I know that others have also done this, I figured the more the better. I
promised myself that I would do all that I can do to help promote
awareness of this awful condition in the hopes that more research is
done and ultimately more treatments made available. I referred to this
site in my email to the producers and asked them to please review it to
learn more about what we all deal with. I also noted that Dr. David
Wiseman is the founder of this organization. Let's see if there is any
response. I guess we can all just keep sending in information and maybe
one day....