At Fri, 27 Feb 2009, HERB F DIXON wrote:
>
>Hi Jenny, I noticed you wrote AFTER hysterectomy all in caps? For clearance, did you just recently have surgery? I was told by my Gyn. That if I ever had vaginal bleeding (after my hysterectomy, and initial healing time) That I would need to be seen right away. Don't mean to scare you. I never asked why, it was post op and my brain wasn't fully functioning yet. I wouldn't mess around though. After you find out what is going on, let me (us) know. Good luck, Cheryl D.
>
>> Date: Fri, 27 Feb 2009 22:02:40 -0600
>> From: louc829@gmail.com
>> To: adhesions@mail.obgyn.net
>> Subject: Re: Let's talk about symptoms!
>>
>> HI Jenny,
>> Yes I have nausea daily, no vomiting, what kind of mesh did you have put in?
>> I had sepramesh which is made of polypropylene ++made by Genzyme,
>> if you go to Hernia Forum on the web+ look up mesh problems you might find this
>> helpful, some meshes have been recalled by the FDA.
>> Take care
>> Lou
>>
>> On Fri, Feb 27, 2009 at 10:35 PM, Jenny <kummer_jennifer1@hotmail.com> wrote:
>> > Hi Lou, I just recently had surgery for hernia repair and of course
>> > lysis of adhesions, the Dr. did put a mesh in me. I was pain free
>> > (after recovering from the tremendous surgical pain) until about 2 or 3
>> > days ago. And my pain, although not as severe (yet) is there. I have
>> > also had some nausea and vomiting. I was wondering about the mesh -
>> > have you heard, or has anyone reading this heard of adhesions attaching
>> > to the mesh??? This would be my biggest nightmare! Also - on a slightly
>> > different note, has anyone ever heard of or had vaginal bleeding AFTER a
>> > hysterectomy (I have everything out, including ovaries!)
>> >
>> > Thanks so much
>> >
>> > Jenny
>> >
>> > At Fri, 27 Feb 2009, LOU COOPER wrote:
>> >>
>> >>HI Linda,
>> >>I think you are right about the use the spaygels, I have had 3
>> >>surgery's for adhesions all without
>> >>any barrier, # 4 surgery in 07 I had a very lg ins hernia a 8x4 mesh
>> >>was put in just under the ribs
>> >>this had a adhesion barrier with it, it has not worked and the
>> >>adhesions are back in full force
>> >>it feels like a rubber band pulling, I have heard bad stories about
>> >>these meshes and many people
>> >>have had them removed,
>> >>I do not know what is happening today so many people are getting
>> >>adhesions after surgery,age
>> >>makes no difference, I had abd surgery,5 in all the last one was
>> >>1984, with no problems.
>> >>My feeling is that some Drs are to heavy handed + to many ops in one day,
>> >>also the use of to much CO2.,this also my cause adhesions to form +
>> >>maybe saline,
>> >>It would be great if the gel was used as the norm with all Drs no
>> >>matter were we live,to have this
>> >>on the doorstep would save on the travelling which can be hell and it
>> >>would stop the suffering,also the Drs would be more helpful knowing
>> >>their is help out there.
>> >>The last time I went to my G.P, he gave me no hope,I said to him what
>> >>can I do now, all he
>> >>said do your own research and keep takeing the pills.
>> >>Lou
>> >>On Fri, Feb 27, 2009 at 6:22 PM, Linda <lindahalford@comcast.net> wrote:
>> >>> Hello Joy,
>> >>>
>> >>> Some people on this site have gotten relief after having laparascopic
>> >>> adhesiolysis using spraygel/sprayshield. I'm interested in finding out
>> >>> the percentage of success these doctors have had using this
>> >>> substance. Perhaps the doctor who has this website would know.
>> >>>
>> >>> As soon as I can get ahead financially, I'm going to Dr. Semertizides in
>> >>> Cincinnati, Ohio. For those of you who don't know, Angel Flight, Orlando,
>> >>> FL will transport patients free of charge to hospitals located over 100
>> >>> miles from home. They flew me to Scranton, PA where Dr. Redan and Dr. Reich
>> >>> performed laparascopic adhesiolysis on my abdomen. Unfortunately, the
>> >>> adhesions returned because at that time, the only barrier was interceed by
>> >>> Johnson and Johnson. Also, there's a "Cine MRI" that detects adhesions.
>> >>>
>> >>> I'm miserable with these massive adhesions throughout my abdomen. My
>> >>> abdominal wall feels like one big charley horse. Some days I feel I can't
>> >>> go on any longer but somehow the good Lord gives me strength to make it
>> >>> through another day. I'm an outgoing, happy person but these painful
>> >>> adhesions have robbed me of a normal life.
>> >>>
>> >>> Unless the doctor you're planning to do your surgery uses
>> >>> spraygel/sprayshield, it's doubtful your condition will get better.
>> >>>
>> >>> May God bless all of you and help you find a way to get well.
>> >>>
>> >>> Sincerely,
>> >>> Linda in Jacksonville, FL
>> >>>
>
>>>> >>>> ----- Original Message -----
>> >>> From: Joy Thomas
>> >>> To: Multiple recipients of list ADHESIONS
>> >>> Sent: Monday, February 23, 2009 12:46 PM
>> >>> Subject: Re: Let's talk about symptoms!
>> >>> jetstamp,
>> >>>
>> >>> As for the name, I never heard "ARDS" before coming to this site. My
>> >>> doctors have all just called it "adhesion disease."
>> >>>
>> >>> On Sun, Feb 22, 2009 at 3:06 PM, jetstamp <jetstamp@yahoo.com> wrote:
>> >>>> At Sun, 22 Feb 2009, jetstamp wrote:
>> >>>>>
>> >>>>>At Sat, 21 Feb 2009, WendyEbbe3@aol.com wrote:
>> >>>>>>
>> >>>>>>Kelly and Debbie,
>> >>>>>>The Bee Gee brother died from a bowel obstruction? No one should ever
>> >>>>>> have
>> >>>>>>to apologize for venting how they feel. I know that I'm almost to the
>> >>>>>> point
>> >>>>>>where I don't want to live any more if this is as good as it gets. I'm
>> >>>>>> only
>> >>>>>>hanging on waiting to get an appointment to see a Social Security Judge
>> >>>>>> and then
>> >>>>>>find a Surgeon in Minnesota that has the skills and knowledgeable on
>> >>>>>>adhesions. Hoping that there is a Surgeon out there that can give me my
>> >>>>>> life back.
>> >>>>>>I've already lost a good job at Andersen Windows and I have two girls,
>> >>>>>> one is
>> >>>>>>in college and the other a Senior in High School. I can't make ends
>> >>>>>> meet on
>> >>>>>>disability. I'm so lucky my parents own the house I live in. I'm so
>> >>>>>> lucky I
>> >>>>>>still have them. My Mom takes me to most of my appointments. I always
>> >>>>>> dream
>> >>>>>>of winning the lottery or just coming into a lot of money so I could
>> >>>>>> start,
>> >>>>>>dang it I have a hard time remember things. I lost a lot of my mind
>> >>>>>> while I
>> >>>>>>was on Lyrica. I would like to set up some funding for research to find
>> >>>>>> a cure.
>> >>>>>>Maybe even to help out people who can't afford all the tests they put
>> >>>>>> you
>> >>>>>>through or even surgery. Maybe even educate these Dr's. that don't
>> >>>>>> believe they
>> >>>>>>cause pain. I'll keep dreaming and in the mean time, Take Care All!
>> >>>>>>Wendy Ebbe
>> >>>>>
>> >>>>>Wendy,
>> >>>>>
>> >>>>>I live near the Minnesota/Wisconsin border. I am employed full-time and
>> >>>>>have what I call fairly good insurance- not an HMO and I have the
>> >>>>>freedom pretty much to make apppointments with 'most' specialists
>> >>>>>without a referral. However, per my recent post I called 'HYPE!!' you
>> >>>>>can see that in my 25 years with this I have been totally unsuccessful
>> >>>>>in locating a physician who will even acknowledge the issue of
>> >>>>>adhesions- I've been to Mayo and been pretty much brushed off just like
>> >>>>>everywhere else.
>> >>>>>
>> >>>>>So, if either one of us ever manages to find a doc in our area we must
>> >>>>>be sure to let the other know about it. After my disaster last week, I
>> >>>>>am currently 'boycotting' the medical system (again!) and have no idea
>> >>>>>of how to search for a doc who would even remotely consider the issue of
>> >>>>>adhesions. Only people who will talk about them are physical
>> >>>>>therapists- who interestingly can feel them immediately upon abdominal
>> >>>>>examination- apparently no laparoscopy is needed for them to recognize
>> >>>>>adhesions! Also the interpreting physician of my last CT and MRI
>> >>>>>suggested adhesions- of course that makes sense because he is a
>> >>>>>radiologist and doesn't have to deal with the patient in
>> >>>>>addressing/solving them so it makes sense that he would have no problem
>> >>>>>being honest.
>> >>>>>
>> >>>>>--
>> >>>>>jetstamp
>> >>>>
>> >>>> P.S.
>> >>>>
>> >>>> I also have noticed when I search the term 'ARDS' most of what comes up
>> >>>> seems to be 'Acute Respiratory Distress Syndrome'- anyone else notice
>> >>>> this? Maybe we need a new name for the horrible symptoms adhesions
>> >>>> cause! We definitely do not need any more confusion about this.
>> >>>>
>> >>>> jetstamp
>> >>>>>>
>> >>>>>>========Original Message========
> Subj: Re: Let's talk about
>> >>>>>> symptoms!
>> >>>>>>Date: 2/20/2009 10:23:27 P.M. Central Standard Time From:
>> >>>>>>_klmurray_61@msn.com_ (mailto:klmurray_61@msn.com) To:
>> >>>>>> _adhesions@mail.obgyn.net_
>> >>>>>>(mailto:adhesions@mail.obgyn.net) Sent on:
>> >>>>>>
>> >>>>>>I know what you mean. How do we know if it is a life or death
>> >>>>>> situation.
>> >>>>>>Remember the BeeGee brother died from a blockage and it seems like
>> >>>>>> someone
>> >>>>>>else that was famous did.
>> >>>>>>Some times I think maybe I better go and get it checked out but do not
>> >>>>>> want
>> >>>>>>to go and it ends up passing.
>> >>>>>>I am not in awe of any dr. anymore. I realize they don't sit higher
>> >>>>>> then we
>> >>>>>>do.
>> >>>>>>
>
>>>> >>>>>>>>>----- Original Message -----
>> >>>>>>From: _BBLDEB@aol.com_ (mailto:BBLDEB@aol.com)
>> >>>>>>To: _Multiple recipients of list ADHESIONS_
>> >>>>>>(mailto:adhesions@mail.obgyn.net)
>> >>>>>>Sent: Friday, February 20, 2009 8:07 PM
>> >>>>>>Subject: Re: Let's talk about symptoms!
>> >>>>>>
>> >>>>>>Kelly,
>> >>>>>> I too have blockages. Most of the time I can go up to 3 weeks or
>> >>>>>> more
>> >>>>>>before having a bowel movement. Needless to say, that explains why I
>> >>>>>> have so
>> >>>>>>much nausea and vomiting. And for the most part, I go up to 3 or more
>> >>>>>> days
>> >>>>>>at a time without eating. And when I do try, other than a teaspoon,
>> >>>>>> maybe a
>> >>>>>>tablespoon, it usually comes back up. My question to my surgeon was "how
>> >>>>>>long do I have to go without having a bowel movement before you consider
>> >>>>>> it to
>> >>>>>>be a blockage?" To this day, no doctor has ever answered that
>> >>>>>> question. They
>> >>>>>>know I am full of adhesions, (28 abdominal surgeries to date) and now
>> >>>>>> they
>> >>>>>>tell me the only way they will operate again is if I have a blockage.
>> >>>>>> Well,
>> >>>>>>if 3 weeks is not a blockage, then I have no clue what is! And what is
>> >>>>>> so bad
>> >>>>>>about it, I am very knowledgeable in medical /prescription areas.
>> >>>>>> It is unbelievable what some doctor's will say in order to rid of a
>> >>>>>>patient that they can't figure out or can't help or have no clue on how
>> >>>>>> to treat.
>> >>>>>> I am sorry, but to me, if they are a surgeon, then this is something
>> >>>>>> they
>> >>>>>>"ALL" should be able to deal with. They cause them every time they do
>> >>>>>>surgery! (Venting for a moment, sorry).
>> >>>>>> The worst part is they know about my blockages, but the doctor says
>> >>>>>> that
>> >>>>>>he wants it to be a "Life or Death" situation before he will do
>> >>>>>> anything.
>> >>>>>>Well, to me, going 3 weeks in that kind of pain is "DEATH" every day for
>> >>>>>> the
>> >>>>>>most part. When gas passes, that is the only relief for a blockage,
>> >>>>>> when a
>> >>>>>>doctor won't do anything at all. I have 4 kinks in my bowel from the
>> >>>>>> adhesions
>> >>>>>>(that I know of).
>> >>>>>> Good luck to all of us and hopefully we will find help soon.
>> >>>>>>
>> >>>>>>Sincerely,
>> >>>>>>Debbie
>> >>>>>>
>> >>>>>>____________________________________
>> >>>>>>Need a job? _Find an employment agency near you_
>> >>>>>>____________________________________
>> >>>>>>____________________________________
>> >>>>>>____________________________________
>> >>>>>>____________________________________
>> >>>>>>
>> >>>>>>--
>> >>>>>>____________________________________
>> >>>>>>(http://yellowpages.aol.com/search?query=3Demployment_agencies&ncid=
>> >>>>>>____________________________________
>> >>>>>>____________________________________
>=emlcntusyelp00000003)
>> >>>>>>____________________________________
>> >>>>>> .
>> >>>>>>____________________________________
>> >>>>>>____________________________________
>> >>>>>>
>> >>>>>>____________________________________
>> >>>>>>%3D62%26bcd%3DfebemailfooterNO62)
>> >>>>>>____________________________________
>> >>>>>>
>> >>>> http://www.adhesions.org/forums/message.htm
>> >>>>
>> >>> http://www.adhesions.org/forums/message.htm
>> >>>
>> >>> ________________________________
>> >>>
>> >>> ________________________________
>> >>> ________________________________
>> >>> ________________________________
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>> >>>
>> >
>
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>age.htm
>> >
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