Re: Adhesion Barriers Survey

From: Sabrina Parks (comeawake@hotmail.com)
Thu Mar 19 14:31:16 2009


Sorry to butt in here but speaking of adhesions. Im sure by now all of us who suffer chronic pain after a major surgery or hysterectomy know that it is most likely do to ARD (Adhesions Related Disorder). But I have been on sites like Medhelp and Hystersisters and was banned for bringing awareness about ARD. Everytime I say anything that might be seen as a risk or concern after having a hysterectomy gets removed and I get banned.

Seriously this is scaring me so much. Are these websites there to simply sell hysterectomies or something? Am I in a battle with money? We are talking about women and young girls asking if there is anyone out there who has any information about the risks or down side to having a hysterectomy. these women want to know more as they should. But the websites stop anyone from speaking...(if its negative towards the surgery).

HAS ANYONE ELSE SEEN THIS OR EXPERIENCED THIS?

I am seriously worried for all the women who go to those sites in hope of truthful answers. Its completley bias and dangerous!!

> Date: Thu, 19 Mar 2009 11:33:14 -0500
> From: louc829@gmail.com
> To: adhesions@mail.obgyn.net
> Subject: Re: Adhesion Barriers Survey
>
> .Hi Donna
> I was asking all that had been to Germany, I was wondering if the
> spray gel worked,
> I am pleased for you that it was a success, I feel that one must have
> a adhesion barrier
> after any abd surgery if not their is no protection from adhesions.
> We should not have to go to Germany for this kind of surgery,Canada is
> not in 2009 its in the
> dark ages, I would like to find out how many Canadians are suffering
> with this, I was told alot
> and not all women.it would be good if we could fined them.it time that
> we had a adhesion
> barrier and a good surgeon that understands adhesions.
> I spoke to a very nice man today works for a company called.
> HAEMACURE. it has been
> working on a very good adhesion barrier, its been tryed on 151 people,
> with good results,
> it makes interesting reading http://www.haemacure.com
> The US appears to have a few good surgeons who understand adhesions, I
> wish that I could
> go to one of them that has been spoken of in this forum
> I thing I am going to do is write a letter to my M.P.any port in a storm.
> Fed up!!!!!!!!
> Lou
>
> On Wed, Mar 18, 2009 at 6:20 PM, Donna Johansen <donnajohansen@telus.net> wrote:
> > Hi Lou,
> > I am not sure if you were referring to me (donna j) but I'll reply
> > anyway. I had surgery last June in Germany. SprayGel was used
> > and although I have some problems they are nothing like before and
> > I'm not sure they are adhesion related as I have other issues such
> > as severe arthritis, back problems, diabetes and who knows what
> > else! The second look one week after my main surgery showed no
> > regrowth of adhesions. I would call it a success as I am alive!
> > Not sure I would have been without the trip to Germany and Dr. K.
> >
> > Donna J
> >
> > -----Original Message-----
> > From: adhesions@adhesions.org [mailto:adhesions@adhesions.org] On
> > Behalf Of Lou
> > Sent: Tuesday, March 17, 2009 9:07 AM
> > To: Multiple recipients of list ADHESIONS
> > Subject: Adhesion Barriers Survey
> >
> > Hi All,
> > It would also be of interest after surgery, did you or did you not
> > have adhesion barrier.
> > Donna, you said that you had another sheet of film put in to stop
> > adhesions, do you know the name of this adhesion barrier and the
> > company. By reading about barriers,it appears that some work
> > better than others in stopping adhesions returning.This appears to
> > be the answer, barriers, so like Donna would you mind telling us,
> > your last surgery, yes or no to having abd barrier also how did it
> > work out.
> > It would be of great help to all of us to be armed with the facts
> > and to make an informed decision.
> > I had surgery in 07 with NO adhesion barrier, thay were back after
> > 5 days.
> > JUST INFO
> > A corp in Montreal and Florida called HAEMACURE hs a fibrin
> > sealand which has been tested on 151 people that stops adhesions
> > and proved to be safe.
> > And maybe was going on the US and Canadian market within the next
> > two years but just our luck it looks like its up for sale!!!!!
> > LOU
> >
> > --
> > LOU
> >

m age.htm > >
>

e.htm


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