Re: Let's talk about symptoms!

From: jetstamp (jetstamp@yahoo.com)
Sun Feb 22 13:05:26 2009


At Sun, 22 Feb 2009, jetstamp wrote: >
>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>
>>Kelly and Debbie,
>>The Bee Gee brother died from a bowel obstruction? No one should ever have
>>to apologize for venting how they feel. I know that I'm almost to the point
>>where I don't want to live any more if this is as good as it gets. I'm only
>>hanging on waiting to get an appointment to see a Social Security Judge and then
>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>adhesions. Hoping that there is a Surgeon out there that can give me my life back.
>>I've already lost a good job at Andersen Windows and I have two girls, one is
>>in college and the other a Senior in High School. I can't make ends meet on
>>disability. I'm so lucky my parents own the house I live in. I'm so lucky I
>>still have them. My Mom takes me to most of my appointments. I always dream
>>of winning the lottery or just coming into a lot of money so I could start,
>>dang it I have a hard time remember things. I lost a lot of my mind while I
>>was on Lyrica. I would like to set up some funding for research to find a cure.
>>Maybe even to help out people who can't afford all the tests they put you
>>through or even surgery. Maybe even educate these Dr's. that don't believe they
>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>Wendy Ebbe
>
>Wendy,
>
>I live near the Minnesota/Wisconsin border. I am employed full-time and
>have what I call fairly good insurance- not an HMO and I have the
>freedom pretty much to make apppointments with 'most' specialists
>without a referral. However, per my recent post I called 'HYPE!!' you
>can see that in my 25 years with this I have been totally unsuccessful
>in locating a physician who will even acknowledge the issue of
>adhesions- I've been to Mayo and been pretty much brushed off just like
>everywhere else.
>
>So, if either one of us ever manages to find a doc in our area we must
>be sure to let the other know about it. After my disaster last week, I
>am currently 'boycotting' the medical system (again!) and have no idea
>of how to search for a doc who would even remotely consider the issue of
>adhesions. Only people who will talk about them are physical
>therapists- who interestingly can feel them immediately upon abdominal
>examination- apparently no laparoscopy is needed for them to recognize
>adhesions! Also the interpreting physician of my last CT and MRI
>suggested adhesions- of course that makes sense because he is a
>radiologist and doesn't have to deal with the patient in
>addressing/solving them so it makes sense that he would have no problem
>being honest.
>
>--
>jetstamp

P.S.

I also have noticed when I search the term 'ARDS' most of what comes up seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice this? Maybe we need a new name for the horrible symptoms adhesions cause! We definitely do not need any more confusion about this.

--
jetstamp
>>
>>========Original  Message========     Subj: Re: Let's talk about symptoms!
>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time  From:
>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com)   To: _adhesions@mail.obgyn.net_
>>(mailto:adhesions@mail.obgyn.net)   Sent on:
>>
>>I know what you mean.  How do we know if it is a life or death  situation.
>>Remember the BeeGee brother died from a blockage and it seems  like someone
>>else that was famous did.
>>Some times I think maybe I better go and get it checked out but do not want
>>to go and it ends up passing.
>>I am not in awe of any dr. anymore.  I realize they don't sit higher  then we
>>do.
>>

>>>>>----- Original Message ----- >>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com) >>To: _Multiple recipients of list ADHESIONS_ >>(mailto:adhesions@mail.obgyn.net) >>Sent: Friday, February 20, 2009 8:07 PM >>Subject: Re: Let's talk about symptoms! >> >>Kelly, >> I too have blockages. Most of the time I can go up to 3 weeks or more >>before having a bowel movement. Needless to say, that explains why I have so >>much nausea and vomiting. And for the most part, I go up to 3 or more days >>at a time without eating. And when I do try, other than a teaspoon, maybe a >>tablespoon, it usually comes back up. My question to my surgeon was "how >>long do I have to go without having a bowel movement before you consider it to >>be a blockage?" To this day, no doctor has ever answered that question. They >>know I am full of adhesions, (28 abdominal surgeries to date) and now they >>tell me the only way they will operate again is if I have a blockage. Well, >>if 3 weeks is not a blockage, then I have no clue what is! And what is so bad >>about it, I am very knowledgeable in medical /prescription areas. >> It is unbelievable what some doctor's will say in order to rid of a >>patient that they can't figure out or can't help or have no clue on how to treat. >> I am sorry, but to me, if they are a surgeon, then this is something they >>"ALL" should be able to deal with. They cause them every time they do >>surgery! (Venting for a moment, sorry). >> The worst part is they know about my blockages, but the doctor says that >>he wants it to be a "Life or Death" situation before he will do anything. >>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for the >>most part. When gas passes, that is the only relief for a blockage, when a >>doctor won't do anything at all. I have 4 kinks in my bowel from the adhesions >>(that I know of). >> Good luck to all of us and hopefully we will find help soon. >> >>Sincerely, >>Debbie >> >>____________________________________ >>Need a job? _Find an employment agency near you_ >>____________________________________ >>____________________________________ >> >>-- >>____________________________________ >>(http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlcntusyelp00000003) . >>____________________________________ >>____________________________________ >> >>%3D62%26bcd%3DfebemailfooterNO62) >>


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