Re: Let's talk about symptoms!

From: Joy Thomas (joyeliz19@gmail.com)
Mon Feb 23 10:45:01 2009


jetstamp,

As for the name, I never heard "ARDS" before coming to this site. My doctors have all just called it "adhesion disease."

On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote: > At Sun, 22 Feb 2009, jetstamp wrote:
>>
>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>>
>>>Kelly and Debbie,
>>>The Bee Gee brother died from a bowel obstruction? No one should ever have
>>>to apologize for venting how they feel. I know that I'm almost to the point
>>>where I don't want to live any more if this is as good as it gets. I'm only
>>>hanging on waiting to get an appointment to see a Social Security Judge and then
>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>>adhesions. Hoping that there is a Surgeon out there that can give me my life back.
>>>I've already lost a good job at Andersen Windows and I have two girls, one is
>>>in college and the other a Senior in High School. I can't make ends meet on
>>>disability. I'm so lucky my parents own the house I live in. I'm so lucky I
>>>still have them. My Mom takes me to most of my appointments. I always dream
>>>of winning the lottery or just coming into a lot of money so I could start,
>>>dang it I have a hard time remember things. I lost a lot of my mind while I
>>>was on Lyrica. I would like to set up some funding for research to find a cure.
>>>Maybe even to help out people who can't afford all the tests they put you
>>>through or even surgery. Maybe even educate these Dr's. that don't believe they
>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>>Wendy Ebbe
>>
>>Wendy,
>>
>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>>have what I call fairly good insurance- not an HMO and I have the
>>freedom pretty much to make apppointments with 'most' specialists
>>without a referral. However, per my recent post I called 'HYPE!!' you
>>can see that in my 25 years with this I have been totally unsuccessful
>>in locating a physician who will even acknowledge the issue of
>>adhesions- I've been to Mayo and been pretty much brushed off just like
>>everywhere else.
>>
>>So, if either one of us ever manages to find a doc in our area we must
>>be sure to let the other know about it. After my disaster last week, I
>>am currently 'boycotting' the medical system (again!) and have no idea
>>of how to search for a doc who would even remotely consider the issue of
>>adhesions. Only people who will talk about them are physical
>>therapists- who interestingly can feel them immediately upon abdominal
>>examination- apparently no laparoscopy is needed for them to recognize
>>adhesions! Also the interpreting physician of my last CT and MRI
>>suggested adhesions- of course that makes sense because he is a
>>radiologist and doesn't have to deal with the patient in
>>addressing/solving them so it makes sense that he would have no problem
>>being honest.
>>
>>--
>>jetstamp
>
> P.S.
>
> I also have noticed when I search the term 'ARDS' most of what comes up
> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
> this? Maybe we need a new name for the horrible symptoms adhesions
> cause! We definitely do not need any more confusion about this.
>
> jetstamp
>>>
>>>========Original Message======== Subj: Re: Let's talk about symptoms!
>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To: _adhesions@mail.obgyn.net_
>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>>>
>>>I know what you mean. How do we know if it is a life or death situation.
>>>Remember the BeeGee brother died from a blockage and it seems like someone
>>>else that was famous did.
>>>Some times I think maybe I better go and get it checked out but do not want
>>>to go and it ends up passing.
>>>I am not in awe of any dr. anymore. I realize they don't sit higher then we
>>>do.
>>>

>>>>>>----- Original Message -----
>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>>>To: _Multiple recipients of list ADHESIONS_
>>>(mailto:adhesions@mail.obgyn.net)
>>>Sent: Friday, February 20, 2009 8:07 PM
>>>Subject: Re: Let's talk about symptoms!
>>>
>>>Kelly,
>>> I too have blockages. Most of the time I can go up to 3 weeks or more
>>>before having a bowel movement. Needless to say, that explains why I have so
>>>much nausea and vomiting. And for the most part, I go up to 3 or more days
>>>at a time without eating. And when I do try, other than a teaspoon, maybe a
>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>>>long do I have to go without having a bowel movement before you consider it to
>>>be a blockage?" To this day, no doctor has ever answered that question. They
>>>know I am full of adhesions, (28 abdominal surgeries to date) and now they
>>>tell me the only way they will operate again is if I have a blockage. Well,
>>>if 3 weeks is not a blockage, then I have no clue what is! And what is so bad
>>>about it, I am very knowledgeable in medical /prescription areas.
>>> It is unbelievable what some doctor's will say in order to rid of a
>>>patient that they can't figure out or can't help or have no clue on how to treat.
>>> I am sorry, but to me, if they are a surgeon, then this is something they
>>>"ALL" should be able to deal with. They cause them every time they do
>>>surgery! (Venting for a moment, sorry).
>>> The worst part is they know about my blockages, but the doctor says that
>>>he wants it to be a "Life or Death" situation before he will do anything.
>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for the
>>>most part. When gas passes, that is the only relief for a blockage, when a
>>>doctor won't do anything at all. I have 4 kinks in my bowel from the adhesions
>>>(that I know of).
>>> Good luck to all of us and hopefully we will find help soon.
>>>
>>>Sincerely,
>>>Debbie
>>>
>>>____________________________________
>>>Need a job? _Find an employment agency near you_
>>>____________________________________
>>>____________________________________
>>>
>>>--
>>>____________________________________
>>>(http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlcntusyelp00000003) .
>>>____________________________________
>>>____________________________________
>>>
>>>%3D62%26bcd%3DfebemailfooterNO62)
>>>
>


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