>> ----- Original Message -----
> From: Joy Thomas
> To: Multiple recipients of list ADHESIONS
> Sent: Monday, February 23, 2009 12:46 PM
> Subject: Re: Let's talk about symptoms!
> jetstamp,
>
> As for the name, I never heard "ARDS" before coming to this site. My
> doctors have all just called it "adhesion disease."
>
> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
>> At Sun, 22 Feb 2009, jetstamp wrote:
>>>
>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>>>>
>>>>Kelly and Debbie,
>>>>The Bee Gee brother died from a bowel obstruction? No one should ever
>>>> have
>>>>to apologize for venting how they feel. I know that I'm almost to the
>>>> point
>>>>where I don't want to live any more if this is as good as it gets. I'm
>>>> only
>>>>hanging on waiting to get an appointment to see a Social Security Judge
>>>> and then
>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>>>>adhesions. Hoping that there is a Surgeon out there that can give me my
>>>> life back.
>>>>I've already lost a good job at Andersen Windows and I have two girls,
>>>> one is
>>>>in college and the other a Senior in High School. I can't make ends
>>>> meet on
>>>>disability. I'm so lucky my parents own the house I live in. I'm so
>>>> lucky I
>>>>still have them. My Mom takes me to most of my appointments. I always
>>>> dream
>>>>of winning the lottery or just coming into a lot of money so I could
>>>> start,
>>>>dang it I have a hard time remember things. I lost a lot of my mind
>>>> while I
>>>>was on Lyrica. I would like to set up some funding for research to find
>>>> a cure.
>>>>Maybe even to help out people who can't afford all the tests they put
>>>> you
>>>>through or even surgery. Maybe even educate these Dr's. that don't
>>>> believe they
>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>>>>Wendy Ebbe
>>>
>>>Wendy,
>>>
>>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>>>have what I call fairly good insurance- not an HMO and I have the
>>>freedom pretty much to make apppointments with 'most' specialists
>>>without a referral. However, per my recent post I called 'HYPE!!' you
>>>can see that in my 25 years with this I have been totally unsuccessful
>>>in locating a physician who will even acknowledge the issue of
>>>adhesions- I've been to Mayo and been pretty much brushed off just like
>>>everywhere else.
>>>
>>>So, if either one of us ever manages to find a doc in our area we must
>>>be sure to let the other know about it. After my disaster last week, I
>>>am currently 'boycotting' the medical system (again!) and have no idea
>>>of how to search for a doc who would even remotely consider the issue of
>>>adhesions. Only people who will talk about them are physical
>>>therapists- who interestingly can feel them immediately upon abdominal
>>>examination- apparently no laparoscopy is needed for them to recognize
>>>adhesions! Also the interpreting physician of my last CT and MRI
>>>suggested adhesions- of course that makes sense because he is a
>>>radiologist and doesn't have to deal with the patient in
>>>addressing/solving them so it makes sense that he would have no problem
>>>being honest.
>>>
>>>--
>>>jetstamp
>>
>> P.S.
>>
>> I also have noticed when I search the term 'ARDS' most of what comes up
>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
>> this? Maybe we need a new name for the horrible symptoms adhesions
>> cause! We definitely do not need any more confusion about this.
>>
>> jetstamp
>>>>
>>>>========Original Message======== Subj: Re: Let's talk about
>>>> symptoms!
>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To:
>>>> _adhesions@mail.obgyn.net_
>>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>>>>
>>>>I know what you mean. How do we know if it is a life or death
>>>> situation.
>>>>Remember the BeeGee brother died from a blockage and it seems like
>>>> someone
>>>>else that was famous did.
>>>>Some times I think maybe I better go and get it checked out but do not
>>>> want
>>>>to go and it ends up passing.
>>>>I am not in awe of any dr. anymore. I realize they don't sit higher
>>>> then we
>>>>do.
>>>>
>>>>>>>----- Original Message -----
>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>>>>To: _Multiple recipients of list ADHESIONS_
>>>>(mailto:adhesions@mail.obgyn.net)
>>>>Sent: Friday, February 20, 2009 8:07 PM
>>>>Subject: Re: Let's talk about symptoms!
>>>>
>>>>Kelly,
>>>> I too have blockages. Most of the time I can go up to 3 weeks or
>>>> more
>>>>before having a bowel movement. Needless to say, that explains why I
>>>> have so
>>>>much nausea and vomiting. And for the most part, I go up to 3 or more
>>>> days
>>>>at a time without eating. And when I do try, other than a teaspoon,
>>>> maybe a
>>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>>>>long do I have to go without having a bowel movement before you consider
>>>> it to
>>>>be a blockage?" To this day, no doctor has ever answered that
>>>> question. They
>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now
>>>> they
>>>>tell me the only way they will operate again is if I have a blockage.
>>>> Well,
>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is
>>>> so bad
>>>>about it, I am very knowledgeable in medical /prescription areas.
>>>> It is unbelievable what some doctor's will say in order to rid of a
>>>>patient that they can't figure out or can't help or have no clue on how
>>>> to treat.
>>>> I am sorry, but to me, if they are a surgeon, then this is something
>>>> they
>>>>"ALL" should be able to deal with. They cause them every time they do
>>>>surgery! (Venting for a moment, sorry).
>>>> The worst part is they know about my blockages, but the doctor says
>>>> that
>>>>he wants it to be a "Life or Death" situation before he will do
>>>> anything.
>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for
>>>> the
>>>>most part. When gas passes, that is the only relief for a blockage,
>>>> when a
>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the
>>>> adhesions
>>>>(that I know of).
>>>> Good luck to all of us and hopefully we will find help soon.
>>>>
>>>>Sincerely,
>>>>Debbie
>>>>
>>>>____________________________________
>>>>Need a job? _Find an employment agency near you_
>>>>____________________________________
>>>>____________________________________
>>>>
>>>>--
>>>>____________________________________
>>>>(http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlcntusyelp00000003)
>>>>____________________________________
>>>> .
>>>>____________________________________
>>>>
>>>>____________________________________
>>>>%3D62%26bcd%3DfebemailfooterNO62)
>>>>
>>
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>>
>
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