Re: Positive thoughts, Toni--Keep fighting!
From: toni welsh (welsh1@webtv.net)
Tue May 25 08:42:44 1999
At Mon, 24 May 1999, Michele wrote:
>
>Hi Toni-
>The good news is that the "apron" of the omentum had mostly wispy
>adhesions. With the scope, just moving it, some of the adhesions broke
>lose, but it only takes one nasty one to move something where it ought
>not to be. (Like I need to tell you that, sounds like you've been
>through so much). With the large bowel, it's already to the left and
>move it further up and left. From reading your post, I'm glad it had
>never gone to the right.
>
>I think the positive thought is that although adhesions were found
>pelvically and abdominally, I was believed. I didn't have pain with
>bowel movements...a little after but not that much. I'm here and still
>fighting. Doctors sold me hysterectomy as a solution and I believed
>them. No children. With ORS, it took me a year to find someone to do
>an ultrasound. For me, the darkest times were when I was not believed
>and no one was doing anything.
>
>At least I was believed by this doctor. I don't think he's without
>flaws, I think it just took me too much time to find someone who heard
>me. I'm 33 yrs old, and have had endo since my teen years.
>
>I'm really sorry you are going through so much--I think it's nice to
>know that you are being thought of and not alone. I hope to God these
>gels and new films help.
>
>Take Good Care,
>Michele
>
>>Hi Michele,
>>
>>I had adhesions so bad on the omentum, that the dr did an omenectomy, he
>>removed it hoping thatthis would keep the adhesions rom forming so easy.
>>he had said that this is wherethey seem to be when he does alot of gyn
>>surgery.
>>
>>That wqs done th efirst laparotomy in april, because adhesons had
>>adhered to the last ovary, and the bowels was all shifted to the right
>>side and he could not find the ovary. He then removed the last ovary,
>>but i was still in pain after the surgery, so he did a laparoscopy in
>>august to findthat he could not get through to far due to very dense
>>adhesions, he thought they would still be wispy, so he schedued
>>anotherlaparotomy in sept. I had extensie adhesons all over the loops
>>of small bowel, and the adhesions had pulled the tranverse colon(lg
>>bowel) and was stuck to the pelvic floor, and he said it was smothering
>>my small bowels. Now I see a pain dr, and she is tryig to help with
>>meds and counseling, now I struggle with even moving bowels, I suffered
>>so bad I hadd taken a laxative, and tonss of prune juice which usually
>>makes me go within an hour, ut I finallt told my husband to getme an
>>enama, and I did go after that, but it still hurts bad to have a bowel
>>movement. I too m looking for positive thoughts, if anyone has ANY!!
Michele,
So you have been diagnosed with ORS? I still am wonderig about that with
me, i have so much right sidd pain, where the lastavary was, and another
gyn had nentioned this to my dr, but he sais he would have seen it in
there during the second laparotomy, so i am still confused.
I had stpped premarin for a lng time to se if the hot flashes would come
back, and the one gyn said if they did not come back, there could be a
small tissue that got stuck since the adhesions were so thick, and the
bowels were seriously attached to it, but my gyn says there is no need
to do another ultrasound, he said he knows I have no more masses as I
did before all the surgery. Just wondering how you convinced your dr to
check this and how!
I increased the senekot last night , but the bowels are gettig harder to
move them, I do not want to take another enema, I was desperatesaturday!
Let me know how you are doing, and believe me I am trying to keep my
head up but it gets harder everyday! I at least know that eventually my
gyn will do a lap when the time comes, right now I do not know how long
the pain enter plans on treating me, she did say for quite sometime, how
long I do not know. I feel somewhat better when it comes to the pain in
the legs and incision, but the lower pulling pain all along the lower
pelvis is still there, I gues by the way my pain dr talked, that pain is
hard to treat with pain killers!
Better get soething done around here, so I can go to nursing home to
visit my sick grandmother!
Toni, Sorry about the typing this web tv keyboaed is very touchy!
--
hi kristy,
I have not been able to find the adhesions forum, nd have been off , computerdied, and now we are on web tv.
I am having alot of trouble with the bowels, and now they say i have become very high risk to obstruct, and I am trying to forgt about it, but it is real worry, itis getting harder to go, and they say it is VERy important for me to go everyday, I cannot even getout of the house early.
i am now on 900 mgs of neurotin, and oxycontin, which seems to help SOME!
My new address is welsh1@webtv.net
hope you can email me this web tv is NEW to me, have to figure it out, now I cannot find any of my friends!