Thanks so much
-- JennyAt Fri, 27 Feb 2009, LOU COOPER wrote: > >HI Linda, >I think you are right about the use the spaygels, I have had 3 >surgery's for adhesions all without >any barrier, # 4 surgery in 07 I had a very lg ins hernia a 8x4 mesh >was put in just under the ribs >this had a adhesion barrier with it, it has not worked and the >adhesions are back in full force >it feels like a rubber band pulling, I have heard bad stories about >these meshes and many people >have had them removed, >I do not know what is happening today so many people are getting >adhesions after surgery,age >makes no difference, I had abd surgery,5 in all the last one was >1984, with no problems. >My feeling is that some Drs are to heavy handed + to many ops in one day, >also the use of to much CO2.,this also my cause adhesions to form + >maybe saline, >It would be great if the gel was used as the norm with all Drs no >matter were we live,to have this >on the doorstep would save on the travelling which can be hell and it >would stop the suffering,also the Drs would be more helpful knowing >their is help out there. >The last time I went to my G.P, he gave me no hope,I said to him what >can I do now, all he >said do your own research and keep takeing the pills. >Lou >On Fri, Feb 27, 2009 at 6:22 PM, Linda <lindahalford@comcast.net> wrote: >> Hello Joy, >> >> Some people on this site have gotten relief after having laparascopic >> adhesiolysis using spraygel/sprayshield. I'm interested in finding out >> the percentage of success these doctors have had using this >> substance. Perhaps the doctor who has this website would know. >> >> As soon as I can get ahead financially, I'm going to Dr. Semertizides in >> Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando, >> FL will transport patients free of charge to hospitals located over 100 >> miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich >> performed laparascopic adhesiolysis on my abdomen. Unfortunately, the >> adhesions returned because at that time, the only barrier was interceed by >> Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions. >> >> I'm miserable with these massive adhesions throughout my abdomen. My >> abdominal wall feels like one big charley horse. Some days I feel I can't >> go on any longer but somehow the good Lord gives me strength to make it >> through another day. I'm an outgoing, happy person but these painful >> adhesions have robbed me of a normal life. >> >> Unless the doctor you're planning to do your surgery uses >> spraygel/sprayshield, it's doubtful your condition will get better. >> >> May God bless all of you and help you find a way to get well. >> >> Sincerely, >> Linda in Jacksonville, FL >>
>>>> ----- Original Message ----- >> From: Joy Thomas >> To: Multiple recipients of list ADHESIONS >> Sent: Monday, February 23, 2009 12:46 PM >> Subject: Re: Let's talk about symptoms! >> jetstamp, >> >> As for the name, I never heard "ARDS" before coming to this site. My >> doctors have all just called it "adhesion disease." >> >> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote: >>> At Sun, 22 Feb 2009, jetstamp wrote: >>>> >>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote: >>>>> >>>>>Kelly and Debbie, >>>>>The Bee Gee brother died from a bowel obstruction? No one should ever >>>>> have >>>>>to apologize for venting how they feel. I know that I'm almost to the >>>>> point >>>>>where I don't want to live any more if this is as good as it gets. I'm >>>>> only >>>>>hanging on waiting to get an appointment to see a Social Security Judge >>>>> and then >>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on >>>>>adhesions. Hoping that there is a Surgeon out there that can give me my >>>>> life back. >>>>>I've already lost a good job at Andersen Windows and I have two girls, >>>>> one is >>>>>in college and the other a Senior in High School. I can't make ends >>>>> meet on >>>>>disability. I'm so lucky my parents own the house I live in. I'm so >>>>> lucky I >>>>>still have them. My Mom takes me to most of my appointments. I always >>>>> dream >>>>>of winning the lottery or just coming into a lot of money so I could >>>>> start, >>>>>dang it I have a hard time remember things. I lost a lot of my mind >>>>> while I >>>>>was on Lyrica. I would like to set up some funding for research to find >>>>> a cure. >>>>>Maybe even to help out people who can't afford all the tests they put >>>>> you >>>>>through or even surgery. Maybe even educate these Dr's. that don't >>>>> believe they >>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All! >>>>>Wendy Ebbe >>>> >>>>Wendy, >>>> >>>>I live near the Minnesota/Wisconsin border. I am employed full-time and >>>>have what I call fairly good insurance- not an HMO and I have the >>>>freedom pretty much to make apppointments with 'most' specialists >>>>without a referral. However, per my recent post I called 'HYPE!!' you >>>>can see that in my 25 years with this I have been totally unsuccessful >>>>in locating a physician who will even acknowledge the issue of >>>>adhesions- I've been to Mayo and been pretty much brushed off just like >>>>everywhere else. >>>> >>>>So, if either one of us ever manages to find a doc in our area we must >>>>be sure to let the other know about it. After my disaster last week, I >>>>am currently 'boycotting' the medical system (again!) and have no idea >>>>of how to search for a doc who would even remotely consider the issue of >>>>adhesions. Only people who will talk about them are physical >>>>therapists- who interestingly can feel them immediately upon abdominal >>>>examination- apparently no laparoscopy is needed for them to recognize >>>>adhesions! Also the interpreting physician of my last CT and MRI >>>>suggested adhesions- of course that makes sense because he is a >>>>radiologist and doesn't have to deal with the patient in >>>>addressing/solving them so it makes sense that he would have no problem >>>>being honest. >>>> >>>>-- >>>>jetstamp >>> >>> P.S. >>> >>> I also have noticed when I search the term 'ARDS' most of what comes up >>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice >>> this? Maybe we need a new name for the horrible symptoms adhesions >>> cause! We definitely do not need any more confusion about this. >>> >>> jetstamp >>>>> >>>>>========Original Message======== Subj: Re: Let's talk about >>>>> symptoms! >>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From: >>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To: >>>>> _adhesions@mail.obgyn.net_ >>>>>(mailto:adhesions@mail.obgyn.net) Sent on: >>>>> >>>>>I know what you mean. How do we know if it is a life or death >>>>> situation. >>>>>Remember the BeeGee brother died from a blockage and it seems like >>>>> someone >>>>>else that was famous did. >>>>>Some times I think maybe I better go and get it checked out but do not >>>>> want >>>>>to go and it ends up passing. >>>>>I am not in awe of any dr. anymore. I realize they don't sit higher >>>>> then we >>>>>do. >>>>>
>>>>>>>>>----- Original Message ----- >>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com) >>>>>To: _Multiple recipients of list ADHESIONS_ >>>>>(mailto:adhesions@mail.obgyn.net) >>>>>Sent: Friday, February 20, 2009 8:07 PM >>>>>Subject: Re: Let's talk about symptoms! >>>>> >>>>>Kelly, >>>>> I too have blockages. Most of the time I can go up to 3 weeks or >>>>> more >>>>>before having a bowel movement. Needless to say, that explains why I >>>>> have so >>>>>much nausea and vomiting. And for the most part, I go up to 3 or more >>>>> days >>>>>at a time without eating. And when I do try, other than a teaspoon, >>>>> maybe a >>>>>tablespoon, it usually comes back up. My question to my surgeon was "how >>>>>long do I have to go without having a bowel movement before you consider >>>>> it to >>>>>be a blockage?" To this day, no doctor has ever answered that >>>>> question. They >>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now >>>>> they >>>>>tell me the only way they will operate again is if I have a blockage. >>>>> Well, >>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is >>>>> so bad >>>>>about it, I am very knowledgeable in medical /prescription areas. >>>>> It is unbelievable what some doctor's will say in order to rid of a >>>>>patient that they can't figure out or can't help or have no clue on how >>>>> to treat. >>>>> I am sorry, but to me, if they are a surgeon, then this is something >>>>> they >>>>>"ALL" should be able to deal with. They cause them every time they do >>>>>surgery! (Venting for a moment, sorry). >>>>> The worst part is they know about my blockages, but the doctor says >>>>> that >>>>>he wants it to be a "Life or Death" situation before he will do >>>>> anything. >>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for >>>>> the >>>>>most part. When gas passes, that is the only relief for a blockage, >>>>> when a >>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the >>>>> adhesions >>>>>(that I know of). >>>>> Good luck to all of us and hopefully we will find help soon. >>>>> >>>>>Sincerely, >>>>>Debbie >>>>> >>>>>____________________________________ >>>>>Need a job? _Find an employment agency near you_ >>>>>____________________________________ >>>>>____________________________________ >>>>>____________________________________ >>>>> >>>>>-- >>>>>____________________________________ >>>>>(http://yellowpages.aol.com/search?query=employment_agencies&ncid=emlcntusyelp00000003) >>>>>____________________________________ >>>>>____________________________________ >>>>> . >>>>>____________________________________ >>>>> >>>>>____________________________________ >>>>>%3D62%26bcd%3DfebemailfooterNO62) >>>>> >>> http://www.adhesions.org/forums/message.htm >>> >> http://www.adhesions.org/forums/message.htm >> >> ________________________________ >> >> ________________________________ >> ________________________________ >> No virus found in this incoming message. >> Checked by AVG - http://www.avg.com >> Version: 8.0.237 / Virus Database: 270.11.3/1967 - Release Date: 02/23/09 >> 07:17:00 >>