your pain is real. The cause is real. The answers are not always the ones we want to hear, but there are answers for relief even though that relief may only last a short while. We all deserve respect for dealing with chronic and often debilitating pain while doing the best we can just to live our daily lives.
Best, Donna B
At Wed, 14 Jan 2009, ScaredMa wrote:
>
>My records have been sent to Dr. Redan in Florida and he thinks he can
>help me. He wanted me to wait 6 months so that my body could heal from
>the multiple surgeries that I had last year. I am hurting constantly,
>some days worse than others. My lower back really hurts. I am so
>thankful for this website and all the information and support I have
>received from here and at CAPPS. I wish no one had to endure what we
>are enduring but it helps to know that I am not alone. I have even
>taken a psych eval. due to the fact that my mental health has been
>called into question in all of this. They are also trying to tell me it
>is just irritable bowel and I was diagnosed with irritable bowel 4 years
>ago and never had all these symptoms as I have now. Each time it has
>been endometriosis and scar tissue and in my last surgery it was a mass
>larger than a softball and endometriosis and scar tissue but now all of
>a sudden it is irritable bowel. All of this has taken such a toll on me
>physically and mentally. I am just sick and tired of being sick and
>tired. I can't wait to go to Florida and hopefully find some relief and
>just knowing that Dr. Redan believes me means so much to me. Also,
>after the psych evaluation results came back in my favor helped but it
>still hurts so much to be treated as I have been treated. I also wrote
>to The Doctors show hoping that they would deal with this issue and
>bring it before the people so hopefully more can be done to help all of
>us who are suffering. I have had a really rough week and just needed to
>vent. Thanks for the hope that I have received here. Jen
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