Re: Surgeons

From: Kim Anderson (piranalu@aol.com)
Sun Sep 25 16:01:15 2011


Thank you-----I actually have a appt. with the pain clinic tomorow. I will bring my surgery reports-- thank you for that advice!!!! I never though of that---but listening to most peoples stories here... I am a "new one"... and I don't know the ropes of juggling through through this MD maze..... Thank you for helping!

At Mon, 19 Sep 2011, Dawn wrote: >
>No, your not crazy!!! The docs that don't believe you are crazy! If
>your present doc won't make the referral, find one that will. It took
>me along time, many years to get good doc that believed there was
>something wrong and that it was all caused by the adhesions. I guess it
>is true that adhesions , the tissue itself doesn't cause pain, BUT what
>the adhesions DO does-if that makes any sense. I've been laughed at as
>well, and any new docs that I've had to see for things don't believe me
>so what I had to start doing was taking copies of my surgery reports
>with me and giving the new doc a copy so he/she could read the report
>for themselves and know just how bad my insides are, that I'm not just
>making it up. My "good " doc that does understand and knows how severe
>my guts are I asked to write a letter (actually I wrote it he just
>signed it) giving a brief synopsis of my problems and I give them a copy of
that too. >It seems once they see things on actual doctor letterhead they start to
>believe better and I don't have to try and explain so much and have
>them look at me like I have three heads. lol It's very difficult to
>live a life with this terrible problem. It seems just about when I try
>to learn to live with one problem something else goes wrong.
>I am thankful for this group, to know there are others that do
>understand what I'm going through.
>My last surgery a barrier method was used (don't recall which right
>off) and I don't know that it helped any, it sure as hell didn't stop
>any of the pain. Actually, or whatever reason after the surgery I
>developed a fever of
>107 degrees with supposedly nothing found as to why, after days
>infectious disease was called in even though they couldn't find the
>infection and I was pumped full of tons of antibiotics for days, which
>did finally lower the fever down, not to normal but where they
>discharged me after twelve days. I still think it had something to o
>with the mesh or whatever it was they used and my body trying to reject
>it in essence. I don't know, none of it made any sense.
>I hope you find a doc that will listen, that seems to be a big key in
>at least being able to get some help. Good luck!
>Dawn
>Sent from Dawn B's iPad
>
>On Sep 11, 2011, at 9:14 PM, "IAS Admin" <tracy.joslin@adhesions.org>
wrote: >
>> Sender: piranalu@aol.com (Kim Anderson)
>> Subject: Surgeons
>>
>> My history- started with endometriosis in my teens, and 20s -causing
>> infertility.
>> Now in the last 2 years I have had 2 bowel surgeries due to
>> obstructions from diverticulitis.The last surgery- the colon-rectal
>> surgeon took an extra 3 hours to do lysis of adhesions, just to be
>> able to get to colon do the surgery. Of course I have have chronic
>> pain also- mostly pelvic-groin.. that has just basically put my usual
activities on hold. >> Now I have a large abdominal incisional hernia..., and several
>> smaller hernias below the big one.
>>
>> A General surgeon- head of the department, at well-known teaching
>> hospital. Want's to put layers of mesh over and under this hernia- I
>> said- "lets hold off on that! I don't want more adhesions- I already
>> have chronic pain." He actually laughed at me- "pain from adhesions?-
>> I don't think so".
>>
>> Can anyone tell me if surgeons laugh at them- Why would they do that?


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